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Welcome to our Blog :: Come back often to check in on us and the treatment of Roger's brain tumor.
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Mar 15, 2008

On Our Way!

I'm typing this on an iMac so it is going too suck. We were up later with our friends than planned. So, we're getting a later start than we planned, but it is ok... God must have wanted it that way. We're getting ready, will load up, maybe meet out good friends John and Tamra for breakfast and will be on our way. We anticipate hitting a few thunderstorms on the way to Nashville, but we should get there before 9pm. I might even blog along the way. Goodbye Walter Reed!!!

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May 16, 2007

Finally moved and settled and G6PD

I know I haven’t posted in a week. I have actually been very busy here and have been so tired at the end of the day that I just can’t find the energy to post. Anyway, know that I am doing fine here in DC. I have been taking classes all week on transitioning out of the Army. The classes are really for people that are retiring after 20+ years or are getting out after their contracts are up. I already have a job and don’t need most of the training, but it’s good to learn anyway.

Last week I started a post but never finished it, so here it is. This is from last Thursday…

“I finally finished in-processing yesterday. The last thing on the list was a meeting with the Company Commander. He’s a fellow Texan and he also ‘pinned’ me on Friday. So, that’s finally done. It took me about three weeks to get it done.

Yesterday I also had a physical therapy evaluation. I asked to get a little more PT in since I’m here and have a good amount of free time. I figure anything I can do to improve the strength in my right leg and arm is good.

I also had an internal medicine appointment with my PCM today to review the lab results from two weeks ago. They confirmed that I do have a G6PD Deficiency. It really is not a big deal. You can read more about it on Wikipedia and MedlinePlus from NIH. I just can’t take certain drugs or eat certain foods. But I’ve lived for 32 years without a problem (except a brain tumor… ahem) so I think I’ll be okay. But Mirna and her kids need to be tested. And I most likely got it from my mom, so she should be tested too.

I told you yesterday that I’d get you up to speed on my housing issues. As I mentioned before, I have to move out of my nice dorm style room now that I’m an E-7. Just so you know, right now my room has plenty of storage space, 11 drawers to be exact, and plenty of cabinet space. It has a twin bed, walk-in closet, restroom with a stand up shower, kitchenette with a sink, stovetop, microwave and fridge, an iMac (which I don’t use), an LCD HDTV, internet access that I use with my laptop, and a small love seat. The setup is pretty cushy, if you ask me. I have windows that open and HVAC that works really well. Really… a very nice setup! This is for the junior enlisted soldiers.

I called the Malogne House on Monday and spoke to the day manager who has been trying to get me a room in a building they call the Guest House. Well, today she let me know that my room was ready. I went over to check it out and boy was I surprised. It was a much smaller room with a twin bed, very small closet, the HVAC did not work and the room was hot as heck, there were only three drawers for storage ad the best part? It had a shared restroom with the room next door. Okay, so you tell me – who has it better? The juniors on the seniors? Anyway, I went back to tell them that the AC was not working but the manager wasn’t there. I know another SFC who fought tooth and nail against moving out of here, but he lost. I know I’m not going to win that battle either, so I’m going to at least fight for a decent room. I’ll let you know how it goes. Maybe I’ll post pics soon so that you can see the difference yourself.”

Okay, that was last Thursday. Well, last Friday Tamra once again helped me move into my new room. I am now staying in a building called Delano Hall. It’s just okay. The room is definitely smaller, but it has a full size bed, mini fridge, mini microwave, an iMac (that I don’t use), an LCD HDTV (which I do use) and it has enough storage space. And the best thing? The AC works! I do share a bathroom with someone, but there are locks so that neither of us can intrude on the other. He’s a little loud and has all kinds of crap all over the sink and lots or protein drink mix everywhere. But I have never seen the guy. I imagine him as a huge guy that could probably squash me like a bug. I hope I never find out.

So far it has been pretty quiet here, but tonight some jeep has been sitting in the parking lot (which my window faces) with its music all turned up. It has been there for the past half an hour with the engine running. I think I just heard the doors close. Oh good… he just left. Now I can go to sleep.

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May 4, 2007

I got promoted!!!

I'm going to make this quick... I got promoted today to Sergeant First Class (E-7). Tamra came this morning to take pictures for me (thanks again Tamra). The company commander pinned me (or velcro'd me.) Anyway, this was three years in the making. Thank God!!
Roger SSG to SFC Promotion 003Roger SSG to SFC Promotion 014

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May 2, 2007

Almost done in-processing

I had another long day of briefings and classes. I started my day with a class that taught us about the Medical Evaluation Board (MEB) process. The people that will be handling our cases were there – and they knew what they were talking about. They gave us a lot of material that I just need to sit down and read. But overall it was very informative. I also learned that the average time it is currently taking for Reserve Component (RC) soldiers like me to get through the process is 157 days. So, the estimated I have received of 5-6 months sounds right. Eesh! Anyway, I may be taking some leave here in the near future to go back to Texas for a week or so. We’ll see.

My next briefing was about the programs and benefits offered to us by the USO and MWR to do things here in DC while stuck in the area. They basically encourage us to get out there and see stuff when we have off days. I was already planning to do that… so nothing new there.

The last briefing was about all the VA and the benefits they provide and also help in getting a job for the future. I already have a job in Austin, but they’ll be good classes to take regardless. Those classes last a whole week. So they will keep me occupied for a while.

Overall, lots of good information today! I also met an Active Duty Army Major who also had a brain tumor removed, but his was from the front of his brain. We have similar situations, so I’m going to keep in touch with him and his wife, who I also met, to see how things go for them. It was neat because I kept on running into them. I saw them in the Dining Facility and joined them for lunch, then I was waiting for a briefing and they walked up for the same one, so it was cool.

Tonight I went to the community house again for dinner. My fabulous friend, Allison (or Allie, as she prefers to be called) gave me a ride from the Court House metro there. Matt P cooked a fabulous meal and we ate outside in the cool breeze. It was a great meal and the company was excellent, as always. After, Allie gave me a ride back up to WRAMC, but I felt bad because she printed out directions, but I made her go a different way. And in DC you can’t seem to ever be able to make a left turn, so it was a real pain because we could not get turned around to go the way we really needed to go! Well, we figured it out and I obviously got home safely. I’m sorry, Allie, for the crazy driving tour of DC. I hope your trip home on 495 and the parkway was easier!

Tomorrow I just have to stop by the dental clinic for an exam and cleaning and then I am done for the day and then will be pretty much done in-processing. All that is left is a meeting with the Company Commander. Tamra needs to turn in some keys here, so we might meet up for lunch if she has a chance. I think that next week I’ll have a better handle on where we go from here. We’ll just have to see.

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May 1, 2007

No surgery now and Almost done in-processing

The weekend went well – but it was very tiring. I went with Amanda to the house we worked on at 7am on Saturday morning… yes!!! 7am! We really had a good time working out there all day. I personally worked on a few projects. First of all, I took over 150 pictures for Amanda. I also worked on fixing a toilet, installing smoke and carbon monoxide sensors around the house and then repairing the fence that surrounded the house, which involved hammering in probably a hundred nails! After we cleaned up, we ended up back at John and Tamra’s for some pizza and games. Sunday we went to church and then John took me to the PX so that I could buy cleaning supplies for the room. After that, we headed back to the house to try to finish the fence. The fence was repaired, but needed to be primed and painted. We were able to finish priming and painting the outside of the fence, but only got as far as priming part of the inside of the fence. I guess we’ll need to go back and finish the job in the future. I left with John, Tamra and Zach, we had dinner, and then they dropped me back off at WRAMC.

Walking back into my room was a shock. I hadn’t realized what a mess I had left it! I decided to start unpacking and I just kept going and going until I felt like it was habitable. When I looked at the clock, it was 3am. You know… it was worth it. I’m just one of those people that unpacks first just to get comfortable. I’m glad I did because it was done! Yeah, I had to be at a formation at 0830 Monday morning, but I could get sleep after. I got a few hours of sleep and walked into the Gym across the street from our billets and was surprised to see a gaggle of people just sitting on bleachers. Apparently, a formation just means we show up and they account for us. I was expecting to stand in lines of platoons and squads, but I guess we don’t do that here. After that I ran off for a quick breakfast and then met with my social worker who talked to me about my options regarding choosing to stay in the reserves or elect to have a board where I will be medically discharged or retired depending on what disability rating I get. Well, I’ll have more on that later. The rest of the day I just went from place to place to continue in-processing. I was exhausted from all the walking around and decided to go back to my room to take a short nap. Well, the short nap turned into a long nap and I missed dinner. I set my phone to wake me up, but dismissed the alarm. Thanks to my friend Jill N. who called to say hi, she woke me up before I slept way too long! Luckily, there is a little place in the hospital, called Walt’s, which is open rather late where I can use my meal card. I got a hot dog, a salad and some other items, and headed back to my room. I watched some TV, worked on a little paperwork and went back to bed.

This morning I was awakened by a phone call at 0630 by my new squad leader. I knew it was him because I put all the numbers I needed in my phone and the Caller ID tipped me off. I’m not really sure what we said to each other… I guess he was checking on me to make sure I was ok. I went back to sleep thinking that I didn’t have to check in now and decided that I was going to sleep in to get some rest and finish in-processing in the afternoon. My phone woke me up again at 0900 when another squad leader from the platoon called to see if I was okay. Man… I told him about the earlier call and he said he never talked to the guy who called earlier, so they didn’t know what my status was. Anyway, I hope that never happens again! Okay, so I finally got my lazy butt up at 1100 and got going. I must have been extremely tired from the weekend and Monday. I did all the in-processing I could for the day and got ready to go to community group. I made it from WRAMC to where we meet in Arlington in only 40 minutes, which I think is pretty good for mass transit. After the meeting, friends Kezia and Jana gave me a ride back here.

Okay, last thing… my neurosurgeon has wanted to fix the incision on the top of my head for quite some time now. He just doesn’t like the way there is an indention and no hair across it. We talked last week and I thought we were going to do it this week. But after my neurologist said they might be able to go back in to fix the seizure issue, everything got confused. I finally talked to him today and here’s the skinny: My neurosurgeon doesn’t think that any surgery in the brain should even be attempted until all other options have been exhausted and no earlier than 36 months after the end of my radiation therapy. Not only that, but he doesn’t even want to work on my scalp until 12 months after the end of my radiation therapy… which is mid-July. So, no brain surgery for at least two more years, and no working on fixing the scalp until after this July. But he and I are confident that they won’t have to go back into my brain. I know I’m in good hands and he’s pretty sure it will resolve itself over time.

The other issue I have been having here is that my Narrative Summary has not been completed yet and I still don’t have the permanent profile that I need to get this process started since my new doctor last week changed it to a temporary one. Well, I explained all of this to my neurosurgeon and he is going to do both. It won’t be this week, but he said he’ll take care of it. With him involved now, it looks like I am in good hands. I’m going to let my case manager know and put them in touch with each other, if necessary.

Tomorrow I have to attend three briefings throughout the day, so it should be an uneventful long day. But I’m almost done in-processing! After tomorrow, all I’ll need is to have my teeth checked and I’ll be done.

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Apr 27, 2007

Moved In... Sorta'

Thursday was a very busy day for me. I had to go to the office to finally turn in my badge, turn in some keys, take care of some paperwork, but most importantly... sign and get a copy of my NCOER!!! The ordeal is over! It took a few weeks, but I finally got it in - and it was a pretty good review. But it took so long to get everything done that someone had to drive me to WRAMC for my 1530 doctor apointment (Thanks for the ride Alan - and thank God for that GPS!) I made it to the doctor appointment and it went well. My new PCM is on the ball and should be easy to work with over the next few months. Earlier this week I got a call from a nurse at the clinic at Fort Belvoir - she told me that a test they did on my blood last week came up positive for G6PD deficiency. I'm not going to go into detail about what is now because when I told the doctor he thought it would be a good idea to run the test again to make sure they got it right. He's also going to check my liver enzymes to make sure they're at a decent level. I went down to the lab, they took my blood, and I was off to my apartment to pack. I also finally talked to my Neurologist and we talked about my EEG results. We had a bad connection, so at first I thought he said that they were wildly abnormal... I was confused! But it turns out that he said they were mildly abnormal. He didn't see any epiliptic activity and said that the results were in line for what would be seen in a post brain surgery patient. So, basically nothing to worry about right now. We just need to see how this new drug works over time.

I'm learning how to get to and from WRAMC using the metro system. Buses run pretty frequently on two streets at the front and back of the post. I take a bus to the Silver Spring metro station and then take the red line to Metro Center and transfer to the orange or blue line to get to where most of my friends live. Total time during rush hour is about an hour. I'm guessing that off peak it will take about an hour and a half. I don't think it's too bad - the fact that I can even get around this easily is amazing.

I went home and started packing. A few friends from my new Tuesday night Community Group from church came over to help and after a while we got hungry, so we went to Cafe Asia to eat (I love their food!) They all went home and I continued to pack. With an end in sight I kept at it until 3am when basically everything was pretty much ready to go.

This morning Tamra came over and we got everything loaded into her car and made the trek over to WRAMC. When we got there we had a hard time figuring out where to park to offload the goods. A young Private agreed to watch the car while we unloaded in the circle drive and took everything up. When we finally got everything up to my room on the third floor, my key wouldn't work on the door. Tamra went down to park the car and I went down to the S-4 office to see what was wrong. They told me to call the guy that assigned me the room. I called the SSG that assigned me the room and he said I needed to call S-4. Not so fast! No passing the buck here... he told me to meet him at the S-4 office. It turned out that since I didn't put anything in the room, when they did a walk-through of the rooms, my room was empty, so they assigned it to someone else. Now, this may sound like a Charlie Foxtrot to you, but this is par for the course for an Army operation. Anyway, several phone calls were made, rooms were looked at and by the time we were sure I could have a room on the second floor, two hours had elapsed.

The room is decent. Each room has a walk-in closet, tile floors, a bathroom with a stand up shower, a kitchenette with a small stove, fridge, microwave and sink. There is also a plasma TV and an iMac in each room. The room wasn't exactly clean and the furniture wasn't placed very well, so we methodically moved furniture around, swept and mopped the floor underneath and put it all in new places. It took us quite a bit of time to get everything wiped down and cleaned up. We basically got it to a state where Tamra could take all her cleaning stuff home and I could finish up any odds and ends when I get back on Sunday. It was getting late in the afternoon, so I packed up some clothes for the weekend and we headed out. John, Tamra, Zach, Amanda and I had a nice dinner at Ray's the Steaks between Rosslyn and Court House and then we hung out at John and Tamra's for a bit. Now I'm at Amanda's for the weekend. She graciously offered their spare bedroom to me and I gladly accepted.

Tomorrow we're working on fixing up a run down house in Alexandria and then rest in the afternoon. I feel like I have a lot to do in my room still and that's occupying my thoughts. Amanda offered me some towels and bedsheets that I can use while I'm here. I have towels, but they're thirteen year old brown Army towels. And they gave me bed linens, but they're not fitted and not comfy. Thanks Amanda! I just need to unpack and get everything put away so that it feels like a home away from home. After that, I'll be happy. Please pray for a smooth move-in!

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Apr 21, 2007

No News

I didn't get a call from my Oncologist today. I called his office, but there was no answer. I think he never made it in to work! I wouldn't have wanted to work today either. Today was beautiful here in DC! I had a hard time waking up today and getting going. I think it may have had to do with the new meds. Buddy came over and encouraged me to get out of the apartment, so I did. We played TopGolf with Tamra and Zach. I have never even swung a club at a golf ball before in my life, so it was a new experience for me. Needless to say, I stink. I did much better at miniature golf afterward.

Tonight we grilled some steaks over at Buddy and Amanda's with two of their friends. Then we played some Yahtzee, which I've played in the distant past, so it took me a while to relearn it. I had a good night. I'm going to get ready for bed and see if I can fall asleep at a decent hour tonight.

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Apr 20, 2007

All Day at the Hospital, New Meds

Today was a pretty stress free and straight forward day. I got up, headed to Bethesda NNMC on the metro and saw my Oncologist for my 1130 appointment. It was a fairly easy visit. He had a resident there learning today so I got the help teach strength, balance and memory testing. They do this every few visits just to gauge my level and see if there any differences from last time. I think my strength gets better each time, but the memory stuff stays the same. I'm not getting any younger!

After that, I grabbed a quick bite and then headed to my Neurology appointment. We discussed my last seizure and also talked about the strange twitches going on around my right big toe and the side of my foot. For about two months before the seizure, the activity was so pronounced that I would lay in bed and could feel it. Sometimes it would keep me awake for a while. Then, after I had the seizure, they seem to have slowed down quite a bit. He was interested by this and seemed fairly certain that these were, in fact, tiny focal seizures occurring throughout the day. I thought it was just my brain confused and healing doing that, but that is basically a type of seizure, I guess.

We did more strength testing and he also seemed satisfied with my improvement, but wanted to control the seizures. I am at the maximum dosage for Keppra at 2,000mg per day. He also told me that Keppra is good at controlling generalized seizures, but not so good at focal seizures. I tend to have focal seizures that progress to a generalized seizure. So, he waded through the list of additional medications that he could add and finally ended up at one called Tegretol. I’ll be taking 400mg per day to start. I took my first 200mg tonight and feel okay – a little drowsy – which is a side effect. He said that it also might make my stomach feel upset for the first few days, but it should pass. It’s feeling pretty good so far. The only issue with the Tegretol is that it can increase liver enzymes, so he’ll need to draw levels to make sure that I’m getting enough of the medication into my system and that my liver enzymes don’t increase to a dangerous level. He also wants to do an EEG on Tuesday, just to see what kind of activity by brain is creating. He mentioned that there may be some scar tissue or something else in my brain that is irritating it and causing these seizures. It is apparent that something in the part of my brain that controls my right foot around my big toe is irritated. He said that if I was interested, they might be able to pinpoint it in time, and possibly go back in to remove the irritation. Hmm… we’ll cross that bridge when we get to it. He was also happy that I had an MRI scheduled for later in the afternoon and would use the data from the EEG and MRI to compile the NARSUM for my MEB. He said that he’d have a better idea of what to include in the NARSUM, but was not going to do it until I was stable. That means that next week, WRAMC will only transfer me into their system, I’ll have to move there and then will have ongoing appointments until the doctors think my condition is stable enough to begin the board process. In addition, my doctors don’t want to see me moved to a different location – they would prefer that I stay close to them for my care during the MEB process. My Neurologist said, “Why start you over again with a new doctor? That’s just stupid.” I agree. I hope WRAMC agrees.

After the visit with him, I went down to MRI, and after a short delay due to an emergency MRI, I had my time in the machine and actually fell asleep inside the magnet again. I didn’t have a chance to get a CD of the images because it was after 1800 when I finished, but my Oncologist is going to call me Saturday morning with the results. I’ll pick up a CD on Tuesday when I’m there for the EEG and will try to share them with you.

After the MRI, I high tailed it back to Clarendon and joined up with Amanda, Buddy, Ryan, Zach (John’s brother) and Tamra for dinner to celebrate Tamra’s getting out the Army. We went to The Cheesecake Factory and ate a lot of food and of course, dessert too. Buddy and Amanda gave me a ride home and hung out for a while with me. All in all – another good day. I’m looking forward to a weekend of rest and beautiful weather here in DC. I’ll let you know what my Oncologist says about the scan results tomorrow.

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Apr 19, 2007

More Successes Today, MRI Tomorrow

Today Tamra and I did the whole military hurry up and wait thing. She picked me up at 0700 and we headed down to Fort Belvoir, stopping at a Dunkin’ Donuts for breakfast. We got to the clinic at 0730, checked in and then we waited… they called me back to take my vitals at 0800 and I went to another waiting room with Tamra. And there we sat… and sat… and sat. I’m not kidding. We sat there for hours and finally near 1130 they called me back to see a doctor. They only had two doctors working, and so many people showed up to in and out-process, that they had to fit us in between other patients. The doctor that saw me questioned how I was going about the process. I told him about the plethora of people that I have talked to about how to go about this and he still seemed confused. He finally gave in and did what he had to do; he approved my permanent profile and gave me a form 14 that I’ll take to WRAMC. Then he said he needed to call someone at WRAMC, a LTC. It turned out to be the same LTC that told me to go this route to begin with! So, everything has come full circle. He didn’t reach her but sent me on my way a little after 1230.

I didn’t get a call from work either about my NCOER, so I didn’t have to stop there. I had a nice early day and got a chance to take a nap. I did call the LTC at WRAMC and also had to leave her a message. She called me back this evening and said that I needed to come in as soon as I could. But tomorrow I have appointments with my Oncologist, Neurologist and I have an MRI, all at Bethesda NNMC, throughout the day. I told her the soonest I could be there would be Monday morning, so I have a 0800 appointment. She said that she looked up my record and noticed that my home of record (HOR) is Austin, TX; she suggested starting me at WRAMC and moving me to Brooke Army Medical Center (BAMC) in San Antonio, TX to finish up. It was loud where I was and couldn’t really have a discussion so I just said I understood and told her I’d call back tomorrow with more questions. We’d really like to do the MEB here in DC because of several reasons:
  • -My doctors are all here
  • -I have lots of friends and support here
  • -I have a supportive church here
  • -I can’t drive and could get around well on the Metro
  • -Holly can come to DC to work and see me too (maybe)
  • -I might have another minor procedure to improve my incision next week (4/27)
  • -I think the care would be far superior

So, I have my reasons. But ultimately, it is going to be what the Army wants. But, my prayer about not wanting to move before this weekend has been answered – it will for sure be sometime next week. I have that MRI tomorrow, so please pray that the tumor has not come back and that I’m still healing up there. I think I am. Tomorrow evening we’re having a little celebration dinner for Tamra. Today was her last day in uniform in the Army. Now’s she’s on terminal leave until July (I think.) If you're interested in joining us, let me know. Tamra, you’ve been a real life saver and great friend this week. Holly and I thank you and John so much for supporting us through everything. We love you guys.

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Apr 18, 2007

Easy Day Today, Unknown In Store Tomorrow

Not a whole lot to report today. I had a hard time going to sleep again last night. This morning I spent a good amount of time trying to figure out where my evaluation was. Even though my NCOER was reportedly signed by everyone except for me, there must have been some kind of change or it got lost, because the completed NCOER is apparently now on somebody’s desk to be reviewed... again. Soooo…. when the powers that be finish reviewing it, everyone will sign it - and someone is supposed to call or page me to let me know that I can come by to sign it.

With that all figured out, I was finally able to call Tamra to pick me up and we made our way back down to Fort Belvoir. I made it through every step of the medical checklist except for the review with the doctor. They only do these out-processing reviews Mon thru Wed and Fri from 1300-1400 and Thu from 0700-0830. Well, tomorrow is Thu – so guess what that means? By bootie has to get up extra early because Tamra will be here at 0700 to pick me up. Tamra has to be at WRAMC in the afternoon, so we are hoping that we can finish up at Fort Belvoir pretty early and then make our way to WRAMC where I expect I’ll need to go next to continue the process. I really don’t know what’s going to happen when I talk to the doctor. I know that they’re going to see that I need to be put on medical hold, but I have no idea how they’re going to do it. I’ll have all the details on how that goes tomorrow. And hopefully my work calls to say that my NCOER is ready to be signed, so that we can stop there on the way to WRAMC and finally cross that off the list.

After getting back to the apartment, I had to tend to some more emails and also worked on a paperwork issue related to my pending promotion. I’m hoping that I’ll be promoted soon! I went to a farewell this evening for dear friend Erika, who is going to San Antonio for a few months for some military training. She’s a good friend of mine and Holly’s, so she and Holly might get together since she’ll only be about 80 miles away. In fact, she’s going to a school at a location that I’ve been to – so I know for sure it is a quick drive.

Okay – I’m heading off to bed now. I need to get up around 0530. Goodnight.

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Apr 17, 2007

300 and minor victories

This blog is our 300th! Holly and I started this thing up when I first mobilized to DC in May 2004. We’re at almost exactly three years so it would appear that we average 100 posts per year... interesting statistic. Or not. :-P

Okay, so today… what did I get done today? Well, before I even get there, let me tell you that I tossed and turned until about 3am. My mind races through all the things that I need to get done in the next few days, ways to get them done quicker, and the ever present thought of having a seizure while alone always haunts me. I don’t know why I am afraid of it. But sometimes it terrifies me. The two times I was conscious for the start of them, they were agonizing and I remember them well. I think back to how horrible and scary it feels and just don’t want to have it happen to me while I’m alone. It’s nice when Holly is there, as she was every time, to tell me its going to be okay. But eventually it is going to happen when I’m alone or in public around strangers. I just need to keep praying that the Lord will ease my fears. Join me, will you? This is a toughie for me.

Alright, back to today. Since I didn’t get to sleep until late, I woke up later. I finally got to the Pentagon around 10am and went to the medical clinic. I went to the desk and told the nice lady that I was out-processing and needed to retrieve my records. She went to the back and brought them out. If you take a look at item number one on my list from yesterday, you’ll remember that I needed to get my profile paperwork. As soon as the lady handed me my records, I cracked it open to see if the profile was in there. Nada. I then explained to her that I called right before I went on leave about this and that someone changed it in the computer and that the paperwork must be somewhere. She looked in her computer and saw that I did call about it. I found an old temporary profile and handed it to her and told her that I just needed a new updated one that is permanent like in the computer. She took it to the back to a nurse to see if the doctor could fill it out. While she was gone, I stood at the counter, bowed my head, and just prayed that the good Lord would intervene and just get it signed today somehow. She was gone a while and I sat down. After a few minutes, the nurse came back and said that the doctor needed to see me to fill it out and that there were no more appointments today. The lady at the front desk said that I would have to call back at 6am the next morning to make an appointment with my doctor so that she could do it. This didn’t sound acceptable to me. First of all, my doctor knows what’s going on with me and could have the form filled out in five minutes. Second, I already called over a month ago and asked the doctor to take care of this – and someone did because it changed in the computer. I really had a problem with having to do extra legwork to get something signed that should have been signed a month ago.

I expressed these concerns to the lady at the front desk and she was willing to hear me out. I’m trying to get a lot done and can’t get around easily and they wanted me to go the extra mile to get something done that should have already been done. Are you getting me? Finally, I told her that first and foremost, I am a soldier, and I will obey an order; and if the commander of the clinic tells me to go home and come back tomorrow, I will obey that order without another word. But if there was anything that we could do to get the form signed today, I would do it. Silence. She told me to have a seat and she disappeared. When she returned, she said that the nurse of the day would see me shortly.

After another wait, the nurse, an Army Captain, called me into their office. I again explained my dilemma to the CPT and she listened to me. The CPT told me that they would be able to help me out, but it would not be immediately. It was nearing noon. My doctor would have an opening at 1340 that day where the paperwork might be taken care of. I made a quick call to Tamra, who was supposed to drive me around, but wasn’t able to get a hold of her. I decided this was an answer to my prayer so I decided that I better take the CPT up on the offer, even though it meant that I wouldn’t get out of the Pentagon until near 3pm. The CPT made the appointment and I was off to find lunch. It worked out great because I needed to drop off a set of keys anyway at the office I worked at for a while. They were happy to see me again and let me use a workstation to check my email, make a few phone calls and eat my lunch.

I made it back to the clinic by 1330 and was called back to see the doctor. The doctor finally came in at around 1350. I brought the doctor up to speed and in less than five minutes the form was done and in my hands, and I was out the door. Four hours of work to see a doctor for five minutes to get a form filled out. Can you believe it? Now we can cross number one off the list! A big thanks to the nice lady at the desk who was willing to do what she could to get me what I needed today. I was sure to fill out a comment card commending her actions and dropped it in the comment box.

On to number two: I called Tamra and she picked me up at the Pentagon City Metro station. We headed down to Fort Belvoir and found our way to the out-processing building. We checked in and I had to provide copies of all my orders for the whole three years and other paperwork. I was then given a checklist of buildings that I needed to visit to get them to check items off of the list. Things like: Personnel, Finance, Medical, Dental, etc. We went upstairs to the first item on the list: personnel. When we got there, I explained to the Staff Sergeant that I was eventually going to have an MEB. Thank God I told the SSG that, because since that was the case the SSG said that we should skip everything on the list and just go right to medical. Nothing else would matter since I wasn’t really going to get out right now anyway. I just needed to get to medical so that they could see there is an issue and they could refer me to WRAMC. Boy, talk about a life saver! The SSG was very helpful, so I made sure to save their phone number for any future questions I might have. It was just after 1600 and we noticed that the first place in medical was still open, so we went there first.

We found the building after getting slightly lost and I picked up a medical packet. The packet said that pretty much all the other stations were closed, so we decided to call it a day. Tomorrow we’re going to head back down to Ft Belvoir and try to get the medical stuff completed. I also need to sign my NCOER that they couldn’t find on Monday. I’m going to call work in the morning to see if they have it handy. If they still can’t find it, I’m going to go to Belvoir first. If they do have it, I’ll go to work first thing and sign it and then head down to Belvoir.

So, I’d call today a pretty good day. I just hope that tomorrow goes smoother. After work, I made some copies of paperwork that I might need tomorrow and sent a copy of my new profile to my unit in Fort Worth as they needed a copy. Then I went to a community group of my church that meets in Kezia’s building. Kezia and Jumoke picked me up and I had a great time hanging out with everyone. I feel pretty tired today, so I’m hoping that my body gives in and I can get some decent sleep tonight. Thanks to everyone for your prayers!

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Apr 16, 2007

Can you say confusing?

Today was my first day back at work and boy… was it a doozie! First of all, I’ve been having a hard time getting to sleep here in my new digs. The first night, Saturday, it rained all night. There is some kind of metal skirt that sticks out from the building on my floor, so guess what? I got to hear the pitter patter of drops falling off the building onto the metal skirt. I didn’t get to sleep until nearly 2am and then was woken up by jets making their approach to Reagan National Airport at 6:30am. Yes, I am a light sleeper. Last night, Sunday, the wind was howling like crazy. The northeast has been getting pummeled by this storm and it just won’t die. It sounded like things that were loose on the building were being tossed around outside.

I got to sleep around 2am again and managed to get up around 8am. I grabbed a quick bite in the store downstairs and headed off to work. I got there around 10am and was warmly greeted by everyone. My boss was happy to see me too, but apparently there were some issues with my evaluation not being turned in yet. In the Army, Non-Commissioned Officers (NCOs) and Officers are required to be evaluated annually. They are supposed to be done by a certain time of the year, and when things fall behind, the people up the chain get hounded for not having the evals of their people done on time. I knew this before I went on leave and completed my part of my NCO Evaluation Report (NCOER.) Well, I guess we are cutting it too close for comfort since everyone from my unit in Fort Worth to the people at work want to know where it is.

The first thing I did was track down the guy that I knew could tell me where it was. I found him and was told to talk to another person higher up. That person knew that it was missing but didn’t know where it was either. Basically, all the people that needed to sign it had already signed it and they were just waiting for my signature. But now the eval was no where to be found. This person said they would talk to another person and see if they can track it down and that I should check back later. I checked back later and the person was gone. There was some kind of sewer leakage that blocked one of the entrances on and off base today, so they let people that lived far away go home early. I guess that person left? I stayed to get my work done… I won’t be at the office tomorrow, so I hope they find it so that I can sign it on Wednesday. My boss wondered why they just could not print out a new one and have everyone sign it again… I have no idea.

Speaking of work, I made quite a few phone calls regarding the Medical Evaluation Board (MEB) process that I am about to begin. The issue is… I have no idea how I’m supposed to initiate it! I think I know the problem though… normally a soldier doesn’t have to initiate it – it begins when they get hurt and then they get worked through the system. My issue is that because I have been having all my treatments done at the Navy hospital, the Army hospital has no idea what’s up with me. They don’t know I need an MEB! At first I thought I was supposed to begin out-processing from my office, and also take the paperwork that I do have to Walter Reed Army Medical Center (WRAMC) and that would start the process. But when I ran this by my Reserve Management Office (RMO), they said that I should probably not do that quite yet. Instead, I should call WRAMC and the office that does the out-processing and see what they say.

I followed their instructions and called WRAMC. I explained my dilemma to someone there and they told me that they would have to speak to someone above them to see what needed to be done. To my surprise, a few minutes later they paged me and I called back. They had a list of things that needed to be done and paperwork that I needed to gather in order for everything to go smoothly. A plan! It sounded good to me, so I took notes and hung up. One of the items on the list required that I ask the out-processing office a few questions too. I called them up and they had a similar, but slightly different plan. They urged me to call a different person at WRAMC, but to come to them to begin out-processing immediately! I called the person they suggested I call and they were very helpful. They told me basically the same things the first person at WRAMC told me with a few slight changes. I called the first person back and left a message with them explaining that I had spoken to the out-processing people and this other person at WRAMC and that the plans were slightly different – I expect a call back from them tomorrow.

Okay, so all these details, right? Here’s what it comes down to:

  1. When you can’t physically perform your duties in the military because of an injury or disability, they put you on what is called a profile. They have temporary and permanent profiles. I have been on a temporary profile since the surgery, but my main doctor recently put me on a permanent profile because you have to have one to start the MEB process. First thing tomorrow, I have to make the trek to my medical clinic in the Pentagon to get a copy of that P3 profile. Simple enough, right? We’ll see.
  2. I need to begin the out-processing process which has to be done at Fort Belvoir, which is about 30 miles south of DC. I can’t drive, so our good friend Tamra, who is also in the Army and happens to work at WRAMC, is going to give me a ride. There, I’ll begin the process, but when I get to medical, they’ll see my past history and things will screech to a halt. They will immediately refer me to WRAMC for an MEB. Then we’ll drive to WRAMC and I’ll meet with some of the people that I spoke with on the phone today. And it all works out perfectly because Tamra needs to take care of some business there tomorrow too! I’m not sure of what all will happen when I get there – I’m kinda flying by the seat of my pants on this one.
  3. I need a Narrative Summary (NARSUM) from my doctors explaining what happened to me and what conditions I have now. I have appointments with my Neurologist and Oncologist on Friday to knock this one out of the way. BTW, I also have a follow-up MRI Friday afternoon to see how things look up there. Pray that everything is still getting better for me, okay?
  4. Since this happened to me while I was on Active Duty, it is considered a Line of Duty injury (LOD). Apparently there was supposed to be a form filled out quite some time ago (a DA2173 to be exact,) it was never done, so the folks at WRAMC will take care of that for me.

Wow! So those are the major things at this time that I know of. In addition, I was told that once I go to WRAMC and they begin the process, they will put in a request to the Army to cut a new set of orders assigning me to the Medical Holdover Company at WRAMC. The Army will then have 72 hours to cut the orders. Whatever date the orders say I am assigned to WRAMC is the date that I have to move out of this temporary apartment and into the housing at WRAMC. My current orders expire on April 27 – I’m sure they will be done by then. In fact, if I go there tomorrow, they might be cut by this Friday. I was kind of hoping to spend one more weekend in this apartment close to everyone I know, but I might have to move before then. Or, they might cut the orders by Friday, but the effective date won’t be until sometime next week. That would be preferable since I have medical appointments pretty much all day Friday and it would suck to move over the weekend. So, let’s pray that I am told to move next week too.

Confusing? We’re just getting started. Tomorrow should be a fun filled day of running around and being told different information. I pray that it goes well. I know I’ve probably given you way too much information, but I wanted to tell you everything and it also gives me a way to put it on “paper” to make sure that even I have it right. I’ll update you tomorrow evening. And if you have questions for me, please leave a comment and I’ll answer them. Now it’s close to midnight again and I’m still up. So, I’m posting this and going to bed.

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Mar 2, 2007

Off to bed - long day Saturday

A big thanks to Buddy, Amanda, Ryan, Derek, Jumoke, Pili, Charles, Megan, Ruben, Esther, Ashley, Matt, Julie, John, Tamra, Jana, Kezia, Naomi... your help providing materials, ideas, muscle while we packed everything up and loaded the trailer has been such a blessing to us. All we have to do now is wake up, take our last few items down to the truck and drive off. We had a nice meal at El Pollo Rico (which we're going to miss so much since it's so close and sooo yummy) and then we watched just a little TV and talked. Then our great friends presented us with a scrap book full of pictures from our two years here, and goodbyes from many different people from church. We looked at the pictures, but didn't really get a chance to dive into it. We'll enjoy reading it when we get home to Texas. Thanks again to everyone that had a hand in this wonderful gift.

Our time here has been awesome. I can't believe that we're leaving and that one year has passed since my brain surgery! Time has absolutely flown by. It just ticked past midnight and now it is March 3, 2007. One year ago right now my parents and Holly's mom were here and I was trying to get to sleep knowing that I would undergo brain surgery the following morning to remove my tumor. I didn't know it at the time, but the months following the surgery would be the most trying of my life. But here I am, one year later, driving off on one year to the day of that life changing day. Sometimes, it never seems like it happened. But every day I look in the mirror and I see the scar and my thin patch of hair from the radiation. It reminds me of what happened, and how far I have come. But I didn't do it alone. My wonderful wife, Holly, was there by my side every single day. She is my rock. And our family from Grace lifted us up during that time too. God gave you to us so that we could get through that time. In turn, we gave something back to others that are able to take our experience and somehow get through something in their lives just a little bit easier. I'm happy that God used me for that purpose. I will go through it again if I need to, because I feel I have helped more people having experienced this than anything else in my life. And it has made me a better person in the end.

DA Photo 2006DecThe next few months will be a challenge for us, but it's nothing we won't be able to handle. But for the next 40 days, I'm on vacation... my first in two years. Man, am I looking forward to it! Lastly, Holly shared with you that I am on the selection list for a promotion to E-7/SFC in the Army. This is great news since it means more dinero and it just feels good to know that I made the cut. I had to take what the Army calls a DA Photo (Department of the Army Photo) and submit it with my promotion packet. I thought I'd share it with you. Good night.

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Mar 1, 2007

Back on the blog!

I have been off the blog quite a bit here recently. With Holly's dad getting sick and having to pack, there hasn't been much time for anything else. Remember that post I put up two weeks ago on my birthday? We got released early from work into a hellacious commute home. Well, that night we were expecting freezing rain, instead we got about seven hours worth of sleet! Pure sleet.In the end we got about four inches of ice. It was like a white Slurpee everywhere. Work delayed our starting time two hours and we trudged back in. The sleet storm was amazing. It was so windy that the sleet was blown onto the windows - it sounded like someone was literally filling up a bucket of pebbles and tossing it at the window, filling it up and tossing it, over and over. It was so LOUD! I didn't sleep very well at all - it was a very interesting night.

Dining Room BoxesLater that same week we found out about Holly's dad's illness and we decided it would be best for Holly to get to Texas to be with him ASAP. At the time, we didn't really know what the outcome would be, so I rounded up a whole bunch of our friends and we did some big time packing all day Saturday. He was doing better on Sunday and I slacked off on the packing, but he declined again on Monday and we picked up the packing again. I think we ended up packing up about half of the apartment. I hated to admit it, but I decided that we should pack more than less "just in case."

Boxes in the OfficeLast week we packed again on Saturday and then little by little throughout the week. Pictured above is one of the piles of boxes in the dining room (forgive the quality of my phone camera.) The pic on the right is the office. We got a nice surprise six hour long snow last Sunday that laid down about four inches of thick white wet snow. It was beautiful, but then it started to rain. We were tempted to go out and play in it, but then we'd just end up sloppy wet - not so much fun. We hit full stride this week and as you've read from Holly's posts, it's been just nuts. I think we got ahead of ourselves today and there are still things than need to go into boxes, but all the boxes are sealed up. We'll have to figure out how to fix that tomorrow.

The Test LoadAfter the load we ended up feeling leery about whether everything is going to fit or not. If it doesn't, we might have to ship some boxes home - that would stink. Here's a shot of the mock load in the apt - what a pile, eh? Anyway, we're tired and ready for some shut eye. We're supposed to get some pretty serious rain tonight - I just hope it doesn't keep me up. By the way,Tamra's mom is doing a little better. She's off the breathing machine and able to converse a little, but she slept for most of the day. They just don't know how extensive the damage is to her brain yet. She need to get more rest before she can really be evaluated. Please continue to pray for them. And as Holly said... more tomorrow.

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Good News All Around

Well, we have lots of good news from all around. As you know, my dad went home from the hospital Tuesday afternoon. My mom says he cat naps all day, but he needs a lot of rest. I talked to him yesterday and he says he and his legs get tired very easy. I'm a tad confused with this, but they sent him home with no medications. I asked my mom many questions regarding this but she didn't ask upon his release about meds. Just seems strange to me that a person who just had the serious surgeries and close to death experience that my dad did would be released from the hospital without medications. Anyway, my sister Heather and niece Elizabeth are there today and tomorrow to harass my dad and ensure he's doing what he's supposed to do.

We spoke with our friends John & Tamra Rich this afternoon and Tamra's mom Cheri is doing much better. She is awake and alert and talking some what. She is still heavily sedated and needs lots of rest. Please continue to pray for her.

Roger found out from his First Sergeant this afternoon that he has been added to the promotion selection list for Sergeant First Class. Which means it's pretty much a done deal that he will be promoted. Perfect timing. He was very excited to hear this news. He was waiting for this information for a while. He submitted his packet at the end of January and hadn't heard anything until today.

Okay, I'm getting the look from Roger. I need to get off this computer. We have a few more errands to run before the rain hits. Tonight we will finish finalizing the packing and hopefully mock the trailer load in the dining room. Please pray we get everything done and it all goes smoothly!

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