Xavier Went Home

Praise the Lord!! Xavier was released from the hospital yesterday and went home. That must mean he is doing really well. We are so very excited for him to be home. Thank you so much for all your prayers for our friends. You can check out the details on their blog: http://buddyandamanda.blogspot.com/.

Almost home?

Just a quick update on my goings on here at Walter Reed. I understand from my Case Manager that my case has been reviewed by the Army Physical Disability Agency and I can only assume that they approved it and it is now moving on to what we call Transportation and Transition. They let my Company here know that I’m going home and then my Platoon Sargeant and I sit down to see how much leave I have and want to use. This is kinda how it works… they are required to give me ten business days to out-process here and then twenty calendar days of transitional leave plus any leave I have accrued. All this begins when orders are published. We have to sit down, decide that the above is pretty much what I want to do, submit it to Transportation and Transition and they will cut the order in a few days. Example: Say my name shows up on the list sometime next week. We’ll go over the paperwork and submit it. They publish an order saying that all this starts on March 10th. I understand that means I’ll have ten business days of out-processing and that my leave begins March 22nd. Right now I have 50 days of leave plus 20 days of transitional leave… that’s 70 days of leave (woah!) So that means I’d be on leave through May 30th. The whole time I will be paid, and also receive my housing allowance. I could even choose to go back to work at my civilian job through that time. But I’ve been away for four years – so I have no idea what I’ll be doing. Maybe a nice vacation with Holly. May 31st would be my first day medically retired. We’ll see how it goes.

Other than just waiting for that, I’m just chillin’. I helped Amanda and Buddy run errands yesterday and we took some portraits of little Xavier for announcements. When Holly was here my portable hard drive took a fall while it was running from a coffee table and now it refuses to run. I think I’m going to send it off to have the data recovered. That really stinks. What else is there?.. Winter has really sucked here. We’ve only gotten two decent snows and a lot of rain. That’s about it for now.

Here’s an update from Holly on her dad:
Harvey is still having digestive issues. The ulcer medication had to be approved by insurance and was taking so long to get approved and prescribed that Dr. Bonds prescribed an over the counter medication instead so it would get into his system since it's the same thing as the prescription medication. His legs started swelling again after activity this week. He had a follow-up appointment with Dr. Bonds Thursday and he's going to start the Warfarin again in a few weeks. He really needs the ulcer medication to start healing him so his digestive issues will calm down.

Baby Bear Is Here!

Amanda's due date was February 16th. Although most of us didn't think she'd make it to that, especially after contractions began last Wednesday, I figured Baby Bear would come while I was here in DC sometime. I was really hoping to meet Baby Bear before I left because if I didn't, I don't know how long it would be before I did since I'm flying home to Texas this afternoon and this may be my last visit to DC. But we got a text message about 7:00 o'clock this morning that after five hours of labor Xavier Allen Staats was born at 4:48 a.m. He's 8 lbs, 4 oz, 20 inches long and had a full head of hair. Not surprised by the full head of hair, if you know Papa Staats. Mama Staats and Baby Bear are both doing great. And we're on our way to meet him before I head to the airport. Check out their blog for updates and pictures soon.

No Hearing, Great Results, Excellent Birthday!

I know that many of you know that I had a hearing scheduled for this morning to appeal my initial disability rating from the Army Physical Evaluation Board (PEB) of 30%. Up to this point I didn't want to reveal too much information because my attorney had a strategy and the last thing I wanted to do was to undermine it. I know that sounds kinda' lame, but I don't know who's reading this blog. I can't remember how much detail I went into after I got my initial rating so I recap just a bit.

After I got that rating, it seemed low to me so I went to talk to a rep from the Disabled American Veterans (DAV). They have someone on-site at Walter Reed (WRAMC) to help us out with these things. When he looked at it and then looked at the regulation, he said it looked like I was supposed to get 100% disability. The DAV has a program where law firms in the DC area will represent soldiers that want to appeal their ratings. I was assigned an awesome lawyer from the firm Jones Day. This guy was awesome. He looked up tons of information regarding my situation, gathered documents and records and spoke to me several times to discuss my case. We finally met face to face last week at their office in DC and we went over all the information they gathered for my case. Then late last week I had to do some running around to gather a few more documents right up to Friday night. I took the weekend off and stayed with my good friends Amanda and Buddy (check out their blog!).

Monday morning I was getting ready to do some more info gathering when I saw that I missed a call on my phone. It was my PEBLO Counselor and he said that he had a new DA199 for me. The DA199 is the form that has a disability rating on it. I was a bit confused and when I called him back, I had to leave him a message. I then called my attorney and he said he wouldn't be surprised because they came to WRAMC last week and observed a hearing and then had a chance to speak to the board. Then as I was about to run out the door, my Case Manager called me saying that I needed to speak to my PEBLO ASAP! I headed right over there and as I was walking down the hall, he came out of his office and he called me back immediately. He showed me the new paperwork and apparently, after my attorney met with them, they convened another informal board and changed my rating from 30% to 100% through Aug 2009 on the Temporary Disability Retirement List (TDRL). So, I did not have to go to my hearing after all! I shared this new information with my attorney and he told me it looked like this was the best I was going to get, so I signed it.

Now the paperwork has to go to the Army Physical Disability Agency (PDA) for approval. If they agree, then they will cut order for we to leave WRAMC and I couold be home by the end of March. I know it's all confusing, but there is a very good short summary of the whole process, including what TDRL and other things mean, here: Military Disability (Medical) Separations and Retirements. This has been such a relief for me and my entire family. This entire four year saga of being away from home might soon be over... but lets just keep on praying for now. Thanks for praying for me and sticking in there. We only have a little bit more to go!

So today is my birthday... I'm 33. The staff at the Stripe newspaper office had cake for me - that was nice of them. And this evening I went back over to Amanda & Buddy's for dinner, games and cake. I'm so glad they invited me. It was nice to have a somewhat regular birthday. I wish Holly was here with me, but I'll see her soon enough. BTW - I think Amanda is going to be giving birth either Thu or Fri, the contractions are kicking in, so please pray for a safe delivery!

No News

I didn't get a call from my Oncologist today. I called his office, but there was no answer. I think he never made it in to work! I wouldn't have wanted to work today either. Today was beautiful here in DC! I had a hard time waking up today and getting going. I think it may have had to do with the new meds. Buddy came over and encouraged me to get out of the apartment, so I did. We played TopGolf with Tamra and Zach. I have never even swung a club at a golf ball before in my life, so it was a new experience for me. Needless to say, I stink. I did much better at miniature golf afterward.

Tonight we grilled some steaks over at Buddy and Amanda's with two of their friends. Then we played some Yahtzee, which I've played in the distant past, so it took me a while to relearn it. I had a good night. I'm going to get ready for bed and see if I can fall asleep at a decent hour tonight.

All Day at the Hospital, New Meds

Today was a pretty stress free and straight forward day. I got up, headed to Bethesda NNMC on the metro and saw my Oncologist for my 1130 appointment. It was a fairly easy visit. He had a resident there learning today so I got the help teach strength, balance and memory testing. They do this every few visits just to gauge my level and see if there any differences from last time. I think my strength gets better each time, but the memory stuff stays the same. I'm not getting any younger!

After that, I grabbed a quick bite and then headed to my Neurology appointment. We discussed my last seizure and also talked about the strange twitches going on around my right big toe and the side of my foot. For about two months before the seizure, the activity was so pronounced that I would lay in bed and could feel it. Sometimes it would keep me awake for a while. Then, after I had the seizure, they seem to have slowed down quite a bit. He was interested by this and seemed fairly certain that these were, in fact, tiny focal seizures occurring throughout the day. I thought it was just my brain confused and healing doing that, but that is basically a type of seizure, I guess.

We did more strength testing and he also seemed satisfied with my improvement, but wanted to control the seizures. I am at the maximum dosage for Keppra at 2,000mg per day. He also told me that Keppra is good at controlling generalized seizures, but not so good at focal seizures. I tend to have focal seizures that progress to a generalized seizure. So, he waded through the list of additional medications that he could add and finally ended up at one called Tegretol. I’ll be taking 400mg per day to start. I took my first 200mg tonight and feel okay – a little drowsy – which is a side effect. He said that it also might make my stomach feel upset for the first few days, but it should pass. It’s feeling pretty good so far. The only issue with the Tegretol is that it can increase liver enzymes, so he’ll need to draw levels to make sure that I’m getting enough of the medication into my system and that my liver enzymes don’t increase to a dangerous level. He also wants to do an EEG on Tuesday, just to see what kind of activity by brain is creating. He mentioned that there may be some scar tissue or something else in my brain that is irritating it and causing these seizures. It is apparent that something in the part of my brain that controls my right foot around my big toe is irritated. He said that if I was interested, they might be able to pinpoint it in time, and possibly go back in to remove the irritation. Hmm… we’ll cross that bridge when we get to it. He was also happy that I had an MRI scheduled for later in the afternoon and would use the data from the EEG and MRI to compile the NARSUM for my MEB. He said that he’d have a better idea of what to include in the NARSUM, but was not going to do it until I was stable. That means that next week, WRAMC will only transfer me into their system, I’ll have to move there and then will have ongoing appointments until the doctors think my condition is stable enough to begin the board process. In addition, my doctors don’t want to see me moved to a different location – they would prefer that I stay close to them for my care during the MEB process. My Neurologist said, “Why start you over again with a new doctor? That’s just stupid.” I agree. I hope WRAMC agrees.

After the visit with him, I went down to MRI, and after a short delay due to an emergency MRI, I had my time in the machine and actually fell asleep inside the magnet again. I didn’t have a chance to get a CD of the images because it was after 1800 when I finished, but my Oncologist is going to call me Saturday morning with the results. I’ll pick up a CD on Tuesday when I’m there for the EEG and will try to share them with you.

After the MRI, I high tailed it back to Clarendon and joined up with Amanda, Buddy, Ryan, Zach (John’s brother) and Tamra for dinner to celebrate Tamra’s getting out the Army. We went to The Cheesecake Factory and ate a lot of food and of course, dessert too. Buddy and Amanda gave me a ride home and hung out for a while with me. All in all – another good day. I’m looking forward to a weekend of rest and beautiful weather here in DC. I’ll let you know what my Oncologist says about the scan results tomorrow.

Off to bed - long day Saturday

A big thanks to Buddy, Amanda, Ryan, Derek, Jumoke, Pili, Charles, Megan, Ruben, Esther, Ashley, Matt, Julie, John, Tamra, Jana, Kezia, Naomi... your help providing materials, ideas, muscle while we packed everything up and loaded the trailer has been such a blessing to us. All we have to do now is wake up, take our last few items down to the truck and drive off. We had a nice meal at El Pollo Rico (which we're going to miss so much since it's so close and sooo yummy) and then we watched just a little TV and talked. Then our great friends presented us with a scrap book full of pictures from our two years here, and goodbyes from many different people from church. We looked at the pictures, but didn't really get a chance to dive into it. We'll enjoy reading it when we get home to Texas. Thanks again to everyone that had a hand in this wonderful gift.

Our time here has been awesome. I can't believe that we're leaving and that one year has passed since my brain surgery! Time has absolutely flown by. It just ticked past midnight and now it is March 3, 2007. One year ago right now my parents and Holly's mom were here and I was trying to get to sleep knowing that I would undergo brain surgery the following morning to remove my tumor. I didn't know it at the time, but the months following the surgery would be the most trying of my life. But here I am, one year later, driving off on one year to the day of that life changing day. Sometimes, it never seems like it happened. But every day I look in the mirror and I see the scar and my thin patch of hair from the radiation. It reminds me of what happened, and how far I have come. But I didn't do it alone. My wonderful wife, Holly, was there by my side every single day. She is my rock. And our family from Grace lifted us up during that time too. God gave you to us so that we could get through that time. In turn, we gave something back to others that are able to take our experience and somehow get through something in their lives just a little bit easier. I'm happy that God used me for that purpose. I will go through it again if I need to, because I feel I have helped more people having experienced this than anything else in my life. And it has made me a better person in the end.

The next few months will be a challenge for us, but it's nothing we won't be able to handle. But for the next 40 days, I'm on vacation... my first in two years. Man, am I looking forward to it! Lastly, Holly shared with you that I am on the selection list for a promotion to E-7/SFC in the Army. This is great news since it means more dinero and it just feels good to know that I made the cut. I had to take what the Army calls a DA Photo (Department of the Army Photo) and submit it with my promotion packet. I thought I'd share it with you. Good night.