mommaerts.org :: blog

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Welcome to our Blog :: Come back often to check in on us and the treatment of Roger's brain tumor.
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May 1, 2007

No surgery now and Almost done in-processing

The weekend went well – but it was very tiring. I went with Amanda to the house we worked on at 7am on Saturday morning… yes!!! 7am! We really had a good time working out there all day. I personally worked on a few projects. First of all, I took over 150 pictures for Amanda. I also worked on fixing a toilet, installing smoke and carbon monoxide sensors around the house and then repairing the fence that surrounded the house, which involved hammering in probably a hundred nails! After we cleaned up, we ended up back at John and Tamra’s for some pizza and games. Sunday we went to church and then John took me to the PX so that I could buy cleaning supplies for the room. After that, we headed back to the house to try to finish the fence. The fence was repaired, but needed to be primed and painted. We were able to finish priming and painting the outside of the fence, but only got as far as priming part of the inside of the fence. I guess we’ll need to go back and finish the job in the future. I left with John, Tamra and Zach, we had dinner, and then they dropped me back off at WRAMC.

Walking back into my room was a shock. I hadn’t realized what a mess I had left it! I decided to start unpacking and I just kept going and going until I felt like it was habitable. When I looked at the clock, it was 3am. You know… it was worth it. I’m just one of those people that unpacks first just to get comfortable. I’m glad I did because it was done! Yeah, I had to be at a formation at 0830 Monday morning, but I could get sleep after. I got a few hours of sleep and walked into the Gym across the street from our billets and was surprised to see a gaggle of people just sitting on bleachers. Apparently, a formation just means we show up and they account for us. I was expecting to stand in lines of platoons and squads, but I guess we don’t do that here. After that I ran off for a quick breakfast and then met with my social worker who talked to me about my options regarding choosing to stay in the reserves or elect to have a board where I will be medically discharged or retired depending on what disability rating I get. Well, I’ll have more on that later. The rest of the day I just went from place to place to continue in-processing. I was exhausted from all the walking around and decided to go back to my room to take a short nap. Well, the short nap turned into a long nap and I missed dinner. I set my phone to wake me up, but dismissed the alarm. Thanks to my friend Jill N. who called to say hi, she woke me up before I slept way too long! Luckily, there is a little place in the hospital, called Walt’s, which is open rather late where I can use my meal card. I got a hot dog, a salad and some other items, and headed back to my room. I watched some TV, worked on a little paperwork and went back to bed.

This morning I was awakened by a phone call at 0630 by my new squad leader. I knew it was him because I put all the numbers I needed in my phone and the Caller ID tipped me off. I’m not really sure what we said to each other… I guess he was checking on me to make sure I was ok. I went back to sleep thinking that I didn’t have to check in now and decided that I was going to sleep in to get some rest and finish in-processing in the afternoon. My phone woke me up again at 0900 when another squad leader from the platoon called to see if I was okay. Man… I told him about the earlier call and he said he never talked to the guy who called earlier, so they didn’t know what my status was. Anyway, I hope that never happens again! Okay, so I finally got my lazy butt up at 1100 and got going. I must have been extremely tired from the weekend and Monday. I did all the in-processing I could for the day and got ready to go to community group. I made it from WRAMC to where we meet in Arlington in only 40 minutes, which I think is pretty good for mass transit. After the meeting, friends Kezia and Jana gave me a ride back here.

Okay, last thing… my neurosurgeon has wanted to fix the incision on the top of my head for quite some time now. He just doesn’t like the way there is an indention and no hair across it. We talked last week and I thought we were going to do it this week. But after my neurologist said they might be able to go back in to fix the seizure issue, everything got confused. I finally talked to him today and here’s the skinny: My neurosurgeon doesn’t think that any surgery in the brain should even be attempted until all other options have been exhausted and no earlier than 36 months after the end of my radiation therapy. Not only that, but he doesn’t even want to work on my scalp until 12 months after the end of my radiation therapy… which is mid-July. So, no brain surgery for at least two more years, and no working on fixing the scalp until after this July. But he and I are confident that they won’t have to go back into my brain. I know I’m in good hands and he’s pretty sure it will resolve itself over time.

The other issue I have been having here is that my Narrative Summary has not been completed yet and I still don’t have the permanent profile that I need to get this process started since my new doctor last week changed it to a temporary one. Well, I explained all of this to my neurosurgeon and he is going to do both. It won’t be this week, but he said he’ll take care of it. With him involved now, it looks like I am in good hands. I’m going to let my case manager know and put them in touch with each other, if necessary.

Tomorrow I have to attend three briefings throughout the day, so it should be an uneventful long day. But I’m almost done in-processing! After tomorrow, all I’ll need is to have my teeth checked and I’ll be done.

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Apr 25, 2007

Sign of things to come?

I showed up at WRAMC for my 0900 appointment with my Social Worker and guess what? My SW has been out all week. I hope this isn’t a sign of things to come… When I went back to the building where all the Case Managers were, they were all gone to some ceremony. Seems to me that at least one should stay behind – they all just up and left. I checked in to see if my orders assigning me to WRAMC came in yet and they hadn’t. And my promotion orders didn’t come in either. I poked my head in the housing office to see if I could at least get my room, but that person was out too. My day was really beginning to feel like a downer. I checked into my platoon’s office and checked my email and such. I decided to look in the housing office one more time and success! I got a room assigned and went off to check it out. It is in what appears to be a recently renovated building because it sure didn’t look old. My room is on the third floor and will do nicely for a few months. I’ll have more details on the room when I move in after Friday. The only issue I have is that the last person didn’t do a very good job of cleaning it. So, before I move in I’ll be giving it a good scrub down to make it meet my standards.

When I was checking out my room, my Case Manager called me to see if I was still in the area. I was and went by the office to drop off some paperwork and found out that I have an appointment with my new Primary Care Manager (PCM) tomorrow at 1530. So, I’m going to go to my work in the morning to turn in my pager and badge, finally sign my NCOER and if the orders come in, get my E-7 pinned on (or velcro’d on) and grab some lunch. Then I’ll make my way to WRAMC for my appointment. Tomorrow night I have to gather everything up again to prepare to relocate. If you’re free and want to hang, give me a shout – I might be able to use a little help and it’d be nice to not be alone.

Allison picked me up tonight and we had dinner with a bunch of friends who live together from the church. They really did a great job of cooking! They do it every Wednesday night, so I might make this a regular thing. Thanks to all of you at the community house for dinner! And thanks to Kezia for the ride home. Another long day tomorrow – off to bed with me. BTW: I am feeling much better on my meds. I think the extra rest I’ve gotten over the past few days has helped, but my tummy is still a little uncomfortable. That should pass in time though… I hope!

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Apr 23, 2007

Is Today Only Monday?

I'm really tired, so I'm going to be short and to the point today. My commute to WRAMC this morning went fine. I found the building I was supposed to report to and the office too. I met with the LTC and she got me moving in the right direction. I met with at least ten other people in various departments. I got a meal card so that I can eat in the Dining Facility (DFAC) for free; was assigned a Social Worker that I'll meet this Wed; a Case Manager, whom I met today; the people in the Reserve Liaison office, who will cut my new orders; the housing guy, who will give me a key to a one man room in building 14 (not the famous 18) on Wed; the Chaplain; the personnel folks in S-1, who take care of the paperwork; and my new command structure, as I have been assigned to 5th Platoon of the Medical Holdover Company. They tell me that my orders assigning me to WRAMC will start 28 April 2007. My current orders end 27 April 2007. This means that I will move out of this apartment in Rosslyn, Arlington, VA on Friday and move into the housing on WRAMC in DC. If you want to write me, you may do so after this weekend at the following address:

SSG Mommaerts, Roger J. Jr.
WRAMC, MHO 5th Plt
6900 Georgia Ave
Washington, DC 20307-0001

My cell phone number and email address will remain the same. I’ll really begin in-processing to WRAMC next week and visit with many more people. They tell me that I’ll be here anywhere from 90-150 days. Right now I understand that they have only two formations per week where everyone assigned must show up to make sure everyone is here: Mon and Fri at 0830. Tue-Thu we just call in to let them know we’re still alive. Weekends we’re free to do whatever we want as long as we don’t leave a 50 mile radius. If we do, we can get a pass or take leave if we’re eligible. I’m sure that those that are in good health will be assigned some kinds of tasks every once in a while, and that’s okay. For now, that’s about all I know about WRAMC. I spent pretty much the whole day there, from 0800 to 1545. And it was a warm one today too. And the AC isn’t on yet… because it’s not the right time of year. That is so government, right?

I talked to my Oncologist today and he said the MRI looks good. I’m going to meet with him tomorrow after he talks to the radiologist and after my EEG. I’ll give you the skinny on that tomorrow.

So, these new meds I started taking on Friday… they give me no less than a few side effects which include but are not limited to: headaches, fatigue (I feel tired ALL day), slight chills, stomach ache, twitches, my right leg feels very tired at the end of the day, trouble waking in the morning (BIG trouble), pressure up my spine and on my shoulders, and last but not least, it’s messing with my emotions. I had a major breakdown today. I’m not afraid to admit it. I was blubbering like a baby, but didn’t really know why. I guess it felt good to get it out, but I guess I wasn’t exactly sure why I was crying. I don’t feel very good on this medication right now and I hate being alone. I was and maybe that contributed to it too. Well, my good friend Kezia called me just at the right time and saved the day. She swooped in and picked me up. We went to dinner and then hung with friends Chris and Jumoke. I feel a lot better tonight and hope this doesn’t happen again soon. There is so much going on right now and I suppose I just needed a release. And with these meds in my system, they came out this way. I have that EEG tomorrow and will voice these concerns to my Neurologist – we’ll see what he thinks. Also, I understand that my promotion is in the works and the orders for that should be cut by the end of the week. Yay!!

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Apr 17, 2007

300 and minor victories

This blog is our 300th! Holly and I started this thing up when I first mobilized to DC in May 2004. We’re at almost exactly three years so it would appear that we average 100 posts per year... interesting statistic. Or not. :-P

Okay, so today… what did I get done today? Well, before I even get there, let me tell you that I tossed and turned until about 3am. My mind races through all the things that I need to get done in the next few days, ways to get them done quicker, and the ever present thought of having a seizure while alone always haunts me. I don’t know why I am afraid of it. But sometimes it terrifies me. The two times I was conscious for the start of them, they were agonizing and I remember them well. I think back to how horrible and scary it feels and just don’t want to have it happen to me while I’m alone. It’s nice when Holly is there, as she was every time, to tell me its going to be okay. But eventually it is going to happen when I’m alone or in public around strangers. I just need to keep praying that the Lord will ease my fears. Join me, will you? This is a toughie for me.

Alright, back to today. Since I didn’t get to sleep until late, I woke up later. I finally got to the Pentagon around 10am and went to the medical clinic. I went to the desk and told the nice lady that I was out-processing and needed to retrieve my records. She went to the back and brought them out. If you take a look at item number one on my list from yesterday, you’ll remember that I needed to get my profile paperwork. As soon as the lady handed me my records, I cracked it open to see if the profile was in there. Nada. I then explained to her that I called right before I went on leave about this and that someone changed it in the computer and that the paperwork must be somewhere. She looked in her computer and saw that I did call about it. I found an old temporary profile and handed it to her and told her that I just needed a new updated one that is permanent like in the computer. She took it to the back to a nurse to see if the doctor could fill it out. While she was gone, I stood at the counter, bowed my head, and just prayed that the good Lord would intervene and just get it signed today somehow. She was gone a while and I sat down. After a few minutes, the nurse came back and said that the doctor needed to see me to fill it out and that there were no more appointments today. The lady at the front desk said that I would have to call back at 6am the next morning to make an appointment with my doctor so that she could do it. This didn’t sound acceptable to me. First of all, my doctor knows what’s going on with me and could have the form filled out in five minutes. Second, I already called over a month ago and asked the doctor to take care of this – and someone did because it changed in the computer. I really had a problem with having to do extra legwork to get something signed that should have been signed a month ago.

I expressed these concerns to the lady at the front desk and she was willing to hear me out. I’m trying to get a lot done and can’t get around easily and they wanted me to go the extra mile to get something done that should have already been done. Are you getting me? Finally, I told her that first and foremost, I am a soldier, and I will obey an order; and if the commander of the clinic tells me to go home and come back tomorrow, I will obey that order without another word. But if there was anything that we could do to get the form signed today, I would do it. Silence. She told me to have a seat and she disappeared. When she returned, she said that the nurse of the day would see me shortly.

After another wait, the nurse, an Army Captain, called me into their office. I again explained my dilemma to the CPT and she listened to me. The CPT told me that they would be able to help me out, but it would not be immediately. It was nearing noon. My doctor would have an opening at 1340 that day where the paperwork might be taken care of. I made a quick call to Tamra, who was supposed to drive me around, but wasn’t able to get a hold of her. I decided this was an answer to my prayer so I decided that I better take the CPT up on the offer, even though it meant that I wouldn’t get out of the Pentagon until near 3pm. The CPT made the appointment and I was off to find lunch. It worked out great because I needed to drop off a set of keys anyway at the office I worked at for a while. They were happy to see me again and let me use a workstation to check my email, make a few phone calls and eat my lunch.

I made it back to the clinic by 1330 and was called back to see the doctor. The doctor finally came in at around 1350. I brought the doctor up to speed and in less than five minutes the form was done and in my hands, and I was out the door. Four hours of work to see a doctor for five minutes to get a form filled out. Can you believe it? Now we can cross number one off the list! A big thanks to the nice lady at the desk who was willing to do what she could to get me what I needed today. I was sure to fill out a comment card commending her actions and dropped it in the comment box.

On to number two: I called Tamra and she picked me up at the Pentagon City Metro station. We headed down to Fort Belvoir and found our way to the out-processing building. We checked in and I had to provide copies of all my orders for the whole three years and other paperwork. I was then given a checklist of buildings that I needed to visit to get them to check items off of the list. Things like: Personnel, Finance, Medical, Dental, etc. We went upstairs to the first item on the list: personnel. When we got there, I explained to the Staff Sergeant that I was eventually going to have an MEB. Thank God I told the SSG that, because since that was the case the SSG said that we should skip everything on the list and just go right to medical. Nothing else would matter since I wasn’t really going to get out right now anyway. I just needed to get to medical so that they could see there is an issue and they could refer me to WRAMC. Boy, talk about a life saver! The SSG was very helpful, so I made sure to save their phone number for any future questions I might have. It was just after 1600 and we noticed that the first place in medical was still open, so we went there first.

We found the building after getting slightly lost and I picked up a medical packet. The packet said that pretty much all the other stations were closed, so we decided to call it a day. Tomorrow we’re going to head back down to Ft Belvoir and try to get the medical stuff completed. I also need to sign my NCOER that they couldn’t find on Monday. I’m going to call work in the morning to see if they have it handy. If they still can’t find it, I’m going to go to Belvoir first. If they do have it, I’ll go to work first thing and sign it and then head down to Belvoir.

So, I’d call today a pretty good day. I just hope that tomorrow goes smoother. After work, I made some copies of paperwork that I might need tomorrow and sent a copy of my new profile to my unit in Fort Worth as they needed a copy. Then I went to a community group of my church that meets in Kezia’s building. Kezia and Jumoke picked me up and I had a great time hanging out with everyone. I feel pretty tired today, so I’m hoping that my body gives in and I can get some decent sleep tonight. Thanks to everyone for your prayers!

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Mar 2, 2007

Off to bed - long day Saturday

A big thanks to Buddy, Amanda, Ryan, Derek, Jumoke, Pili, Charles, Megan, Ruben, Esther, Ashley, Matt, Julie, John, Tamra, Jana, Kezia, Naomi... your help providing materials, ideas, muscle while we packed everything up and loaded the trailer has been such a blessing to us. All we have to do now is wake up, take our last few items down to the truck and drive off. We had a nice meal at El Pollo Rico (which we're going to miss so much since it's so close and sooo yummy) and then we watched just a little TV and talked. Then our great friends presented us with a scrap book full of pictures from our two years here, and goodbyes from many different people from church. We looked at the pictures, but didn't really get a chance to dive into it. We'll enjoy reading it when we get home to Texas. Thanks again to everyone that had a hand in this wonderful gift.

Our time here has been awesome. I can't believe that we're leaving and that one year has passed since my brain surgery! Time has absolutely flown by. It just ticked past midnight and now it is March 3, 2007. One year ago right now my parents and Holly's mom were here and I was trying to get to sleep knowing that I would undergo brain surgery the following morning to remove my tumor. I didn't know it at the time, but the months following the surgery would be the most trying of my life. But here I am, one year later, driving off on one year to the day of that life changing day. Sometimes, it never seems like it happened. But every day I look in the mirror and I see the scar and my thin patch of hair from the radiation. It reminds me of what happened, and how far I have come. But I didn't do it alone. My wonderful wife, Holly, was there by my side every single day. She is my rock. And our family from Grace lifted us up during that time too. God gave you to us so that we could get through that time. In turn, we gave something back to others that are able to take our experience and somehow get through something in their lives just a little bit easier. I'm happy that God used me for that purpose. I will go through it again if I need to, because I feel I have helped more people having experienced this than anything else in my life. And it has made me a better person in the end.

DA Photo 2006DecThe next few months will be a challenge for us, but it's nothing we won't be able to handle. But for the next 40 days, I'm on vacation... my first in two years. Man, am I looking forward to it! Lastly, Holly shared with you that I am on the selection list for a promotion to E-7/SFC in the Army. This is great news since it means more dinero and it just feels good to know that I made the cut. I had to take what the Army calls a DA Photo (Department of the Army Photo) and submit it with my promotion packet. I thought I'd share it with you. Good night.

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