mommaerts.org :: blog

mommaerts.org :: blog

Welcome to our Blog :: Come back often to check in on us and the treatment of Roger's brain tumor.
: Want to be emailed whenever we post a new blog?
:: Scroll to the bottom of the page to sign up.
: Want to catch us via RSS?
:: Subscribe to our blog by clicking one of the RSS links on the right.

Feb 5, 2008

2/4/08 MRI Results

Just a quick note to let you know that I went to see my Rad/Onc at the NNMC in Bethesda and we sat down to look at the MRI. And... it looks just about the same as the last two! There is definitely something up there and it is most likely scar tissue and not tumor because it is not growing at all. He said that we can probably move the MRIs from every three months to every four to six months. Sounds good to me! It's funny though... I really do fall asleep in the MRI even with all the banging and clattering going on. It's just a part of life now. Thank you to everyone for your prayers!

-Rog

Labels: , , , , ,

Feb 3, 2008

MRI Monday Feb 4

First, for those of you that get the blog emailed to you, something happened to the service this past weekend and plogs that were written late last week were not emailed at all. I made the system email them to you just a bit ago. Sorry about that... if you want to get the blog emailed to you, scroll all the way down to the bottom of the webpage to sign up... its free!

I have another three month MRI Monday afternoon at 5pm ET to see how things are up there. Please continue to pray that the tumor is still gone and that healing is continuing. I meet with my Rad/Onc Tuesday morning to review the results. I'll let you know how it goes.

This week is going to be a busy one... I finally have an appt with the VA to have my physical by them for my VA disability claim. And I have a meeting with my pro-bono attorney to prepare for my hearing on Feb 13 to appeal my initial disability rating from the Army. Yes, I will get a disability rating from the Army and the VA. I'll have to explain that at a different time. I'll try to get you caught up on the lowdown this week.

Oh - and what an awesome game tonight. Personally, I was glad to see the Giants get the win over the Patriots in Super Bowl XLII. The Manning brothers get back to back rings. How cool is that?

-Roger

Labels: , , , , , , , , , ,

Nov 8, 2007

31Oct MRI Looks Good

Just a quick post to update you on my MRI last week. Basically, it looks stable and possibly even better than the one three months ago. But this one was done in a different machine at a different hospital, so the differences may have contributed to that conclusion. There doesn't appear to be any new growth so things are good. All of my doctors and therapists are currently submitting new and up to date information to the MEB. I have no idea if that will slow things down or speed them up. With the holidays approaching, I get the feeling they will slow down, but who knows? Thanks for the prayers!! :-)

Labels: , , , ,

Sep 18, 2006

What is normal? And HAIR!!

I have been shaving my head with a razor about twice a week. I usually do it on Sunday and Wednesday nights. Before I shaved this past Wednesday, I thought I felt a little bit of 'peach fuzz' on the top of my head where it had been hairless. Today, I can confirm that there is hair growing on the top of my head! I can feel it, but its almost invisible – very light colored thin hair. But… it is growing back in! You can’t imagine how exciting this is for me. I just can’t wait to not have to worry about shaving my head and just letting my hair grow. And having a normal head of hair will be a step toward normalcy for me. Ever since the surgery, something’s been going on. I just want to try to get back to as close to normal as possible. I don’t think I’ll ever be normal again though. In fact, I’m not even sure what normal is. I thought I was normal before the surgery, but I wasn’t – I had cancer and didn’t even know it. Kinda’ brings a whole new meaning to the word, doesn’t it? What the heck is normal?

We had a great weekend. I went to sleep very late Thursday with a headache and woke up with it again Friday morning. I was tired and decided my body needed a day off. My Oncologist, Dr. Duelge, also said I need to listen to my body. I keep wanting to just get back to a (here we go again) normal routine. But I start to notice at the end of the week that my leg starts to get a little sore and tired, and I get more fatigued each day. In fact, my Physical Therapy doctor, Dr. Milani, told me two weeks ago to listen closely to my body too. I emailed Dr. Duelge last week to ask him about my fatigue. I thought that maybe it was a side-effect of the radiation. He laid it out pretty well for me in his reply:

“…I suspect you will not be able to get by on 6-7 hours of sleep for 6-12 months after the end of treatment. You had major brain surgery (with complication of right-sided weakness) and then brain radiation for 7 weeks. … Based on what you've said, I think it may just be the getting back to work along with not enough sleep for the new Roger (i.e. the one who just had major surgery and then brain radiation).”
I have a hard time finding the fine balance between my work and my body. I feel like I have a responsibility to be productive at work. But I do that at the expense of my body. I need to find a balance, but actually act on it this time. This weekend was a great but restless weekend, in my opinion. We stayed up late Friday, stayed busy Saturday, got up super early because Holly wasn’t feeling well Sunday morning and went to church and lunch. When we got home I was exhausted and laid down for a nap. I ended up sleeping for almost four hours, getting up just before 7 pm. I was up and rested, so I took the opportunity to hang out with my good friend Matt O. We had a great time, and I’m glad we met, but now it’s almost 1:30 am and I’m still not tired. Maybe if I just lay down, I’ll fall asleep.

One last thing - The Matt I mentioned before is one of the first people that befriended me when I came out here. He has become one of the best friends I have ever had in my life. We can talk about anything… and I mean anything. He’s getting married to a wonderful gal in October. I get to be an usher at his wedding! Anyway, Matt’s mom, Sandy, has been battling breast cancer for several months now. She has undergone chemo, but it is not having much of an effect on her cancer. She is scheduled for a mastectomy Monday at 10am CDT. Also, Holly’s father, Harvey, is undergoing a procedure to find out why his tummy has been so upset lately. His is scheduled for the exact same time. Please say a prayer for Sandy and Harvey – that they fear nothing and recover quickly. I’ll have results for you on each one tomorrow.

Labels: ,

Sep 12, 2006

9/11 Events

I uploaded the pictures from our trip to Nashville today. I just need to tag them, add descriptions and make them public. Holly and I have been playing catch-up since we got home last week and I think we’re finally there.

The weather has been just beautiful here lately. Highs have been in the 70s and 80s and not too much humidity in the air.

As you know, yesterday was the 5th anniversary of the terrorist attacks here in DC and NYC. There was a lot of stuff going on at the Pentagon, so I avoided the area and went to our HQ office instead. There, I attended a 9/11 Commemoration Ceremony. The agency I work for lost seven employees at the Pentagon on that fateful day. The Director of our agency, an Army Lieutenant General, said a few words; there was music from a chorus and a short video. During the video, I could hear some very loud sobbing from the audience below. Family of the seven were present at the ceremony, but I think it came from somewhere in the audience. I guess it struck me when I heard their pain – I think the majority of us have had enough time to process what happened. But, there are some people out there that are still hurt; still suffering. I’m going to pray for peace for them, I hope you will too.

After the ceremony, I saw the director in the lobby greeting a few people. When I was in the hospital, he sent me a letter wishing me well. At the time, I was touched that word of my condition moved up the chain so quickly to the top, and that he even sent me a letter. I have been wanting to thank him and I figured, when the heck?.. I decided to thank him right then. He was talking to someone and I walked up to him and waited. He turned around, looked at my nametape and I could tell it rang a bell by his expression. He did remember and asked me how I was feeling and what was left in the way of treatments. He was very friendly, personable and it was good to be able to thank him in person. I shook his hand and was on my way.

Lastly, I’m having a hard time getting motivated to exercise again. Please pray for me on that one. I need to lose a few pounds – being so sedentary during my therapies was not good for my girlish figure. :-P

Labels: ,

Sep 5, 2006

"Home" Again

Holly and I are back "home" in Arlington, VA. We had a wonderful weekend and we can't wait to share our trip with you by way of pictures. It was fantastic to see my mom and dad again. My sister Mirna is doing well and Joey readjusting to being back stateside. They kept him very busy the whole time we were there, so he was tired out. Their daughter, Ariana, is absolutely the cutest little thing. More soon!

Labels: ,

Aug 29, 2006

Promises Kept!

I'm keeping good on my promises today, but before I do…

I want you to know that after the seizure a month ago, my Neurologist and Oncologist urged us to consider staying in the DC area longer. After thinking, praying and talking to friends and family, we decided they were right. It would be good to be in the area near the excellent medical facilities as long as possible. And, since the next MRI is scheduled for Sep 20, it will give us some time to decide what to do if the MRI is anything but normal. First, I talked to my boss about it, and then we both had to go talk to the Deputy Director of our Directorate – also the Agency's CIO. We had a pleasant meeting and he agreed to allow me to apply for an extension. I filled out the paperwork and as I understand, it has been submitted for approval. If it is approved by the Army, we'll be in the DC area through the end of February 2007. The last MRI I had was before the Radiation started – where they saw a very small "area of enhancement." This is why they decided to do a full aggressive course of radiation instead of a shorter course. My Oncologist said that they normally do a follow-up MRI three months after the radiation is completed. The radiation finished June 19. So, Sep 20 is when we find out what the heck is going on up there – pray that nothing is going on! Anyway, that's it for that.

I've posted some pics of Anthony's trip. You can see the whole set here. There's one very cool picture that I took at the Natural History Museum. I took a bunch of pics of the main room and then used a free program called Autostitch to put them all together. All you have to do it select the pictures and it does all the work. Check it out! Oh - and if you peeked at the pictures already, check them out again - I added comments and stuff.
Anthony's DC Visit 048

As I mentioned before – my hair is growing back in nicely. Hair is growing back in everywhere except for the rectangle where it fell out first on the top of my head. Check it out…

Here's a pic from May when a rectangle started to form on the top of my head.
Roger's Hair Loss 2

Here are some pics we took last night, before I shaved my head this morning.
Roger's Hair Loss 014
Roger's Hair Loss 018

Weird, huh? You can see that the areas that were exposed to radiation are growing back in with less and slightly thinner hair. Click the pictures and check out the notes that I posted on each one.

So the neighbors… and the baby… we gave them the book and within a few days, we noticed that the baby would start crying, but then would quiet down pretty quickly. Then last week we got a small envelope under our door. It was a thank you note from our neighbors. They thanked us for the book and said that is has helped them immensely already. And that they had already recommended the same book to some of their friends! I'm glad we were able to help them (and ourselves) out. But I guess they still have bad days. Last night the baby was wailing from about 10pm to almost midnight. I just couldn't get to sleep and the earplugs were uncomfortable. I had planned to get to sleep at 10:30pm and wake at 5am, but after that, I could not do it. I got up late and my whole morning routine was behind schedule. Keep praying for them!

Holly and I are headed off to Nashville, TN Friday afternoon to see my sister Mirna, niece Ariana, mom, and dad. And Joey is coming back from Iraq on Thursday! So, it will be a mini family reunion. I haven't seen my parents since the surgery, Mirna and Ariana since Christmas and Joey since April of last year. We're going to have a great time. The only thing that could be a problem is the weather. Tropical Storm Ernesto is predicted to hit Florida later today and then track up the east coast up toward Virginia. Right now they say it will get to DC (if the track stays put) Friday morning. We're set to fly out of DC around Friday afternoon. I hope the heavy rain doesn't affect our travel.

Labels: ,

Aug 27, 2006

No news is good news?

Not much going on since my last post. I’m back at work on full days. I have been working to get our most recent pictures posted for you. We’ve been waiting on what’s up next for us here in DC. And we’re off on a trip this coming weekend. I’ll have details on all of that this coming week… including the pictures I promised… I promise!

Oh yeah – I have a follow-up appointment with Dr. Milani at NRH late Monday morning. I think this might be the last one with her – she was my attending while I was in rehab. And lastly – the follow-up MRI has been scheduled for Sep 20th. More soon!

Labels: ,

Aug 17, 2006

Promises, promises

So, my mother-in-law, Helen (Hi Helen!) , wants to know what’s up with the blog. Well – I have been feeling pretty good and have been pretty busy working and stuff. Things are so much back to normal, that I just haven’t much to report. But I’m sure I can rustle up a few things… hmmmmm…

Okay – first, my visit with Anthony was fantastic. We really had a great time! We did all the touristy stuff and also managed to relax and spend some time talking. He even helped me with the camera equipment at church on Sunday. Yes, we have pictures, no I haven’t uploaded them yet. Soon – I promise.

Next, the hair. It is growing out more and more. If you take a look back at the pictures from when my hair started to fall out, it fell out in a rectangle. Well, the area that doesn’t have any hair now looks like… well… kind of like a rectangle. We need to take a picture to show you. Soon – I promise.

The weather here has been very nice lately. The air has been dry and temps have been fairly comfortable. Nice weather to get outside.

And – finally, our neighbors had a baby about three weeks ago. The poor little girl cries for hours straight. And their bedroom is on the other side of the wall from ours. She wakes us up about every other night with her loud wailing. I was at the eye doctor yesterday and she was pregnant. She asked me if we had kids, but I told her no, but our neighbors did! Anyway, I told her about the crying and she told me about a book that the Air Force recommends and teaches to new parents. It is called The Happiest Baby on the Block. They also have a website: www.thehappiestbaby.com. Holly was at the PX and bought a copy for them. We’re going to give it to them tonight. I skimmed through the book and it has lots of info on how to calm crying babies. So, if they read the book, she should be sleeping peacefully in the next few nights. If she’s not, you’ll know – I promise.

Labels: ,

Aug 3, 2006

Five Months!

Today is August 3, 2006 – today I celebrate five months to the day since my surgery. I have not had any seizures since the last one and the meds are not making me sleepy or anything. I have been going to work on half days all week. Next week I move up to six hour days for a couple of weeks. My hair is starting to grow pack in a few small patches. I have very thin hair on the very tippy top of my head growing back at a pretty fast pace. It seems to grow about 2mm a week. The hair on the right side of my head is starting to grow in pretty well. And the top of my head some thick hair is growing in very sparsely. The hairs are thick, but very spread out. They grow very slowly… about .25mm per week. So, it’s kind of a patchwork that looks odd. I shave the sides and back daily. Some days I slack off, but then it is a rougher shave the next day. I try to shave the top only once a week. Shaving it more often makes little pimples appear. The scar is healing up pretty well. The skin is smoothing nicely and I can even feel the titanium discs that they used to reattach the cut out bone to my skull. Cool, eh?

My good buddy Anthony is here visiting from LA. I took the metro and bus up to BWI this afternoon to pick him up. I’ve known Anthony since the 5th grade. He was in our wedding back in 2003. Here is a pic of Anthony (and Cassie too!) And here are the rest of the pics in the album. I have to work tomorrow in the morning. After that we’re going to hang out and maybe see some sights if it is not too hot.

Speaking of hot… it has been very hot here! The temp hit 101 here today, with heat indices in the area over 110. The past three days have been getting progressively warmer. Today was the worst, but there is a front coming in tomorrow and it should be in the low 90’s tomorrow and high 80’s Saturday. We saw some lightning tonight, so we know it’s on the way. Come on slightly cooler weather!!

Labels: ,

Jul 26, 2006

End of Physical Therapy

Since starting to go to outpatient physical therapy in mid-March, I have gotten much stronger and much more agile. As a result, tomorrow, Thursday, July 27th, is my last day of PT. I’m not exactly back the way I was before the surgery, but I’m close. In fact, some times I forget how much further along I really am. When I’m walking, I forget that I can walk fast! When I go up stairs, I forget that I can take them two at a time now! I’m really feeling quite well. I’m still having trouble running, but I think that will eventually come along. Now, nobody is going to push me to improve except myself. Please pray that I keep it up – I want to run again!

I went to work twice this week at the pentagon. It actually felt pretty good to do technical stuff again! In fact, I got so involved with something new today, that I stayed past 5pm! Can you believe it? :-P I have a meeting at our main office Friday to talk about the coming weeks. I’ll let you know how that goes.

I haven’t had any more seizures – I am taking the full therapeutic dosage of Keppra now: 1000mg per day. I am tolerating it well – no tiredness or other side effects. I communicated my seizure with my Neurologist via email and he seems to think that I did not have a Tonic-Clonic seizure, but instead, a Secondarily Generalized seizure. This would explain why I remember thinking I had a leg cramp in my right leg. The seizure must have started in the motor cortex on the left side of my brain and then spread immediately through the rest of my brain. I guess it probably progresses to something like a Tonic-Clonic. It makes sense, let’s just pray that it doesn’t happen again. Oh, by the way, here is some great info on first-aid for seizures. Please take some time to read it; you could save my (or someone else’s) life. Really.

So, that’s about it. I know I have been teasing you with pictures and stuff, but never posted them. I’m going to try to get some of them up eventually. Better late than never, right?

Labels: ,

Jul 17, 2006

The Rest of the Story

Before I give my version of the seizure, I have to give praise to God. He deserves so much praise and thanks. I have to thank him for giving Roger this seizure when he was at home and not at work, on the metro or driving. I have to thank God that I was with him and he was not alone. I have to thank him for this awesome country that cares enough about its citizens to employ paramedics and firefighters 24 hours a day. The paramedics were so professional and caring. And the emergency room staff was great. I also have to thank him for putting seizure information in my life over the past years to prepare me for it and that he kept me calm during the whole event. As I’ve said before, our God is an awesome God.

Next I have to apologize for the length of this post. Unbelievable! Sorry.

Now about this seizure...it was very scary. The feeling of helplessness and fear of not knowing what to do was scary. Next to Roger’s anxiety attacks in the hospital after the surgery, this was the freakiest thing I’ve ever experienced in my life. With Roger’s anxiety attacks, no one could tell me what was happening and what could be done until Cassie got there and went through a night with me. She knew exactly what was going on. That’s how we knew they were anxiety attacks and were able to get him the help he needed. But this was my first seizure and I would have preferred to have been prepared, but Roger neglected to inform me that his last pill was Monday and he could possibly have a seizure. Thank God I noticed on Tuesday and Wednesday that he didn’t have a half pill in our pill organizer. That’s the only reason I knew when asked by the paramedics that he had finished his anti-seizure pills. Don’t you worry, Roger and I have discussed this communication slip. :)

So Roger and I talked for a bit and prayed before we went to sleep Thursday night. I’m usually a very deep sleeper. I can even sleep through most storms. But I woke up because I heard Roger make a loud “ugghh” sound like he usually does when he gets a leg cramp. I looked over at him and saw his arms out in front of him as if reaching towards his leg so I thought he was having a leg cramp. After a couple seconds of watching him and feeling the bed vibrating strongly, I realized it was more than just a leg cramp. I jumped onto my knees beside him and somehow there seemed to be a lot of light to see him and I began asking him questions. As I was asking him questions, I clearly remembering thinking to myself, “make sure he’s breathing, make sure his tongue doesn’t block his airway, make sure if he vomits, he doesn’t choke on his own vomit.” I got no response from him so I jumped off the bed and ran to his side of the bed so I could see him better. His face and body looked as if he was fighting the seizure, but I’m pretty sure he had no control over it and that’s just what happens when you have a seizure because of what’s happening to the brain. I took his pillow out from under his head because his face was pushing into the pillow and I didn’t want him to suffocate.

I continued to talk to Roger and ask him questions. I think I was thinking out loud more than expecting him to respond. Although I probably would have felt a little better if he had responded. I was questioning if and when to call 9-1-1 and what to do and stuff. There were some requests made to God through out all that too. The seizure lasted for about 20-30 seconds, give or take 5-10 seconds. I wasn’t paying attention to how long it lasted, but it wasn’t very long. The seizure stopped and I began to address Roger with the intent of getting a response from him. At first he didn’t move or talk and every time I began a statement his eyes would open very big and then they would immediately begin to close. I was worried he would go unconscious and then he would be in more trouble. I continued to talk to him to keep him awake as he moved his arms away from his body and uttered “Soooo” and immediately collapsed again. He made a couple smacking type moves with his mouth and I thought he was going to vomit. He opened his mouth fairly wide and I heard his jaw pop. A bunch of saliva came out of his mouth but no vomit. I thought there might be permanent damage to his brain and I decided I couldn’t wait anymore. I grabbed Roger’s phone which is always on his night stand and dialed 9-1-1. The operator answered with the usual spill which ends with “what’s your emergency?” I told him that my husband was having a seizure. He asked me for my address and phone number and if it was an apartment building. I answered and he said paramedics were on the way. Then he proceeded to assess the situation. He asked me if Roger was breathing then how his color was. He asked me about Roger’s prior medical condition. Somehow, I was able to stay completely calm, answer all his questions and not ramble on like a crazy lady. “He had a craniotomy on March 3rd for a brain tumor and seven weeks of radiation that ended three weeks ago. Is this his first seizure? This is his first full seizure. He only had small seizures in his right arm before. Does he have any other conditions? No, he’s healthy other than these. What medications is he taking? Keppra, Zyrtec, Naprocyn for back pain only when needed and he took two Aleve last night for a headache.” He asked me if I would be able to let the paramedics in the door and told me to watch Roger and if his condition changed at all to call right back.

I checked on Roger again asking him questions to make him stay awake. I ran to the hamper and grabbed a pair of shorts then ran to the closet and grabbed a t-shirt. I talked to him the whole time so he’d stay awake. Then I proceeded to find the phone number for the front desk downstairs so they would know the paramedics were on the way and assist them in getting in. The number wasn’t in Roger’s phone where I could find it, so I ran to the office and grabbed the folder from Suite America out of the file drawer that had all the numbers in it. It wasn’t in there. I thought, “Duh Holly, you work for Archstone-Smith, you can get the number from the website” as I moved the mouse. The desktop came up and I clicked on IE. I typed archstoneapartments and hit Control-Enter. The site came up and I clicked on Virginia and then Gallery at Virginia Square. But the website was just changed recently and the phone number now listed was the 800 number not the local number. I didn’t want to call it and get some call center in our Denver office.

Then I remembered we got a letter from the community manager about the fire alarm being tested the day before. And since we recycle it was still sitting on the counter in our paper stack. So I ran over and grabbed it and ran into the bedroom to check on Roger thinking I had been gone too long and no telling what state he was in now. I dialed the number as I spoke to Roger to make sure he was conscious. The front desk person answered and I told him that I had called 9-1-1 and the paramedics were on their way. He responded that they were already here and on their way up. I hung up and thought I need to know how long this is happening in case I’m asked. I looked at the time on Roger’s cell phone and it was 1:57 a.m. (The next morning Roger and I looked at his call log and I called 9-1-1 at 1:51 a.m. So only five minutes had passed from the time I dialed 9-1-1 to dialing the front desk at 1:56 a.m.) I ran to the front door to unlock it and propped it open with a Gatorade bottle from the closet across from the door. I ran back to Roger and he seemed to be a little more awake. I kept talking to him and he was very slowly starting to come to. I heard the paramedics say something and the door opening. So I ran to the door, held it open for them and all of their bags and toolboxes as I said he just came to. They asked which way and began to ask me questions.

I went to the bedroom and completely forgot that Roger had no clothes on. As soon as they walked in they pulled the sheet over him. That was a little embarrassing because I didn’t even think about Roger being naked. It never crossed my mind. They asked me to tell them what had happened and asked a lot of very important questions about medications and medical history as they tended to Roger. I didn’t know this but a couple of them were bringing the stretcher and other stuff in and were in the living room moving the coffee table. I think there were five-six of them. One guy was devoted to Roger. One guy assisted him by handing him stuff. They didn’t say much to each other. The assisting guy knew what they other one needed. One guy kept asking me questions as I went back and forth from the dresser to get Roger’s ID to the bathroom cabinet to find his medicine bottles. The guy with Roger was asking Roger if he knew what was going on, where he was, his name, what day of the week it was, etc as he was taking his blood pressure, pulse and other vitals. Roger wasn’t responding very well and looked completely confused and shocked and maybe a little scared so he told Roger he was going to put in an IV to help him. Roger’s face looked like as soon as the needle hit his arm he was going to freak out. So I walked over to the side of the bed and grabbed his hand and held it. He looked at me and I said to him that everything was okay now, he was here to help him and asked him if he understood that. He kind of shook his head at me in agreement and the paramedic asked him if he knew who I was and Roger said my wife. Then the paramedic asked what’s her name and Roger said Holly. So he stuck him with the needle.

I guess he had a bag of saline (I can’t remember.) and he told me it would help him feel better. I asked if the way Roger was behaving was normal and all the paramedics nodded or responded in unison that it was. That made me feel better. Roger began to come to very fast. He began asking questions about what had happened and what was going on. They explained to him that they were going to take him to the emergency room and why. Roger still seemed a little confused, but he was responding faster and clearer. He wanted to know what hospital they were taking him to, if he could put on some clothes and if he could drink some water. They explained that what ever he put on would be taken off anyway for a gown and they’d cover him with a sheet. One medic pulled our sheet off the bed and then one of the guys behind the stretcher said they had one. I said out loud, “Good because I know hospitals and I’d be scared I won’t get my sheet back.” They all laughed in agreement.

One paramedic gave me directions to the hospital and I began to gather clothes for Roger. As they went out the door, one turned back and told me to tell the ER people when I arrived that Roger was in ambulance 104. I ran to grab a bag for the clothes. I thought we might be there a while and grabbed a bottle of water, banana and an apple. I also grabbed the notepad we used at the other hospitals to write stuff down. I knew I’d have stuff to write down. As I was making my way to the elevator, I realized that I couldn’t really remember the directions he gave. And as I was driving out of the garage, I was starting to question if he said ambulance 104 or 140. I was thinking, “Oh crap, I hope I can catch up to them and follow them.” I did not want to have to use the GPS to find the hospital. I wanted to be there when he arrived. I pulled out of the garage driveway and the ambulance was still there. Talk about relief. I followed them to the hospital through red lights, looking all around for cops every time. They drove a normal speed and turned on the sirens only through intersections. I could see Roger sitting on the stretcher. I followed them all the way back to the ambulance dock. I parked in a row of parking spots worried I would get towed, but there were no signs saying no parking. I inquired later and was told since we wouldn’t be there long, it was okay. Of course, the guy gave me a hard time. And when we left the doctor directed us a different way and I explained that I was parked out by the ambulances, the guy that told me it would be okay said, “If it’s not towed” with a sheepish grin.

In the ER, they hooked him up to the machines and I repeated the story, medications and medical history to the doctor. A young lady in civilian clothes got all our insurance information and copies of Roger’s Texas and military ID. The doctor prescribed a 500 mg Keppra and decided to do a CT scan. So Roger was wheeled away. A few minutes later he returned. The nurse brought his Keppra and Roger told her his IV was hurting him because he bent his arm in the ambulance which pushed the plastic needle up farther and bent it. So when they took blood it wouldn’t work so they had to use a butterfly to get blood. It all reminded Roger of all the blood/needle experiences in the hospital. Not fun, especially when they took it out. The doc came back in after a while and told us his CT looked fine and we would be released shortly. Roger asked if he could drink something. The doctor himself got him some cranberry juice and brought it to him. When he returned I asked him a bunch of questions about what to do next time. Roger signed some paperwork. I helped him get dressed and we walked to the truck. He felt a little light headed when he sat in the truck and we sat there for a bit before we drove off after I asked him if he thought we should go back in. He said no and we went home at 4:30 a.m. We were completely wide awake for quite a while. But it gave us time to find the Tricare numbers we needed to make the necessary call so we wouldn’t get charged for going to a civilian hospital and for Roger to send emails to his doctors at Bethesda to give them a heads up that we’d be there later that morning.

We finally laid down to take a cat nap before we headed to Bethesda around 5:30 a.m. Of course, we over slept and didn’t have time to take showers, but only get dressed and drive an hour in rush hour to Bethesda. We made it to the hospital in the nick of time for Roger’s 9:00 a.m. ultrasound to check for testicular cancer which he found out today was negative, but they’d like to see him again in December. After that we met with Dr. Duelge and then Dr. Rosenbaum. We received a lot of good information and it was good to speak with Dr. Rosenbaum probably for the last time in person as he is separating from the Navy. That will be the Navy and the military’s loss because he is a great neurosurgeon. We ate a great lunch at the mess hall and returned home around 3:00 p.m. to rest finally as we were exhausted.

Roger is still shocked that he had a seizure. It’s almost surreal to him. It’s not for me. I will never forget this and I pray we don’t have to experience this again. Thanks for sticking with me on this ride. I hope you enjoyed it and maybe learned something. I sure have.

Labels: , ,

Jul 16, 2006

First Big Seizure

I haven’t blogged in a while as everything had been going fine. This past Monday I took my last Keppra, or anti-seizure medication. Tuesday, I made contact with NRH and Apria finally picked up my wheelchair. I was hanging on to it, for I don’t know what reason. I also made it into work Monday for a short meeting and to do some paperwork. I also managed to get back there Thursday afternoon for a few hours. Everything was going so well last week as I set off to dream-land Thursday night…

Holly and I hit the sack pretty early… a little after 10pm. We both had a wonderful end to the day, we laid down, prayed together and fell fast asleep. I remember waking up thinking I had a cramp in my leg. It was actually about 2am. I felt my leg get stiff, but then I recall my whole body being stiff. I yelled out, and that’s all I remember. The next thing I knew, the lights were on and our bedroom was filled with men in blue shirts. They were paramedics and I had just regained consciousness after suffering from my first ever general seizure. At first, I didn’t know what was going on. I came to and there were all these people around me – Holly was right there next to me telling me that I had a seizure and that the men were there to help me. I guess I was really out of it – I don’t really even remember them giving me an IV or putting EKG pads all over the front of my upper body. They asked me a bunch of questions that I don’t even remember – I guess I had a hard time coming to grips with what just happened. They moved me over to a stretcher and rolled me out of my room, out of the apartment, down the hall, into the elevator, through the lobby and into a waiting ambulance. I was concerned when we made it into the ambulance because I wasn’t sure where Holly was. But just as we were about to pull away, I looked through the rear window and noticed our truck had pulled up right behind the ambulance… Holly was right behind us.

We made our way to the hospital, Virginia Hospital Center here in Arlington. I know we talked in the ambulance, but again, I can’t remember what we talked about. We got to the hospital and they backed up, just like in the movies, and moved me into a triage bay. The medics handed me off to the nurses and a doctor. They asked me more questions – but again… I’m drawing a blank. Thank God Holly was there to answer all their questions. I do remember that everything seemed to pretty much go by the book. They took some blood and also gave me a head CT. They didn’t find anything abnormal as I am at risk for seizures and I just came off my meds three days earlier. They gave me a Keppra, some Cranberry juice and after about two hours, Holly and I were on our way back home. We went back to sleep around 5:30am. I still don’t remember exactly what happened – all the details are fuzzy, but Holly will fill you in when she blogs about it.

We got back up at 8am as I had an ultrasound at 9am at Bethesda. I had an ultrasound of my testicles and everything was clear. We stopped in to see my Radiation/Oncologist, Dr. Duelge, just to fill him in on what happened the night before. He was surprised to hear it happened, but there was always a chance. Then we made it up to see Dr. Rosenbaum – it sure was good to see him again. We talked to him for about a half hour and he told me that the type of seizure I has seemed very similar to a Jacksonian Seizure (check out the link.) I thought I was having a cramp in my right leg, where the tumor was located in my brain. It moved from there forward and affected the rest of my brain, then I blacked out. He also said that having a seizure like that makes the brain have a week’s worth of activity in about 30 seconds. He suggested that I start talking half a pill of Keppra once a day now. If that keeps the seizures at bay, then we can stay at that dosage. If I have another one in the future, we’ll kick it up to a whole pill a day and see how that goes. On a side note, Dr. Rosenbaum is leaving the Navy, his last day is this Friday. He’s heading to private practice in NC. Best of luck to you in the future Dr. Rosenbaum!

So, that’s about it. After running around all day Friday, we went to the 275th Army Band concert at a local middle school (excellent) and ate out at Costa Verde (excellent Peruvian food) and then I fell asleep hard. I didn’t wake up once all night. Saturday we slept in and then headed out to see the movie Nacho Libre. I thought it was just silly – it did have me laughing the whole way through. If you want to see it, watch a matinee or rent it when it comes out. Then we had dinner with Ryan and Amanda at Café Asia (always good food there) and then we stayed up and played games and just chatted the night away. Today we went to church (duh) and then had lunch at Bertucci’s (very good Italian food.) After that we came home and just vegged out since it’s too warm outside to hang out. This weekend and the coming week are going to be hot. We might hit 100 here… that’s hot for DC!

Tomorrow I have PT and a follow-up appointment with my Urologist. I’m going to have to take it easy at PT since the seizure left my biceps, left ankle and neck sore. I also popped my jaw and can’t open my mouth all the way – it really hurts. I have been popping 800mg pills of Ibuprofen too try to help that get better. Please pray that the seizures don’t come back. I’ll try to get Holly to blog about our experience soon. Have a great day.

Labels: , ,

Jul 6, 2006

Hip Diagnosis

I saw an orthopedist today who tells me that the mass in my left hip is nothing to worry about - it is not cancer for sure... it is just an extra growth of bone or something. The report says: "benign lesion of L femoral neck; prob enchrondroma, does not pose threat." I looked up "enchrondroma" online and it seems to be some kind of common bone cyst that is nothing to be concerned about. I had to take the X-Rays twice since the tech messed them up or something the first time. The whole visit to ortho took just under two hours. So, we can cross that one off the list. Yay!

Before that, I also was able to get in to see the neurologist who says I'm doing well. The visit with him took about two hours too. He typed a lot and did some strength tests on me. He wrote up my Medical Evaluation Board (MEB) paperwork and suggested I take it to Walter Reed myself. I was happy to do that as I was planning on visiting that soldier anyway. The doctor I saw is also leaving the military, but he was good and now I'm not a new patient!

I finally made it to WRAMC and after searching for the right office for almost an hour, and I finally spoke to someone who told me about the MEB process. Apparently, an MEB can take a few weeks to months to complete. During that time, I would be attached to a Medical Hold Company at WRAMC – we would have to move out of the apartment and Holly would have to head back to Texas immediately. When they start the process, you are reassigned within days and are at their mercy until a decision is made. With that knowledge, we are going to wait until the follow-up MRI in August to see what the next course of action will be and then decide what to do. If it is clear, I might take my leave and get everything back to Texas and come back for the MEB after a few weeks. If it is not clear, more radiation might be in store and that brings us a whole new set of unknowns. All in all, there are still many unknowns, but at least now we have an idea of what to expect. For now I can rest, work on my strength and agility and spend time with Holly.. and enjoy the summer! Pray for the tumor to stay away!!

After all the MEB crapola, I finally set off to find the young SGT that Joey wanted me to check on. At the info desk I was told he was at the Malogne House. I stopped by there and talked to his roommate. His roomie said he had surgery this morning, so I walked back to the hospital, avoided the info desk, used common sense and followed the signs to Neurology. I asked several people where he might be and finally found a nurse that was looking for him too! She took me to him and he was doing fine. He had surgery this morning and was still a bit groggy. His mom got there just after I arrived - she missed her flight this morning. I didn't want to stay long so that they could visit, but he was in good spirits. I told him that Joey is my bro-in-law and that he personally asked me to check in on him. He was very appreciative and said that Joey is one of the best company commanders out there in Iraq and that he liked him a lot. He was worried because he was little numb in his left leg and is having trouble moving his toes. I told him about what I went through recently - he said that after talking to me he felt better and that he would be just fine. It felt good to give him renewed hope! I told him to rest and rely on others now until he got better. I gave his mom my number and told her to call me if the hospital staff was uncooperative over the weekend. I got the heck out of there and headed home.

Lastly, I talked to my boss late yesterday and I am returning to work Monday on half days at first. I have a short meeting Monday afternoon to talk about what I’ll be doing for the rest of my stay. Pray that that goes well. Holly and I are having a picnic after work tomorrow at the National Gallery of Art Sculpture Garden where they have free Jazz Friday nights during the summer. The weather has been very comfortable; we are looking forward to it!

Labels: ,

Jul 5, 2006

Rest!

It's been about a week since I posted last. I spent the last part of last week trying to rest up. Holly and I had a great 4th weekend that I'll fill you in on later. Dr. Duelge was able to contact a Neurologist at NNMC and I am seeing him tomorrow (Thursday) for continued care and more important, my MRB. After that I have an appointment with the Orthopedist about the whole hip thing. After that, I'm planning to swing by Walter Reed Army Medical Center (WRAMC) to visit a soldier from my brother-in-law, Joey's, company. Joey was back in the states for two weeks on R&R from Iraq and one of his commo sergeants suffered a back injury. He was sent to WRAMC for surgery and when Joey got back and found out, he emailed and asked me if I could visit this young SGT on his behalf... I told him I would. I'll let you know how all that goes tomorrow.

Labels: ,

Jun 27, 2006

Still Wet!

It sure has been wet here. I’m sure you have been hearing in the news how the Washington DC area has been getting dumped on for several days now. I understand that we have gotten over nine inches of rain since Sunday. But the end is in sight… they are saying that the rain should end Wednesday for the most part. The rain really has been wreaking havoc everywhere and affecting many of those around us. We woke up Monday morning with no Internet, but the TV worked. We normally don’t watch TV and we figured all was well in commuting land. Holly headed down to the metro at about 0830 and I was getting ready to metro over to NRH for my 1000 follow-up appointment with Dr. Milani. Just minutes after Holly left, she walked back in and told me that she went in to the metro station and that the platform was packed with people and the next trains were well over 10 minutes away – and most likely packed. She decided she should drive to work and came up to warn me. I was planning to metro but one of the stations on my route was closed due to water over the tracks in a tunnel, and delays were over an hour since passengers had to exit, take a shuttle bus around the closed station and go back down to a train. I needed to make my appointment, so I called our always reliable friend, Kezia. She made it over as soon as she could and we set out. We left around 0915 but immediately hit traffic crossing the bridge across the Potomac River. Holly acted as our eyes and scouted out the traffic jams for us at a very cool free traffic website called TrafficLand.com. She was able to tell us what roads were running smoothly and where stalled cars were in the roadway. It was awesome and she got us around the bottlenecks. But the delays took their toll and we didn’t get to NRH until about 1050. Luckily, they were able to get me in quickly. Dr. Milani was happy with my progress and prescribed another four weeks of PT, but only two days per week instead of three. She also advised me to rest again this week, which I wasn’t planning to do. I had a chance to see Kate and Missy and many other folks there again; it was great to see everyone. And I know it definitely helps them know that they are making a difference. The day was a complete mess for most of the region. I heard many stories of people getting to work three hours late, several government building were closed due to flooding, and many people suffered water damage in their homes and cars.

Monday was so long, I can’t believe it’s only Tuesday! I had PT this morning and learned that Laura’s (one of my PTs) basement was flooding slightly. They had carpet down there and it was a big mess that they are continuing to clean up. Then today at lunch with a few friends, I learned that our friend, Jennifer, had a horrible mishap with her car Sunday night. She was driving home and followed traffic through a water covered road. Her car stalled, started but stalled again and would not start. As she was trying to figure out what to do next, she realized that the water was rising quickly. She called a friend but it was too late, her car was starting to float a little. She opened the door and water gushed in, filling the car. She waded to safety and her car was eventually washed into a pole on the other side of the street. Unfortunately, her apartment was flooded a few weeks ago by a bad pipe – so this was a double whammy for her. Please keep her in your prayers, if you could.

I tried to make an appointment to see a neurologist today but they told me that they have no openings for new patients until August. That really stinks for me since I am not really a new patient. My neurologist is leaving the military and I get screwed. I made a quick phone call to Dr. Duelge at NNMC and he is going to see if they can get me in quicker somehow for continued care – as I am not a new patient. I’ll let you know how that goes. I have not posted the pictures from this past weekend yet. Tomorrow is my first day in a while where I don’t have to be at some doctor appt, treatment or therapy – so I am sleeping in.

Labels: ,

Jun 25, 2006

Wet Weekend and a Surprise

It has been a fun but wet weekend. We started off Friday by having dinner at Harry’s Tap Room in Clarendon for Holly's half-birthday. As always, it was delicious and we had a great time. Saturday morning, Holly was up early, but I slept in until 1230. It is a good thing she finally woke me up – we went to bed a little after midnight the night before. Who knows how much longer I could have slept! I guess I was pretty tired.

We had to go shopping for a few things at the PX and Commissary again and while we were there we saw our friend Ruben. We know Ruben from church and he is in the Old Guard at Fort Myer. He recently completed training and is now working in the caisson platoon. A very prestigious job, in my opinion. We talked for a while and he agreed to pick us up and give us a ride later in the afternoon since there was a threat for rain and the truck can’t get wet until Monday. We went back home and prepared a salad and Ruben picked us up so that we could head out to a farewell picnic for our dear friends Su and Dan. Dan recently accepted a job in NYC and has been living there for a month or two now. Su finally finished up at work and their condo is under contract – so she is set to head up there to be with Dan next week. The rain held off and we had a great time in DC at a nice shady park next to the Potomac River.

We came back home to prepare for another event. Luckily for us, it was in the club room of our own building. Our friend Jonathan threw a surprise half-birthday party for his girlfriend of five years, Ericah. You see, Ericah is a Christmas Eve baby, just like Holly, and has never had a birthday party of her own. So, Jonathan threw her one. He enlisted the help of some of her best friends to take her out to dinner. Then they lured her up to the club room by telling her that a friend they all had in common was having a get-together in the room. Anyway, they were successful in getting her up to the room, we all hid around the corner and when she walked in we all yelled surprise. But Jonathan had another surprise for us all, he then said there was another surprise coming and asked her to cover her eyes. Then he dropped to one knee and when she looked he had a beautiful diamond engagement ring at the ready. He proposed, and of course, she said yes! It was a shocker for all of us, but we enjoyed every minute of it. I was going to take some pictures, but I was so far away, I decided to take video instead. So, I got it all on my camera. Check it out below!


Oh yeah… I shaved my head again on Saturday. But not with just the clippers, this time we went all the way – Gillette baby! Holly did the honors the first time just so we could check out the results and so that I wouldn’t maim myself. It looks pretty good and feels… interesting. I’m going to have to shave it everyday if I want to keep that slick look. I do have hair growing on the back of my head, so I’m going to need to maintain it to have an even look until the hair everywhere else starts growing again and then I’ll let it grow. I’ll take some pics and let you know how it goes.

Okay – so it has been raining pretty much all night. Out cable was knocked out by the storm, which also took out our internet. So, I hooked up my cell phone to my laptop, installed some software, changed some settings, and viola!.. I’m back online. I’d love to share the pics from both parties this weekend and of my new shiny head, but he speed is limited and all I can do it post. I’ll get those up later this week. Have a great Monday!

Labels: ,

Jun 23, 2006

Stormy Friday

We had a heck of a thunderstorm last night. At about 2230 I could start seeing lightning in the distance. I think I fell asleep until I was awakened by thunderous booming and constant flashing of lightning. It was quite the show. Holly and I both woke up and I kept checking to make sure that the window that leaked earlier this week wasn’t leaking again… it didn’t. Anyway, after not being able to go to sleep for a while, I thought I should make the best of it and take some video. Check it out below (make sure to turn up the sound for the full effect):


Very busy day today. I had PT at 0930 and they ran me through various endurance, strength and coordination exercises. They would give me about five things to do and I would have to run through them in quick succession. One would be upper body, then lower, body and upper body again. They gave me a chance to rest and then we moved on to another group of exercises. It was hard, but a good workout. I’m sure I’ll be sore tomorrow.

After PT I had to meet up with two different companies that had to do stuff with the truck. When I was in the hospital, one day Holly and Cassie were driving to NNMC and a rock hit the windshield. That day the crack grew about a foot across the windshield. Ever since then it has been creeping across to the middle of the shield. I finally entered claim with Geico Wed and they sent someone out from Safelite to replace it. He was fast and quick. It is amazing to me that they can replace the window and even transfer DoD tags and state registration stickers. He did a thorough job and was very polite too.

After that an inspector from Magoo’s came out to take a look at my truck. When I bought the truck back at the end of 2002, I purchased an extended warranty at the advice of the website Carbuyingtips.com. I used this website to learn how to negotiate the purchase of my new truck. I got it for a great price and thought I should take the advice of the site and get a warranty as I planned to keep the truck for a long time. I learned a few months ago that the warranty company went bankrupt and I’m no longer covered. So, I decided that since we just hit 50,000 miles this week, and the truck is doing great, we should get another warranty. Unfortunately, the warranty will be twice as much now since it is older, but after the first major failure we have, it will pay for itself. Check out Warranty Direct’s website for details. Anyway, the inspector just had to take a look at the truck, take pictures and drive it. He said it was in great shape.

Tonight Holly and are going to have dinner at a restaurant in Clarendon called Harry’s Tap Room. Harry’s is one of my favorite restaurants in this area. It should be a great dinner and a wonderful way to mark Holly’s half-birthday. Have a great weekend!

Labels: ,

Jun 22, 2006

Helpful Doctor

Pretty successful morning… (other than not being able to go back to sleep this morning) I went to my appointment and saw the same doctor at the Pentagon that was pretty terse with me last time. This time she was very pleasant and did everything she could to help me. She put in a referral for a new Neurologist at NNMC and she also put in a referral so that I can see Dr. Milani at NRH again on Monday. Unfortunately, she said that a specialist will have to start the MRB, so I am going to talk to the Neurologist about that. And finally, she wrote up a new temporary profile to limit my physical activity and it also states that I am not deployable to a war zone – just in case…

So when I got home I tried to make an appt with neuro – but alas… I have to wait 48 hours to make it – so I’ll have to call back Monday afternoon. Then I called HealthNet, who takes care of insurance and medical issues outside the military, and what do you know? I didn’t need a referral after all. The last one I had authorized five visits. So she gave me the auth number that I can give NRH and that’s that. So, all in all, it was a good morning. I think I’m going to grab a bite to eat and then try to take a nap or something.

Labels: ,

PCM Appt

So much for sleeping in on my “day off.” I got up at 0555 to try to score an appt with my PCM. I called at 0600, like their website says to do, but I wasn’t able to get thru until they "officially" opened at 0610. My PCM wasn’t available, so I have an appt with another doctor at 0900. I’ll let you know how it goes - I’m going back to sleep.

Labels: ,

Jun 21, 2006

I need a new Neurologist

This has been a different week for me. Yesterday (Tue) and today (Wed) my therapists in physical therapy have been working me hard.  We have moved from strength to agility exercises and boy do they wear me out. They don’t necessarily tire my legs out, but since I have to move so fast, my lungs have a hard time keeping up! We move at a pretty rapid clip as we only have two hours to get everything done. Moving to this agility stuff shows me that I still have a very long way to go. Sometimes I feel kinda’ gimpy doing the stuff they ask of me. My right leg just moves slower, and even though I want my foot to end up in a certain place when I jump, it only does it about 25% of the time. This is pretty frustrating for me since I’m supposed to do the exercise a certain way, but I can’t move right. By the end of the session today, my right leg was just trembling with every movement – I think we asked too much of it or something. So, I went home, showered and just rested. Even after all that rest I was completely pooped when Holly and I had to run to the PX. In fact, I was getting so tired that I just wanted to get done and get back home. I guess the radiation is still working on me – the doctors said it would take some time for the effects to wear off.

I got some interesting news from Dr. Smart, my Rad/Onc over at NNMC. Apparently, the doctor that diagnosed me over at Andrews AFB, is on terminal leave and is leaving the military. So, he cannot begin my Medical Review Board (MRB) process. Now I have to talk to my new Primary Care Manager (PCM) at the Pentagon (who has no idea what’s up with me) and have them refer me to a Neurologist back at NNMC for follow-up care. And my new PCM will also have to start the MRB. I have not been able to score an appt with him though, so I’m going to have to wake up really early now and call at like 7am  to schedule one. It is good to know that I can stop trying to get answers from Andrews, at least. Now I can focus on moving forward.  Thanks to Dr. Smart for finally getting some answers for me… she’s awesome!

Labels: ,

Jun 19, 2006

Radiation Complete!!!

2006-06-19, Last Day of Radiation 003
Today was my last day of radiation. It felt great knowing that I was not going to have to make the daily trek up to Bethesda every day anymore. I got to meet with Doctors Duelge and Smart for the last time and then I had my last treatment. As the machine was doing its thing I was just praying to God thanking Him for getting me through this and just asking for continued healing. As the machine moved to the left and final side, a feeling of relief and excitement came over me as I realized that I was closing a chapter in this battle against my brain cancer. It has taken me some time to come to the realization that I did have cancer in my brain. And now, we hope and pray that it is gone. I'll have a follow-up appointment with Dr. Duelge in a month and we'll take another MRI in August to see what things look like. If all is clear, we'll have another MRI in six months and then yearly for a few years. By then, we'll be back in Texas. They gave me the mask that you see in the pictures that was used to keep my head in place. That should be a cool conversation piece.

We still need to figure out exactly what is going to happen next with my military career - will they medically retire me? If not, will the military keep taking care of me after we get back to Texas? Doctors Smart and Duelge are working that for me and I'll have more info soon. For now, I just need to rest this week as the residual effects of the radiation will continue to make me feel fatigued. In fact, today I woke up at 1000, but I was in dire need of a nap by 1500. It probably didn't help that I had a dental cleaning appt at 1330 and then we had to stop by the commissary to get a few items. Unfortunately, when we got home, the skies opened and a torrential downpour came upon us. The rain came so hard and fast that water leaked in around one of our windows in the bedroom and we had to dry it up and call maintenance. Nothing was damaged, but they are going to have to fix the window from the outside. That should be interesting as we live on the 12th floor! I finally snuck in an hour nap at 1700. Oh yeah.. one more cool thing that happened today: I began my final taper of my anti-seizure medication. I'll be taking 250mg for the next three weeks and then nothing after that. Please please pray that the seizures stay away!

Tomorrow, Wed and Fri I just have PT and that's it. Thu will be my first day of nothing. I'm looking forward to getting back to work next week. Here's a link to the rest of the pics we took at NNMC today. I'm glad the radiation is behind me - I'm still alive and am beating this cancer down. I'm proud to be able to call myself a cancer survivor.
That has a nice ring to it: Roger J. Mommaerts, Jr., Cancer Survivor.

Labels: ,

Jun 18, 2006

One treatment left!!

Tomorrow (Monday) is my last radiation therapy appointment. This will be treatment number 33. I’m pretty excited about it! This is a big milestone for me against this tumor. Holly and I are planning to go together so that we can talk to the doctors together and snap a few photos – and thank the staff too. It’s not like we won’t see them again in the future, because we’ll probably see them in a month, but it’s a milestone dang it!

The weekend was fun for the most part. Friday night was our friend Jana’s birthday party. There was a good turnout and it was pretty fun. I got a really bad suit at Goodwill and a wig – it was terrific. Click here to see the pictures I have posted for your viewing pleasure. Compliments are welcome.

Saturday was not so great; for Holly, at least. She started to come down with a cold late in the week and it really hit her Saturday morning. I went to a church board meeting at 10am and then met with Pastor John and a few other folks and then we went to lunch. I called Holly and brought her lunch and we just chilled out all afternoon. Then we ordered some bad Chinese delivery (the food had no flavor – they claim to not use MSG, they must not use salt either.) We watched Madagascar on HBO (cute movie) and went to bed. This morning we got up in time for church, but Holly was coughing and had a really runny nose and we agreed it would be best if she stayed home to rest more and prevent spreading her cold to anyone. I came home right after church and we went to the Commissary for some items and came home again. She got a nap and I watched some cycling on TV and worked on fixing the laptop. We just got back from Silver Diner for a late dinner and boy did it hit the spot!

I have been a software beta monkey lately. I got a hold of Windows Vista and Office 2007. Windows Vista is the new version of Windows that is coming out next year. It is very pretty and looks like a souped up version of Windows XP. But it just didn’t run very well on my laptop and I had to put Windows XP back on it. I also have installed Office 2007 which has a whole new interface. It looks pretty good and well thought out. And to round out the beta train, I installed Internet Explorer 7 and Media Player 11 on the laptop too. I’m not going to go on about all that, because I know it will put you to sleep. But it is cool to me. Oh… and Google finally decided they would provide picture hosting of some type. I am all over that one and the pictures above are on their new system. Okay – now that you are asleep, I’m going to sleep too.

Labels: ,

Jun 15, 2006

Two treatments left!

I woke up this morning at 6am, not because I wanted though. I guess I was having a dream or something. Lately Holly and I have been having pretty restless sleep with weird nightmares and the like. I’m not sure if I was still dreaming right before I woke up, but I remember realizing that I was breathing very heavy, not like I was out of breath, but like I was scared or nervous and just rapidly breathing. Finally, I awoke and I had a very full breath of air in my lungs. My eyes were open and I blew it out and immediately then sat up. I wasn’t sleepy or tired; I was wide awake and a little bit dazed at what just happened. I looked over and Holly and she was still asleep. Good, I thought, I put on my slippers and left the room to avoid waking her, closing the door behind me.

After a pit stop I sat at the computer for a while and checked my email and such. At about 7am, I heard that Holly was up – she was feeling pretty bad with a sore throat, so she sent of a few emails to work and I urged her to get back in bed. I went back to work catching up on the news and such and I finally decided to just sit down for a few minutes at about 10am to rest. My phone suddenly rang and it was 11am! Kezia was calling to see if I was ready for her to pick me up. I had fallen asleep – I should have known better. At about the same time, Holly got up again and was feeling better. She decided to head out to work to get a few things done. She definitely sounded better to me. We both got ready and Kezia came to pick me up at about 11:45. She was once again kind enough to give me a ride up to Bethesda. On the way I got a call from Matt, the young man who was involved in the construction accident that I met at NRH. He told me last week that he was having surgery this coming weekend to put his skull back on, but they moved it up to yesterday (Wed). He was in the ICU at George Washington University Hospital, the same ICU that Kezia works in! I told him we would come by after radiation. When we got to NNMC, I talked Kezia into eating at the cafeteria. Turkey, potatoes, stuffing – “hardy” was the word she used to describe it. We both ate and were full for just over $7. Radiation was quick and off we were to GW.

Matt was doing great and was relatively comfortable for just having gone through brain surgery again. His recovery has been remarkable and inspiring to me. He can walk with a cane now and is working to get movement back in his wrist and below. He was telling me about a prom that he went to in May that his friends and family made him go to since he didn’t go to his senior prom. Apparently, he and his date were picked up in a helicopter and flew to the prom! How cool is that? Then they left in a ten seat limo, just him and his date. How is that for an entrance and exit?? Anyway, Kezia took a picture of us, I’ll post it soon.

Lastly, we headed over to Fort Myer so that Kezia could take advantage of the cheap and tax-free items there. Holly was driving by the post as we were finishing up, so she pulled in and I left with her so that Kezia could tend to some other errands. We came home, ate, chilled and I ate again. Today has been another day where my energy level has been pretty normal. But I am cautious to not overdo it. I might have all this energy now, but might tank tomorrow. So, I look for a stopping point and rest when I get the chance to conserve energy.

Tomorrow is going to be another long day. PT at 0800 for about two hours. RT at 1300 and then our friend Janá is having a big birthday bash in the party room on the top floor of our building. So, I’m going to make sure I rest after RT so that I can help when I can for the party. It should be a fun day. I’m really looking forward to tomorrow for another reason though… after RT, I will have only one treatment left. Life is good!

Labels: ,

Jun 14, 2006

Three treatments left

Today has been a pretty good day for me considering how long it has been. I got up at 0730 and have been going ever since. I went to PT and did a whole bunch of new exercises that target my trunk, abs and upper body. It was a good workout and shows me that I still have a long way to go, but I’ll get there. RT was uneventful. Holly and I had dinner with our neighbors down the hall at a place in Clarendon called Clare and Don’s… get it?!? It was good – beach type food with the same atmosphere. But it was not as good as I had hoped. Not a whole lot to report here, but there are just three more radiation treatments left!!

2005 AFNG Airman of the Year 098
A quick side note: A good friend of ours recently invited me to a ceremony where she was to be presented with an award. Our dear friend, Erika Johnson, was selected as the National Guard Airman of the Year (Junior NCO) for 2005. She won this out over every other airman in the country! This was a national award for her and quite an accomplishment. I understand that she is getting a direct commission and will be going to officer school later this year. Way to go Erika! Here is a link to some pictures from the ceremony.

Labels: ,

Jun 13, 2006

Four treatments left

Sorry for not posting sooner this week – I have been pretty tired and just don’t have the energy to sit in front of the computer. For those of you that really know me, that means there really must be something wrong. :-s I’m just fatigued, that’s all. I’m doing well. Today the radiation field was made smaller – I thought it was going to be cut in half, but they only cut it down by 1cm in diameter. I’m not too worried about it now – I just want to get through this week and then next Monday is my last treatment. Then all I have to do is physical therapy and eventually get back to work. My days are so long now on the days that I have PT and RT, so long that I don’t really look forward to them. They just tire me out – so I’m going to get to bed.

Labels: ,

Please Pray For Us

We need a lot of prayer this week. Roger and I are both not sleeping well. I've been up since 4:00 a.m. I can't go back to sleep and I'm tired. This is Roger's last week (plus next Monday) of radiation. It's supposed to be the worst week in terms of fatigue and exhaustion and the chance of necrosis. He is scared and worried about that. We finally were able to talk Saturday morning about our fears and worries. It was an emotional few hours but we needed to get it out of our systems, shed many needed tears and cry out to our Father in heaven. I'm not worried about the necrosis, but I am worried that he's worried about it.

Please pray that God wrap his arms around Roger this week and protect his brain cells from the radiation and only the cancer cells are annihilated. Please pray that the Lord wrap his arms around us and fill us with his everlasting peace and glorious joy. Please pray that He gives us rest and patience for each other.

Thank you for praying for us and loving us. We love you all dearly and pray that our heavenly Father bless you and your families.

Thank you, Holly

Labels: ,

Jun 8, 2006

Good Days

After my bad day, I realized and friends reminded me that all that crappiness took place on 06.06.06. Yes, I’m sure that devilish devil was all over me that day. The next day went better. Actually, as I was leaving Bethesda Wednesday, I saw a slew of news vehicles setting up shop just inside the entrance. I figured that it was the media covering Kimberly Dozier’s return to the US after the roadside bomb incident in Iraq that killed two of her colleagues and one soldier. When I got home an hour later, I turned on the news and there she was at Bethesda. You know, she could pretty much be treated anywhere she wants. But she is sticking with Bethesda – they are a darn good hospital.

Today was good too. Nice hard PT and easy RT. I don’t have PT tomorrow… I’m going to try to get to RT early so that I can get to work to take care of some paperwork. And get home to rest ASAP. I’m looking forward to resting this weekend to prepare for next week – the most intense week of my radiation yet.

Labels: ,

Jun 6, 2006

Bad Day

Today has been the worst in a while…

The first part of the day went okay. I went out to NNMC for my daily Radiation blasting. It appears that phase two of the hair falling out has begun. I now have circles on the sides and back of my head where the radiation enters my body. In the circles the hair has stopped growing and it is also falling out. When I woke up this morning, my pillow was covered with hair from top to bottom. I also have a very dark and tender spot on the top of my head. Dr. Smart gave me some more ointment to try to make it feel better. After today I only have eight more treatments left. The last five are going to be doozies… they are going to make the field smaller to concentrate the radiation to a smaller area. This will deliver more radiation to the tumor site, increasing the chances that the tumor will be killed, but it also increases the risk that damage may occur to my brain tissue. Yes, there is a chance, but it is a small chance. I have to admit – I am very impressed with how I have come through this thus far. My muscle strength is still improving and my motor function is getting faster and more accurate. I was afraid that I would backslide, but to date everything has gotten better. I think that continuing my physical therapy early in the mornings and getting rest has been key to that. I have not plateaued like I thought I might – I am still getting better – praise God! I am going to keep pushing forward over the next few weeks, but will take the time to make sure I am well fed and rested. All of the commuting and appointments are wearing on me, but I am going to get through this. I am going to get back to how I was before – I will not give up.

So after RT, I grabbed a quick sandwich and headed to my Urology appointment. I was so short for time that I had to scarf down my sandwich while I waited for them to call me back. The doctor inspected the goods and everything is in good order. Dr. Williams ordered an ultrasound just to be sure, but it looks like all is well in the nether regions. My ultrasound is scheduled for mid-July.

After that I headed down for the follow-up hip x-ray. It was quick and painless and I just love the new x-ray technologies that are all electronic and do not require x-ray film. They have the results immediately, I love that. I understand I won’t be able to see an Orthopedist until mid-July. But I’m sure everything is okay in my hip too.

I finished up at NNMC around 1545 and metroed over to the AIM access studio to meet a friend to work on a DVD project. This is where the day started to go downhill. We began editing it at 1700 and by 1840 we had lost the project once and I managed to screw it up several times since I have not worked with the system in months. She had to leave to go to a church event, but that was cool since the editing was done. I just needed to burn the project to a DVD. I was hoping to get out of the studio soon enough to also make it to the church event down the street that started at 1900, but after trying to burn the DVD three times at 20 minutes a pop and failing, I was ready to pull my hair out (ha!) It turns out that the software doesn’t like only one audio track, known as mono. I should have copied the one audio track to the other track to make it stereo… duh! It would have been helpful to know that sooner. Dang, I guess it would have been even more helpful if I had asked for help sooner. One of the guys at the studio, Austin, came to the rescue and saved the day. Finally, at 2045, I headed over to the church fiesta with DVD in hand. When I got there, I discovered that the person that needed it had left, but I was able to pass it to a neighbor of theirs for delivery.

I was feeling quite famished and thirsty and was planning to eat at the event, but when I got there, I just didn’t feel myself. I was tired, a bit cranky, hungry and I really just wanted to go home. I talked to a few people and was trying to scope out a ride home. I sat for a while and surveyed the crowd, but in the end, I decided to suck it up and just get home to Holly as quickly as possible. I decided to just walk home. Walking home was a stupid idea, I should have called Holly to pick me up, but she had a long day herself and I didn’t want to bother her. When I finally got home, I was feeling dejected, famished, lonely and I melted into her arms, finally sobbing as the realization of the days events caught up with me. She scolded me for not calling her and I guess it was stupid of me not to. I guess I feel as if I am too much of a burden on her sometimes.

The final blow of the evening came quickly. I was supposed to bid and purchase something for her on eBay. I even went to the item earlier in the afternoon to check on its status, but in the confusion of my disaster at the studio, it slipped my mind. She was very disappointed and I felt horrible that I forgot. We spent so much time keeping an eye on this item and I forgot. She was frustrated and was feeling very pessimistic about the event that she was going to wear this item to. Our long days had worn on us and she went off to bed, I longed to hug her but it didn’t happen.

You know, this brain tumor is really tearing at us both. We have never felt God’s peace like we have in the past few months (Incidentally, the three month anniversary of my surgery passed with little fanfare on Saturday, June 3.) But, we have also had some fights and disagreements like never before. This thing that we are going through is wearing on us slowly. I feel like I should be doing more, but most days I feel I’m at my limit. I feel guilty for not being able to go to work. Things around the apartment that I take care of are falling behind. Some days I don’t want to do anything at all. I’m not sure how to handle all of this – all I know is that I want to get past all this soon. I keep looking at this and I think that it’s not that big of a deal, but it is. Slowly, over time, this is wearing on us. The stress, uncertainty, time, questions, it’s all adding up. I can feel the pressures of all these things welling up in me tonight. Maybe it is because I had a bad day. Maybe I am overreacting. Maybe it is time for me to take a look at this situation, prioritize things and take care of what’s important. First and foremost is my wife. She’s the love of my life and I hate to see her upset or disappointed. It has been hard for us to readjust to this new lifestyle, but we need to work better at it. Most of all though, we need to pray together about it more. Holly mentioned to me a few days ago that we are not praying together about all this enough. She’s right. That’s one of the first things that needs to change. Please pray that we can work to change that.

Labels: ,

Jun 5, 2006

Simple Day and IMPLOSION!!

Today was a simple day. I had two hours of PT early this morning. PT is getting so physically demanding, and it is getting so warm, that I have to come home to shower before I head out for RT. This makes the time between appointments longer, but it have to do it. I have been struggling with trying to get in everything that needs to be done as quickly as possible... PT, RT and work. I have come to the conclusion that I just can't do it. I can't keep forcing myself to go faster just to get everywhere. My body is not going to tolerate it these next few weeks and I need to take it easy and rest as much as possible. I'll go to work if there is enough time to be there for a few hours, but I'm not going to "make an appearance" for a just a couple of hours. The days I only have RT I might be able to squeeze in a few hours of work, but we'll see. I'm having a hard time letting go - I could really use some prayer in this area of my life right now. After today I only have ten radiation treatments left - woo hoo! I hope to be done with PT at the end of June.

I have an appointment with a Urologist tomorrow (Tue) just to rule out anything down there. I'm confident that everything is fine, but please also pray about that for me.

Here's the implosion video from Sunday that I promised. Click here to see it in a bigger window or watch it below. I'd personally watch it in a bigger window and crank up the sound too. Enjoy!

Labels: ,

Jun 4, 2006

Very Long Busy Weekend

What a busy weekend. We had to get up early to go to Radiation Therapy on Saturday morning. We left there, came home and took a nap. Then we headed over to Clarendon to watch the CSC Invitational bike race where we met up with Geoff and his girlfriend Jen. It was cool – I’ll have some pics up soon. We came back home, I had another nap, and then we headed over the Tyson’s Corner shopping centers. I met up with my friends Glenn and Mike and we hung out for a while. Then we came back home and went over to Cassatt’s to enjoy some good ole jazz courtesy of Rex Bauer and his awesome band. After that, we stopped by Geoff’s house to wish him a happy birthday. Yeah – Saturday was a long day – I was able to get through it thanks to those naps. Sorry for not going into much detail, but I’m not in a writing mood.

I will tell you about Sunday though… Holly and I got up at 5am to watch the military implode a building on Ft Myer – and let me tell you… it was so worth it! We were about 200-300 yards from the building – and I got some great video. It should be up tomorrow too. We came home and went back to sleep and then headed to church and I taped the service again – I enjoy doing that. Then lunch, another nap and then off to the grocery store… we cooked dinner… prepared food for community group at our place tomorrow and now I’m sitting here typing. So, yeah – it has been a busy weekend.

I’m going to leave you with this… Holly came with me to Radiation Therapy a few weeks ago and they allowed her to observe the process. She took some video from outside the room from the control booth and I put it together with some narration so that you’d know what’s going on. Click here to watch it in another bigger window or watch it below.


Labels: ,

Jun 1, 2006

Square Radiation

What a nutty day! I went to PT and that went well. I got home and called the Radiation clinic to see if the machine was working yet – they said it wasn’t, but to call back after 1pm. I figured this would be a good opportunity to have lunch with my friend Ryan, who works right by the Metro Center metro station. And I figured it would be good to be half way to the hospital since I transfer at that station anyway. I called him up and he was all for meeting up as he was already planning to have lunch with good ole Lyon anyway. So, I headed downtown and we had lunch. It was actually nice to go downtown and walk around a bit since I never really go there... I have no reason to and it is crazy down there!

During lunch, I called the hospital and they said I should plan on being there around 1330. Lyon headed back to work and I walked with Ryan to his office and then headed back to the station to go to the hospital. I got there shortly after 1330 and learned that it was not fixed yet. Dr. Duelge, my attending, said that their machine was experiencing issues that the techs were having trouble fixing. He said the machine had been working pretty well for about two years and this is the longest it has been down that he can remember. He gave me the option of being treated on another older lower power machine with a rectangular field, not a field conformed to the circular shape that spares my brain from excessive radiation. He stressed that this one treatment will not harm me and that tomorrow they will have created plates that will shape the radiation correctly. I had to skip yesterday, so I opted to go ahead and take his advice and do it. Back to the waiting room at 1400. I sat and 1500 passed. Then 1600… finally 1700. During this time I had a nice conversation with two retired officers, one was a Navy General and one was in the Air Force. Both were being treated for prostate cancer. They both shared stories with me about the work they did with the nuclear program and such, way back when. It was really interesting. Around 1705 I finally had to break down and cancel some plans I had made to help a friend out with something technical. Then they finally called me back. The treatment took a little longer, but they got me in and out and they apologized profusely for the delays. They really worked hard to make things happen right. Apparently, the delay was due to the fact that they had to recalculate all the numbers for my treatment. They did it once and twice to make sure they had it exactly right – which is fine with me! Anyway, that was my day. I got home at 1830 and vegged.

Before I went into the hospital, I was working on editing together our church’s Christmas play. I pretty much finished it but never finalized it and then I could not get it to burn to DVD. I knew that the folks that were in it wanted to see it, and I felt bad, so I thought… why just not post it on the internet? So, here it is… The Grace Community Church All-Stars Children and Youth Ministry present "Outside the Inn." Performed at Grace Community Church in December 2005. Click here to watch it in a bigger window or just watch it below!

Labels: ,

May 31, 2006

Negative and Negative!

I had a fantastic day. I went to Bethesda for my daily date with the Radiation machine, but it was broken. Okay, so that is not so fantastic… and the fact that I have to come back Saturday for a treatment is not too fantastic either. But read on, will ya? I went in to see the Pulmonologist about the “spot” in my left lung. He took a bunch of history and checked me out. He didn’t see anything that would indicate a problem with my lungs. So, he brought up the CT images and the first time he went through them he didn’t really see anything. He went back and looked at the radiologist’s report and noted the specific image number. He went to that image and we could barely see the cloudiness that was noted. The doctor’s exact words were, “I’m not impressed.” The area that is in question is right next to my heart. He noted some artifacts, or blurriness in the image due to the beating of my heart. He thinks that the cloud is just blurriness – another doctor agreed with him. Based on my overall good health they decided that this was nothing to worry about at all. He said that a follow-up CT would not be necessary. How cool is that?!? I was pretty sure it was nothing, but we had to go through this just to be sure.

After that happiness, I decided to go to Dr. Rosenbaum’s office to see if I could get some information about my left leg since I never heard back from them. I was talking to his assistant and he came barging into the room! It sure was good to see him again. He told me that he talked to an orthopedist and they said it was nothing to worry about either. Man, can I get a Hallelujah?!? It looks like weird growths like that are common. I’m going to follow up with Dr. Rosenbaum to get that in writing so that it is documented, but how fantastic is that? I had a long day at the hospital, but it sure was worth it. All I have left now is an appt with the Urologist next Tue. Pray for that to go well, will ya? Please??

I had a heck of a time getting to sleep last night after I blogged. I layed in bed until almost 4am before I finally dozed off. Then I had to wake up at 9am to get going. So, I’m going to hit the sack right now as I have PT and RT (if the machine is fixed) tomorrow. I also need to get travel paperwork signed and faxed in so that I can get reimbursed for our lodging expenses. Check out last night’s blog if you haven’t already.

Labels: ,

May 30, 2006

P-P-P-Pooped! :-P

Alright, so I have been stalling writing for about an hour now. I guess I just don’t have the motivation to write, even though there is so much to share with you. The theme lately seems to be fatigue. The weekend was full of rest and that gave me lots of energy. I stayed home most of the day on Saturday and did laundry and worked on some videos. One of which is a little one I did for my friend Rex. You’ve read about our dinners at Cassatt’s. Rex and his band play there once a month and I thought it would be fun to shoot and make a little video of their performance. I took some video with my little Canon SD550 and made a little something out of it. Not bad video for such a small camera, eh? We’re going to have dinner there again this Saturday, June 3rd. Let me know if you’d like to join us! Click here to watch it or watch it below.


Saturday night we joined up with some friends and had dinner at the Little Viet Garden on Wilson. The food was just okay (some of the dishes came out cold) but the service was terrible. I will never go there again. I am not even going to link to their website. Just don’t go there, ever. Overpriced, bad service and mediocre food... what else could you not want from a restaurant? Ick.

Sunday I videotaped our church service at Grace like I used to do each Sunday. I tape the service and it is broadcast on the local access cable channels in Arlington and Fairfax, VA. We borrow the equipment from Arlington Independent Media. Pastor John’s sister, Lynda, works there – so she edits the tape into a show that broadcasts three times a week. I had to stop by the studio last week just to make sure I still knew how to handle the equipment and to make sure I could carry it. The camera weighs about 20 pounds, but I just need to get it up on to the tripod and I’m good. I used to be able to carry most of the equipment with one hand, but now I need two. It’s okay though – I’ll get all my strength back. It was good to see some familiar faces there too – and some avid blog readers. Hello to Jackie, Jon, Brian, Austin and Jen. You guys Rock and do Arlington a great service!

Monday was sleep-in day for us. We woke up a little before noon and headed out to grab a nutritious and delicious lunch (well, delicious, at least) at Chick-Fil-A at Ballston Mall. Man, I love their nuggets with honey. We then set out to find some local geocaches near our home. What is a geocache, you ask? Here’s a quote from their website:
“Geocaching is an entertaining adventure game for GPS users. Participating in a cache hunt is a good way to take advantage of the wonderful features and capability of a GPS unit. The basic idea is to have individuals and organizations set up caches all over the world and share the locations of these caches on the internet. GPS users can then use the location coordinates to find the caches. Once found, a cache may provide the visitor with a wide variety of rewards. All the visitor is asked to do is if they get something they should try to leave something for the cache.”
Read more about geocaching at their website. I like to think of it as a casual sport. We set out to find six but only found three. One was a difficult one near home, another was down the street and the third was in a shopping center. We came up empty at those three, but I think the one at the shopping center was missing as I discovered we were at the right place. The last three were a lot of fun – we found them and got to explore some new places we had never been to in the area. The best was Glencarlyn Park – there were tons of trails and shade. When I can get on the bike again, we’re going to head out there for a ride. Anyway, we had a lot of fun in the sun even though it was very hot. I think it hit 90 degrees Monday, but we were ready for it.

We finished off the day with a cool drink and some tapas at one of our favorite restaurants, La Tasca. They have great food at a reasonable price. Check it out if you have the chance. Here’s the best part about Monday, I may or may not have driven around town a little bit. It was or was not pretty easy. That’s all I’ll say about something that may or may not have happened.

Oh yeah, I made Holly shave off all my hair, so this is how I look now:
Shaved Head

The hair falling has slowed down tremendously. There are a few on the pillow in the morning, but not as many as there were last week. The tingling has pretty much stopped and I’m feeling pretty normal again up there. Today at physical therapy, Jess had me run for the first time in months. I ran for about seven minutes at a rather slow pace just to check out my leg. My right leg doesn’t advance forward for the next step as fast as the left leg does. It makes for an akward staggered run and my foot also falls flat, not heel first. My left shin started to tighten up so we stopped, but it was an interesting first step. We’re going to work on speeding up my motor function in the right leg more and more.

I went to radiation after that. Tomorrow is my 20th treatment ending the fourth week. I have 33 treatments total (not 30 like I previously though) so these will last through mid June. Today, after therapy, I was ready to crash once again. I kept falling asleep on the metro and once had to see exactly where I was on the orange line as I thought I was out for a while, but I must have just dozed off for a minute. I got home and slept for three hours. I hate feeling like this, but the doctor keeps telling me that this is normal for brain radiation patients. I see the pulmonologist about the fuzzy spot they found in my lung before the surgery. I’m sure it is nothing. I’ll let you know tomorrow. Okay – I have babbled on enough. More tomorrow.

Labels: ,



Powered by FeedBlitz

  Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 2.5 License.