Health Happenings

Okay, so I know I said I would post some good health news a while back. I forgot. Sorry, but I have some more to add now which reminded me. First, I had my yearly visit with my gastroenterologist in June and I expressed to him how great I have been feeling since my visit last June. How I feel like I don't have a disease at all. Of course I do but since I take my medications regularly and have been having great results I just don't feel like it. So he let me taper my medications down. I am so happy to go down two less pills a day. It's a really good thing. Even though he added 1000 mg of calcium over my multivitamin which is two pills a day and nulls the two he took away. But I don't care. It's two less ulcerative colitis pills I have to take which is a great thing. And I'm super happy about it!

Now on to the latest health news. Roger and I went to Brooke Army Medical Center in San Antonio yesterday for his semiannual MRI and visit with his radiation/oncologist. We knew it would be the same as usual but it was even better. It looks like the scar tissue/junk that is still in Roger's brain where the tumor was removed has gotten smaller by 1 millimeter. I know that doesn't sound like a lot, but it is! We never thought it would go away or get smaller so fast. Roger had his craniotomy in March 2006 and his radiation ended at the end of the summer that year. So it's been three years and we are already seeing a decrease. Awesome!! The edema (aka fluid accumulation) hasn't changed much but like I said, we know it will take years and years. So to have the scar tissue area decrease in size is another great blessing. And three years cancer free! I think we are on cloud nine! We can't help but praise the Lord for yet again taking care of us.

And last but not least, Roger has decided to get serious again about his physical recovery from the paralysis he experienced after the craniotomy. He was rear ended in my vehicle a month or so ago and it aggravated his hip which is still not strong. So not only did he get a referral for physical therapy for that, but we also bit the bullet and purchased a Wii and a Wii fit. We started the EA Active 30 day challenge this week. And it's great. It's a really good workout for Roger and will help him to build his strength back up in his right hip and leg muscles. Which means we will soon be able to go for long walks and rides on our bikes. I can't wait to get back on the trails on our mountain bikes together. I will continue to do my regular morning workouts and workout with Roger in the evenings so we can do it together. Although the Wii EA Active workouts are good, they are kind of like a warm up for me so I'm not going to stop my other workouts. I recently went up to 2300 meters twice a week in the pool and have added weight resistance twice a week to my workouts. But the Wii is so much fun too. I can totally see Wii bowling party nights at our house in the future. Watch for your invitation!

A Wake Up

I was going to post yesterday about there being only one more day and a wake up before we close on the new house, but I forgot in all my errand running, furniture picking up and appointments. So you'll have to settle with only a wake up left before we close on the new house. That's fine with me because we are very excited closing day is almost here. We are in week fifteen of the house build. They actually finished last week so it really only took fourteen weeks to build our house. Can you believe it?! Three and a half months. It went by so fast. We had the final walk-through this morning. And there is only one issue left to be resolved and it will be fixed in the next day or two. It might be fixed this afternoon since our construction manager Derek scheduled the electrician to come this afternoon. One of the pot lights in the kitchen was wired along with the pendant lights over the island which is not correct. But it should be an easy fix. There were a few paint touch-ups and the painter showed up as we were thanking Derek and leaving. They plan to clean the floors one more time this afternoon so they will be spic and span again. But the house looks great. We LOVE it. I should have taken some pictures but I forgot. I can't wait to move. We close at 10:00 a.m. tomorrow morning and then we are home owners once again.

Also while we were at the final walk-through this morning, Roger got a call from his radiation-oncologist with his MRI results from last Tuesday. Everything looks normal and shows no changes from his last MRI. So we're good to go for another six months. We knew it would be fine. Our God is good. I'll try to take some pictures tomorrow after we close but before we start doing anything to the house. I am planning to paint a wall tomorrow afternoon so it's dry for Roger to be able to install his surround sound speakers and TV wall mount Saturday. Super Bowl Sunday is almost here. We have to make sure that's all ready. :)

MRI Results

Sorry this is so late, but we had good intentions of posting this last week. Obviously we got distracted and forgot. Roger received the official results from his radiation-oncologist at BAMC last week that the MRI looked good, pretty much the same as the others. And they are going to switch him to every six months so his next MRI will be at the beginning of next year. Great news when you can go from an MRI every 3-4 months to every 6 months. Thanks for all your prayers! God bless.

The Latest

Roger and I tried a new church this weekend, Austin New Church. Our friends Christian and Michelle and their children attend there. We really liked it and plan to check it out again. We especially like that it's only five minutes from our house at Akins High School.

Roger has his first MRI after coming home for good tonight at Brooke Army Medical Center (BAMC) in San Antonio. Please keep him in your prayers for a clear MRI and safety in traffic. He has to leave at 4:30 p.m. to get there in time.

Roger & I had some revelations regarding my job search and his future work situation this weekend due to friends pointing some things out that we completely missed with our current life situation. It made a huge difference for us because we realized we don't really need to work for "the man" like we always have and thought we'd always have to. I love working from home and would love to continue doing that. I know I'll have to have interaction with people so I'm inquiring about volunteering at a local museum. We've got some ideas in the works and we'll be filling you in on the results in the future.

Just a note on what we're reading lately. Our friend Cynthia lent Walking with God by John Eldredge to me this weekend. I can't wait to start it. The cover says, "Talk to Him. Hear from Him. Really." That's what I need right now. I also got Roger Quiet Strength, Tony Dungy's memoir. I'm sure he'll like it. It's written by a football coach! Anyone can tell he's a believer. I've always been impressed by his demeanor and leadership style.

2/4/08 MRI Results

Just a quick note to let you know that I went to see my Rad/Onc at the NNMC in Bethesda and we sat down to look at the MRI. And... it looks just about the same as the last two! There is definitely something up there and it is most likely scar tissue and not tumor because it is not growing at all. He said that we can probably move the MRIs from every three months to every four to six months. Sounds good to me! It's funny though... I really do fall asleep in the MRI even with all the banging and clattering going on. It's just a part of life now. Thank you to everyone for your prayers!

-Rog

MRI Monday Feb 4

First, for those of you that get the blog emailed to you, something happened to the service this past weekend and plogs that were written late last week were not emailed at all. I made the system email them to you just a bit ago. Sorry about that... if you want to get the blog emailed to you, scroll all the way down to the bottom of the webpage to sign up... its free!

I have another three month MRI Monday afternoon at 5pm ET to see how things are up there. Please continue to pray that the tumor is still gone and that healing is continuing. I meet with my Rad/Onc Tuesday morning to review the results. I'll let you know how it goes.

This week is going to be a busy one... I finally have an appt with the VA to have my physical by them for my VA disability claim. And I have a meeting with my pro-bono attorney to prepare for my hearing on Feb 13 to appeal my initial disability rating from the Army. Yes, I will get a disability rating from the Army and the VA. I'll have to explain that at a different time. I'll try to get you caught up on the lowdown this week.

Oh - and what an awesome game tonight. Personally, I was glad to see the Giants get the win over the Patriots in Super Bowl XLII. The Manning brothers get back to back rings. How cool is that?

-Roger

Prayer Request: Mrs. Fore

A very dear family friend, Mrs. Regina Fore, had a stroke this afternoon (Monday, Dec 3rd) and was taken to St. Joseph's hospital. Mrs. Fore is a friend, sister, mother and grandmother to our family. She and her husband, Dan, are institutions in the Smetana Community. My mom and sister-in-law went to the hospital this afternoon and were able to see her and Mr. Fore and their daughter Gina. It may be too early to know a prognosis yet, but an MRI revealed a lot of blood on her brain. I will keep you posted on her condition. Please keep the Fore family in your prayers, praying for the Lord to meet all their needs during this time. Thank you.

31Oct MRI Looks Good

Just a quick post to update you on my MRI last week. Basically, it looks stable and possibly even better than the one three months ago. But this one was done in a different machine at a different hospital, so the differences may have contributed to that conclusion. There doesn't appear to be any new growth so things are good. All of my doctors and therapists are currently submitting new and up to date information to the MEB. I have no idea if that will slow things down or speed them up. With the holidays approaching, I get the feeling they will slow down, but who knows? Thanks for the prayers!! :-)

MRI done and Published!

The MRI went fine this afternoon. I spoke to my Rad/Onc, Dr. Duelge, right before and we agreed that he would take a look at the scan tomorrow and if it looks fine, he wouldn’t need to give me a call. I’ll see him on Nov 6 anyway. He’ll only call me if there’s a problem, but we don’t think that will happen. And I’m going to get a copy of the scan tomorrow so I can see for myself.

I covered a story last week involving Miss Utah 2007 and her visit to the hospital to visit injured soldiers. She is an Army combat medic and really wanted to visit with them. We found out today that the story was picked up by the Army News Service and appeared as a press release and on the Army webpage. The article gives all the details about her, so be sure to read it. I wasn’t too sure about the picture because it seemed kind of dark, but I turned off the flash and just used the ambient light in the room. It gave a bit of a dramatic effect and lit up their faces quite nicely. Apparently the paper here sent them several pictures, but they liked the one on the page the best. It’s nice to see my work published elsewhere! Here’s the story: Miss Utah Visits Wounded Warriors.

MRI Oct 31 and BUSH!

First off… I have another follow-up MRI on Wed, Oct 31 at 4:15pm ET. Please pray that the cancer/tumor is still gone and that it never comes back. I’ll give you the results in a few days after I hear back from my Radiation/Oncologist.

Speaking of Rad/Onc, I was in the shoppette PX in the main hospital today after Aquatic Therapy and I saw one of the residents that helped treat me during my radiation at Bethesda, Dr. Smart. It was so good to see her again. She was so happy to see the progress I have made since she first met me back in May 2006. She remembers a guy with a bad limp and a cane. We walked and talked back to her office, which I pass almost every day, but I have never seen her even though she’s been here since January! I guess they don’t get out much – she said they don’t.

It’s been a pretty busy few weeks since I got back from leave. Let’s see… this week I met my new case manager. I was handed off to a temp case manager for a few weeks after my old one left. It turns out that my former case manager didn’t do as much as she could have done for me. I met with my temp case manager a few weeks ago and she had a lot of questions regarding why things in my case had not been initiated. Anyway, I’ll explain more later, but my temp took care of me and now I’m moving to a new one. He has ideas of his own. I know it sounds confusing, but I’ll sort it out here in a few days.

I’ve had five photo assignments since I got back and have been staying busy with that. Some weeks are busier than others. This week has been slow. I’ll eventually post pics of my work.

Before I went on leave I took pictures of our church’s softball team in action. We have two teams – one is good, one not so good. I've gotten lots of compliments on them. I'm really trying to learn different types of shooting. Sports is one of my favorites, but it is challenging and can get you dirty since you have to lay on the ground and stuff sometimes to get good shots. U usually end up shooting about 300 pics but only a few turn out to be usable. These are the best from this day. A lot of the pictures were also blurry, but I think blowing dirt and sand fro the infield was messing with the autofocus. Live and learn!


Then when I got back, Amanda took pictures of me when I finally got the clearance to play after my finger fracture was healed! It sure was fun to play a competitive game again. Running at full speed was weird and it was hard to slow down. And we lost big time, but it was fun. I had two at bats and had two singles. I did score once from first and was left at first at the end of an inning. I played second base and was two for two at making outs at second base. It was quite fun! Click the picture to see more. Thanks to Amanda for the pictures.

Last week, 20 injured soldiers were invited to visit the White House. The President was in CA dealing with the wildfires, and the First Lady was in the Middle East, so we didn’t expect to see them there. The staff at the White House was so very kind to us. They allowed our bus drive into the south lawn and right up to the south entrance where the President comes and goes. After we got off the bus, the First Dogs, Barney and Miss Beazley were scampering about. They were both cute and very friendly. We got the typical tour that most people get: The great room, the blue, green and red rooms, the dining room and the library and sitting rooms. The Secret Service tour guides took their time and allowed us to move gingerly from room to room. They invited us to sit in the furniture and touch the fabrics. We had soldiers in wheelchairs so we couldn’t move at lightning speed anyway. They let us ask all the questions we wanted and then they took us back down into the receiving room while we waited for our bus to return. There was a room off to the left that held many examples of each President’s choices for china over the years – it was very interesting. I didn’t bring my camera since I was tired and didn’t want to lug it around. Boy, I wish I had by the end of the day…

We milled around the room for quite a while and they handed each of us gift bags containing some souvenirs. I made small talk with one of the guides and then another agent announced that we may have been wondering why they were delaying us. At this point I thought we were just waiting for the bus. He continued to say that there was someone here that wanted to meet us all. I couldn’t figure out who it was. He continued to tell us that former President Bush wanted to greet us. At that point we were all a bit frazzled. What?!? Now? The room fell silent and we looked toward the door. I was at the far end of the room and was certain to be left out as I’m sure he couldn’t stay long and would have to move on. We could see him out under the awning shaking hands and talking to every staff member he met. He finally came into the room and said hello to everyone and immediately turned to the first soldier and asked his name, hometown, injury, how he was feeling, and then another question if he felt so inclined. He also allowed the person to take a picture with him. He also greeted every family member that was there. He did this again and again to every single person in the room along the carpet. He moved from his left to his right and back to his left, but he made it a point to meet with each and every one of us, including me. He was taller than I had imagined. He gave me a firm handshake and asked me the same questions. I was a bit distracted by a photographer that had appeared to my left who shot off several pictures in rapid succession. The President asked me what my injury was and I told him I had a brain tumor. I remember that he froze for a second and looked me right in the eye. Then he asked how I was doing. I explained to him all the circumstances that I have battled through and he smiled and shook my hand again and asked if we could take a picture. The person I asked to take a picture of us was out of sight, so I struggled to find someone else while I stood there with my arm around him and his around mine. The White House photographer said he would get me a copy, but I know how they work. A print would be sent to me in the future. I wanted digital gratification! I found someone to take the picture and then I thanked him for his time.

We were all quite awestruck and impressed that he wanted to meet every single one of us. When I got back to my room, I had an email from the Lance Armstrong Foundation that said Former President Bush had the Lance Armstrong Foundation in Urging Texans to Vote for a new Cancer-Fighting Measure two days before. I wish I knew that – I would have liked to thank him personally for doing that. Read the full press release here: LAF Presidential Meeting.

And, I wish I had brought my camera. I’m still waiting for the pic of us to me emailed to me, if ever. I’ll post it as soon as I get it. Well, that’s it for this installment. Remember my MRI Wednesday!

The Final Word: DELIGHTED!!

Holly and I went to the Naval Hospital yesterday (Monday) and met with my Radiation/Oncologist and Neurosurgeon. My Rad/Onc went through the images with us from the past few MRIs and showed us how they look pretty similar and the shifts in the images can be attributed to how my head is positioned each time. Anyway, he spoke with several of the other Oncologists there and they all agreed there is nothing to be concerned with. We talked about a PET or MR Spect scan and he said that we should just do another MRI in three months as those scans won’t really help at this point. We then met with my Neurosurgeon and he expressed the same thoughts. So, all in all, we were happy with what we heard and went on our very merry way! Thanks again to all of you who have been praying for and supporting us. We are very blessed to have you in our lives.

Holly and I signed up to go Yachting tomorrow. We have no idea where or what kind. All we know is that we’re being picked up with some other people at 0800. I hope this isn’t one of those boats that we’re going to have to work on. But if it is, I guess it’ll be okay. We’re up for anything. The weather here has been very nice – dry and not too hot. We’ll let you know how it turns out tomorrow.

Bad News... Great News... A Rollercoaster Day

I finally stopped in to see my alternate case manager this morning and she pulled up the Radiologist’s report from my MRI a week ago. It still is not a final report and she was unable to print it for me. But I leaned in toward her monitor to read it. The first part sounded like the rest of the reports… mentions of scar tissue, dried blood, necrosis, edema… but the last line, which is the overall impression of the scan read, “cannot rule out progression of neoplasm.”

Without any explanation, that freaked me out. I thought the worst. What did it mean? Was the tumor back? I suddenly felt sick to my stomach. I read it again to make sure I caught it the first time. Yep… I read it right. I felt a little queasy and stood up. She said to me, “do you know what that means?” I said, “I guess it means I’m not out of the woods yet.” She didn’t really say anything back, so I was convinced by her reaction that I was right and I dropped my head and walked out of her office. A female Army Captain that I talk to quite a bit here was waiting to see the case manager next and was seated right outside. She saw my expression and asked me if everything was okay. I didn’t answer. I wanted to cry. She asked me if there was anything she could do. I thought of anything, but didn’t come up with an answer, so I responded with, “I don’t know…” and I walked away. Walking down the halls I ended up at my platoon sergeant’s office and plopped down in his chair. He saw the expression on my face and asked me what was up. I couldn’t talk much… I thought I might cry. So I just told him that the MRI might not be a good one. I really don’t remember exactly what we talked about… I just know that eventually I left and knew that I needed to get something in my stomach so I didn’t feel sick all day.

I hadn’t eaten since 8pm the night before and now it was nearing 9am. I knew I was hungry, but I was sick to my stomach. I went to the chow hall and managed to stuff down a breakfast burrito, some yogurt and a banana. Ii figured that would hold me over for a while. I walked out of the mess hall and wandered into the Chapel area of the hospital on the same floor as the dining facility. Walking in, I noticed there were not very many people around. Nobody seemed to notice me and I felt very alone. I think I was about to walk out when a Major… a Chaplain… asked me if he could help me. I could only manage to get out, “I need to talk to someone.” He looked into my face and immediately opened an office for us to talk in. I sat down, he sat and closed the door and I burst into tears. I sat there uncontrollingly sobbing for a few minutes. I finally cleared my throat and explained what happened earlier to me. But I guess the sadness wasn’t from the shock of what might happen to me, I was more upset at the fact that I could not comprehend why this was happening from a religious aspect. I knew that the Lord does not punish us for our sins… but I felt like I was being punished for some reason. He then stated that he believed, as do I, that sometimes God gives us a little nudge or a reminder to take care of certain things in our lives that we might have been struggling with for a long time. This immediately related to me as I’m sure it relates to many people.

He asked me what else I was feeling and I answered fear. Not fear of dying, but fear of suffering. Physical suffering for me and suffering for Holly and my family if we indeed did have to go through what we already went through. I did not want to go through any of that again. My mind was racing at a thousand miles an hour and I was just going through a whole range of emotions and thoughts of everything in my life. He mentioned some verses from Genesis and we had just studied Genesis a few weeks ago at church. Then he mentioned a few things that very closely related to a book study that we just completed that related to me too. It was just odd that so many things correlated to what I was going through right at that moment. We talked for about an hour and I decided I was emotionally stable enough to leave and go back to my room. Before I left, he handed me his card and told me that he was actually the Chaplain for the Brigade that I am in. I was supposed to go to him anyway and he was at our formation this morning. Freaky.

I went back to my room and finally called Holly to tell her what I had found out this morning. Then the Captain and another Sergeant came by to check on me. They invited me to lunch, but I really wasn’t hungry. They left and I then talked to my sister and my father. All of those conversations were a blur. It’s sad to say, but I was just repeating the same thing over and over again. I just felt like I needed people to know and to pray for me. I called up my friend Buddy and we talked for a good while. It was around that time that the Captain came back and I invited her in for a chat. She sat down and the first thing I managed to get out was, “Do you go to church?” She surprised me by answering, “You’re probably not going to believe this, but I used to be a Nun.” Holy Cow!!! We had another very good conversation that encouraged me and she urged me to call my Neurosurgeon’s cell phone. I had already called his office and emailed him, but never got a call back. She convinced me that he would not have given it to me if he didn’t want me to call… so after she left, I did.

I picked up my phone and gave him a call and he answered. I told him about what happened earlier in the morning and said he’d call me back on his land-line. He loaded up the MRI images on his computer and I loaded them up on my laptop. He told me where to look and we went through the images slice by slice together. This MRI, or ‘study’ as they call it, consisted of 5mm slices of my brain. He was comparing last week’s MRI to the one we did in April. We looked at a few things and did notice some differences. First of all, it looked like the edema, or swelling, had withdrawn about 5mm in one area – that was good. Everything else looked slightly different from last time, but the size of the mass was still 1cm. He said the differences in appearance could be due to how my head was oriented this time compared to last time. MRIs of the brain will never look exactly the same twice; there are just too many factors. He said that what is there could be scar tissue, blood from the surgery, necrotic tissue from the radiation (that usually does not appear until 12-18 months after radiation has completed – it has been 12), or it might be neoplasm, or tumor. The latter not being very likely in his opinion. He said that he didn’t think there was anything to worry about and that he was disappointed with the radiologist’s report and the fact that it has taken them so long to finalize it. He had never heard of the radiologist’s name, ever worked with him or knew who he was, so he didn’t even trust the report. Let me tell you, I’ll trust a neurosurgeon’s opinion of a brain MRI before I trust one from a radiologist that has to interpret MRIs from all over the body. My doctor just works on brains all day, every day. He suggested that the next likely step would to do a PET scan or a SPECT scan to try to determine exactly what the components are up there before jumping to conclusions. Those are very detailed 3D scans that can distinguish different types of tissue. What a RELIEF!!!

I have an appointment with my Radiation/Oncologist Monday and my Neurosurgeon wants me and Holly to stop by. Oh yeah… did I tell you that Holly will be coming out here for a few weeks?!? Yay! So, today has been a very emotional day filled with ups and downs. Can you count how many times God tried to get my attention today? I think he’s trying to tell me something. Thanks for your continued prayer.

By the way, you can have this blog emailed directly to you if you scroll all the way to the bottom of the page on the website and sign up. And if you use Yahoo or Google as your homepage, you can subscribe by clicking the buttons to the right on the webpage. Alright, it’s 11:40pm here on the east coast and its still 90 degrees out. Thank God they fixed the AC in our building today!

No Official Results Yet

I stopped in to see my Case Manager today to see if the MRI results were in the computer yet. She looked and part of it was there, but it was not completed or ‘signed’ yet. I’ll check back with her tomorrow afternoon. This morning I had my first assignment with the Stripe, WRAMC’s weekly newspaper. I photographed the dedication of a building here on post to CPL Angelo J. Vaccaro, a soldier and medic who gave his life in the line of duty. This guy is a hero… the kind of guy you want to have in your platoon if you run into action. He did some amazing stuff and saved more than a handful of lives on the battlefield. You can read about some of the amazing things he did in this Stripe article from last week’s edition.

The shoot went very well. I was nervous as hell and it didn’t help that it was just about as hot as hell out there. I knew that the paper was relying on me for their pictures and I didn’t want to let them down, so I think I took too many pictures to make sure I didn’t miss anything. I ended up taking 186 photos in an hour – and I’ll bet they don’t even use some as the reporter there took her camera too. But maybe I’ll make the front page – I’ll let you know. I talked to the reporter later in the day and she was impressed. I’m not one to toot my own horn though, so well see how it turns out. I’m just doing this because I want to be a better photographer and doing this in my spare time will push me to work better as my work will be critiqued. I need that. I’ll post some of the photos next week after the paper comes out – I don’t want to post them before that as a courtesy to the paper. When I got back to my room, my entire uniform was soaked with sweat – yes, it was that hot outside. I had to change into different clothes for Aquatic Physical Therapy, so I had to lay my uniform out to dry. It was a very hot day and tomorrow is supposed to be even hotter and more humid.

Speaking of tomorrow, I am shooting Organization Day on Friday. O-Day, as they call it, is a day where two hours around lunch is set aside for people to have fun. People can bring their kids, there are games, food and fun. I have no idea what to expect… but I know one thing. I’m going casual in some wicking shorts and a t-shirt because I hear everyone else will be casual. I hope I take some decent pictures for them. Oh... and the best part about O-Day? No 0730 formation Friday morning!! I can sleep in.

MRI looks good to me... waiting for confirmation

Just want to send out a quick thank you to all of you who have been praying for me. I had my MRI today and I got to see the images for myself. I compared the images to the MRI from April and they look very similar. From the looks of it, there's no new tumor growth, but I am not a professional. I plan to visit my case manager Thursday to get a copy of the Radiologist's report - the final word. I'll let you know what it says when I get it.

Big MRI Tomorrow for Roger

I know; long time, no blog. As you have been reading, thanks to Holly’s posts, I have been quite busy here. I now have formation every Mon, Wed and Fri at 0730, and I have to call in on Tue and Thu before 0800. Right now I am doing regular Physical Therapy (PT) on Mon and Fri at 0930 and Aquatic PT on Tue and Thu at 0930. I leave Wed open to rest. All the running around here in the heat and all the exercise from PT really wears me out. And let me tell you, I’m not just doing the minimum in these PT sessions either. I really push myself way beyond the numbers that they set for me. I want to get better and it feels good to work out. Yesterday, I pushed it a little hard but it didn’t phase me… I was doing this exercise where a therapist and I do a very quick side step while tossing a seven pound ball back and forth… we move at a pretty fast pace. Well, it was pretty crowded and there were lots of canes, people and wheelchairs lining the aisle. We did a couple down and back, but on the third one it looked like more stuff was in the way, and I was so busy looking out for stuff, that I ran into the curtain. Only problem was, there was a chair behind the curtain! So I fell on to the floor.. my right hip hit the ground but my arm hung on to the chair and that helped break my fall a bit. My therapist asked if I was okay and a Navy O-3 helped me up… I announced that I was fine… and we did a few more laps. No pain, no gain; right?

In other news: I recently started attending a group here that meets twice a week called “The Think Tank.” And I am also looking into helping out the newspaper here on post, the Stripe. More on those in another post.

So, here’s the BIG reason for this post: My One Year MRI after the end of my cancer treatment is tomorrow at the Naval Hospital at 1pm. The only problem is.. I can't talk to my doctor about it until Aug 13th! No worries though, after the MRI is done, I'm going to go downstairs and get of a copy of it on CD and pop it into my laptop. After looking at these things for over a year and having my last one to compare to, I think I'll be able to tell if there's anything growing that shouldn't be. And I'll be able to get a copy of the Radiologist's report in a few days to confirm. I know God has been good to me and I feel pretty peaceful about it and that it is going to be a good scan. But I might have trouble sleeping tonight thinking about it. Please pray for me... please pray that I get some rest and that it is clear. I can't tell you how excited I am to have this year behind me since I finished Radiation Therapy. I can't wait to finally declare to the world that I, Roger Mommaerts Jr, am a cancer survivor.

MRI Results

I slept good last night. I went to Bethesda NNMC today for my EEG, but didn’t get a chance to talk to my Neurologist – he asked me to call him tomorrow for the results. I did sit down with my Oncologist and we looked at the MRI pictures. Everything looks stable and there is no new growth at this time. Yippee!!! It’s late so I’m making this a short one. I have a few appointments at WRAMC tomorrow, so I need to get to bed.

Is Today Only Monday?

I'm really tired, so I'm going to be short and to the point today. My commute to WRAMC this morning went fine. I found the building I was supposed to report to and the office too. I met with the LTC and she got me moving in the right direction. I met with at least ten other people in various departments. I got a meal card so that I can eat in the Dining Facility (DFAC) for free; was assigned a Social Worker that I'll meet this Wed; a Case Manager, whom I met today; the people in the Reserve Liaison office, who will cut my new orders; the housing guy, who will give me a key to a one man room in building 14 (not the famous 18) on Wed; the Chaplain; the personnel folks in S-1, who take care of the paperwork; and my new command structure, as I have been assigned to 5th Platoon of the Medical Holdover Company. They tell me that my orders assigning me to WRAMC will start 28 April 2007. My current orders end 27 April 2007. This means that I will move out of this apartment in Rosslyn, Arlington, VA on Friday and move into the housing on WRAMC in DC. If you want to write me, you may do so after this weekend at the following address:

SSG Mommaerts, Roger J. Jr.
WRAMC, MHO 5th Plt
6900 Georgia Ave
Washington, DC 20307-0001

My cell phone number and email address will remain the same. I’ll really begin in-processing to WRAMC next week and visit with many more people. They tell me that I’ll be here anywhere from 90-150 days. Right now I understand that they have only two formations per week where everyone assigned must show up to make sure everyone is here: Mon and Fri at 0830. Tue-Thu we just call in to let them know we’re still alive. Weekends we’re free to do whatever we want as long as we don’t leave a 50 mile radius. If we do, we can get a pass or take leave if we’re eligible. I’m sure that those that are in good health will be assigned some kinds of tasks every once in a while, and that’s okay. For now, that’s about all I know about WRAMC. I spent pretty much the whole day there, from 0800 to 1545. And it was a warm one today too. And the AC isn’t on yet… because it’s not the right time of year. That is so government, right?

I talked to my Oncologist today and he said the MRI looks good. I’m going to meet with him tomorrow after he talks to the radiologist and after my EEG. I’ll give you the skinny on that tomorrow.

So, these new meds I started taking on Friday… they give me no less than a few side effects which include but are not limited to: headaches, fatigue (I feel tired ALL day), slight chills, stomach ache, twitches, my right leg feels very tired at the end of the day, trouble waking in the morning (BIG trouble), pressure up my spine and on my shoulders, and last but not least, it’s messing with my emotions. I had a major breakdown today. I’m not afraid to admit it. I was blubbering like a baby, but didn’t really know why. I guess it felt good to get it out, but I guess I wasn’t exactly sure why I was crying. I don’t feel very good on this medication right now and I hate being alone. I was and maybe that contributed to it too. Well, my good friend Kezia called me just at the right time and saved the day. She swooped in and picked me up. We went to dinner and then hung with friends Chris and Jumoke. I feel a lot better tonight and hope this doesn’t happen again soon. There is so much going on right now and I suppose I just needed a release. And with these meds in my system, they came out this way. I have that EEG tomorrow and will voice these concerns to my Neurologist – we’ll see what he thinks. Also, I understand that my promotion is in the works and the orders for that should be cut by the end of the week. Yay!!

All Day at the Hospital, New Meds

Today was a pretty stress free and straight forward day. I got up, headed to Bethesda NNMC on the metro and saw my Oncologist for my 1130 appointment. It was a fairly easy visit. He had a resident there learning today so I got the help teach strength, balance and memory testing. They do this every few visits just to gauge my level and see if there any differences from last time. I think my strength gets better each time, but the memory stuff stays the same. I'm not getting any younger!

After that, I grabbed a quick bite and then headed to my Neurology appointment. We discussed my last seizure and also talked about the strange twitches going on around my right big toe and the side of my foot. For about two months before the seizure, the activity was so pronounced that I would lay in bed and could feel it. Sometimes it would keep me awake for a while. Then, after I had the seizure, they seem to have slowed down quite a bit. He was interested by this and seemed fairly certain that these were, in fact, tiny focal seizures occurring throughout the day. I thought it was just my brain confused and healing doing that, but that is basically a type of seizure, I guess.

We did more strength testing and he also seemed satisfied with my improvement, but wanted to control the seizures. I am at the maximum dosage for Keppra at 2,000mg per day. He also told me that Keppra is good at controlling generalized seizures, but not so good at focal seizures. I tend to have focal seizures that progress to a generalized seizure. So, he waded through the list of additional medications that he could add and finally ended up at one called Tegretol. I’ll be taking 400mg per day to start. I took my first 200mg tonight and feel okay – a little drowsy – which is a side effect. He said that it also might make my stomach feel upset for the first few days, but it should pass. It’s feeling pretty good so far. The only issue with the Tegretol is that it can increase liver enzymes, so he’ll need to draw levels to make sure that I’m getting enough of the medication into my system and that my liver enzymes don’t increase to a dangerous level. He also wants to do an EEG on Tuesday, just to see what kind of activity by brain is creating. He mentioned that there may be some scar tissue or something else in my brain that is irritating it and causing these seizures. It is apparent that something in the part of my brain that controls my right foot around my big toe is irritated. He said that if I was interested, they might be able to pinpoint it in time, and possibly go back in to remove the irritation. Hmm… we’ll cross that bridge when we get to it. He was also happy that I had an MRI scheduled for later in the afternoon and would use the data from the EEG and MRI to compile the NARSUM for my MEB. He said that he’d have a better idea of what to include in the NARSUM, but was not going to do it until I was stable. That means that next week, WRAMC will only transfer me into their system, I’ll have to move there and then will have ongoing appointments until the doctors think my condition is stable enough to begin the board process. In addition, my doctors don’t want to see me moved to a different location – they would prefer that I stay close to them for my care during the MEB process. My Neurologist said, “Why start you over again with a new doctor? That’s just stupid.” I agree. I hope WRAMC agrees.

After the visit with him, I went down to MRI, and after a short delay due to an emergency MRI, I had my time in the machine and actually fell asleep inside the magnet again. I didn’t have a chance to get a CD of the images because it was after 1800 when I finished, but my Oncologist is going to call me Saturday morning with the results. I’ll pick up a CD on Tuesday when I’m there for the EEG and will try to share them with you.

After the MRI, I high tailed it back to Clarendon and joined up with Amanda, Buddy, Ryan, Zach (John’s brother) and Tamra for dinner to celebrate Tamra’s getting out the Army. We went to The Cheesecake Factory and ate a lot of food and of course, dessert too. Buddy and Amanda gave me a ride home and hung out for a while with me. All in all – another good day. I’m looking forward to a weekend of rest and beautiful weather here in DC. I’ll let you know what my Oncologist says about the scan results tomorrow.

More Successes Today, MRI Tomorrow

Today Tamra and I did the whole military hurry up and wait thing. She picked me up at 0700 and we headed down to Fort Belvoir, stopping at a Dunkin’ Donuts for breakfast. We got to the clinic at 0730, checked in and then we waited… they called me back to take my vitals at 0800 and I went to another waiting room with Tamra. And there we sat… and sat… and sat. I’m not kidding. We sat there for hours and finally near 1130 they called me back to see a doctor. They only had two doctors working, and so many people showed up to in and out-process, that they had to fit us in between other patients. The doctor that saw me questioned how I was going about the process. I told him about the plethora of people that I have talked to about how to go about this and he still seemed confused. He finally gave in and did what he had to do; he approved my permanent profile and gave me a form 14 that I’ll take to WRAMC. Then he said he needed to call someone at WRAMC, a LTC. It turned out to be the same LTC that told me to go this route to begin with! So, everything has come full circle. He didn’t reach her but sent me on my way a little after 1230.

I didn’t get a call from work either about my NCOER, so I didn’t have to stop there. I had a nice early day and got a chance to take a nap. I did call the LTC at WRAMC and also had to leave her a message. She called me back this evening and said that I needed to come in as soon as I could. But tomorrow I have appointments with my Oncologist, Neurologist and I have an MRI, all at Bethesda NNMC, throughout the day. I told her the soonest I could be there would be Monday morning, so I have a 0800 appointment. She said that she looked up my record and noticed that my home of record (HOR) is Austin, TX; she suggested starting me at WRAMC and moving me to Brooke Army Medical Center (BAMC) in San Antonio, TX to finish up. It was loud where I was and couldn’t really have a discussion so I just said I understood and told her I’d call back tomorrow with more questions. We’d really like to do the MEB here in DC because of several reasons:

• -My doctors are all here
• -I have lots of friends and support here
• -I have a supportive church here
• -I can’t drive and could get around well on the Metro
• -Holly can come to DC to work and see me too (maybe)
• -I might have another minor procedure to improve my incision next week (4/27)
• -I think the care would be far superior

So, I have my reasons. But ultimately, it is going to be what the Army wants. But, my prayer about not wanting to move before this weekend has been answered – it will for sure be sometime next week. I have that MRI tomorrow, so please pray that the tumor has not come back and that I’m still healing up there. I think I am. Tomorrow evening we’re having a little celebration dinner for Tamra. Today was her last day in uniform in the Army. Now’s she’s on terminal leave until July (I think.) If you're interested in joining us, let me know. Tamra, you’ve been a real life saver and great friend this week. Holly and I thank you and John so much for supporting us through everything. We love you guys.