Welcome to our Blog :: This is the place to find out about our progress on the treatment of Roger's brain tumor and our adventures in parenting in the midst of cancer treatment ::
Dec 21, 2006
Here we go again..
Then, everything was quiet. I came to in bed. I was very confused at first, just like last time. I think I was coming in and out of it as I think she had to tell me several times what was going on. It took me a good while to finally sit up, and then I felt like I was going to throw up again. I went to the restroom twice, but I finally started to feel better. Holly tells me that the seizure started at about 9:05pm and I stopped seizing at 9:08pm. Then she says I laid there for about ten minutes before I sat up. She then says that I got up and was walking around. She said I tried to walk to the front door several times. Apparently I ended up in bed but tried to get up again. I even walked into the night stand next to the bed and cut my knee. Funny thing is, I don't remember any of that at all. I just remember waking up in bed. It wasn't until almost 9:45pm that I started to get what happened.
I think that Holly's take on what happened will be better and more detailed than mine. Maybe she'll decide to blog to write about it soon. My last seizure was July 15th and I have been on meds - but it looks like I'm going to have to get a stronger prescription and I definitely will not be driving anytime soon, which really sucks. I know that my right foot has been having the hardest time recovering from the surgery, and this seizure tells me that the most damage in my brain is located in the area that controls my foot. A neuron misfired there and then spread throughout by brain within a minute and involved my entire body. Freaky, huh?
Anyway, I feel fine now. I just have a sore back and a big headache. My jaw hurts and I'm sure my muscles will be sore tomorrow. One good thing though - I didn't bite my tongue this time! I already called my boss and am taking the day off tomorrow, but I still have to go in just to pick up my promotion packet that I have to complete and mail off next week so that I can try to get my E-7.
Anyway, I just ask that you all pray that I feel better and that the Lord keeps a close eye on us next week as we celebrate Christmas.
Dec 13, 2006
It's All Good!!
I wanted to include a picture from my company's holiday party last night. We had a great time and the food was fabulous! Love you all, Holly
MRI Done - Results Later Today
Dec 12, 2006
MRI Tonight!
Nov 26, 2006
Back from NYC
Nov 22, 2006
NYC
Nov 19, 2006
No Whooping Cough, Pants and Pics
As I mentioned earlier, Holly and I went shopping earlier. We went to Old Navy and we bought four pairs of pants. I knew I needed new ones and mentioned getting them to Holly. She was slightly ticked off because she was going to get me clothes for Christmas, but I beat her to it. I guess she’s going to have to get me something else! Like possibly a Logitech Harmony universal remote. Man that would be terrific. But, don’t tell her I told you. Anyway, I now have pants that are apparently considered trendy and in – as opposed to gaudy and old. Sweet.
I got a reminder today that one place where we have pics stored was going to be deleted unless I clicked some link to make it not be deleted. Check out these newly saved pictures from our wedding, honeymoon and family reunion a few years back: MSN Pictures.
Nov 16, 2006
Whooping Cough?
Our friend Matt, from LA, did manage to stop by. We walked down the street to El Pollo Rico(always fantastic) and brought it back to the apartment to eat. We talked and called it a night. He heads back to LA tomorrow morning. It was good to see him again.
My friend John sent me the following link this week. I thought the video was pretty interesting – a good job on the editing:
Nov 15, 2006
Even Sicker, Sandy Update and Scalp Sliding
A friend of ours from LA, another Matt, will be in town tomorrow for a meeting downtown. He wants to stop by tomorrow to say hi. His wife, Yoli, and he and their daughter stayed with us for about a week last summer as they visited DC. I hope I’m feeling better – it’ll be nice to catch up for a few hours.
Next, I got another update from Mike and Sandy I wanted to share with you:
I am encouraged by Sandy’s progress. Keep on praying for them, they need it. One last thing – I spoke to my neurosurgeon, Dr. Rosenbaum, today via email (I guess that’s not really talking, eh?) Anyway, I asked him again about the possibility of fixing a problem I am having at the left end of my incision. I keep on getting ingrown hairs that get painful because they closed it up and put skin over more skin where hair is still growing. It’s not pretty. He said that they might be able to fix it in Jan and we might also look at closing the gap where no hair is growing on the incision line. It should be a simple procedure. He said, “I think you could have a better job done… For now - I want you to start holding your scalp and sliding it back and forth across your skull. I know this sounds crazy but if you are able to wiggle the fibers loose and make the whole scalp slide freely we can avoid the prolonged application of a tissue expander.” So, next time you see me, I’ll be sliding my scalp back and forth!Hello all - I wanted to provide an update from today's exciting trip to St. John's Cancer Center… Today went pretty well. In the last update I mentioned that there was a good possibility that Sandy's blood count would be too low for her to get her IV chemo today. That would have meant that she had to get shots for the next three days to build her up enough so she could get the IV chemo on Thursday. Well - Praise the Lord, her blood count was high enough today that she could get the IV chemo. That is really good news that her body is holding up to all the abuse. The bad news is that the blood count was not all that high and it probably needs to improve before next week.
Sandy got two more radiation treatments today and is looking pretty crusty. She continues her two a day radiation through Friday and then is done. For those of you keeping count; that means it is 32 down, 8 to go! Sandy sees the radiology oncologist tomorrow so she may know more, but I don't think anything is going to change at this late stage of the treatment.
The regular oncologist visit next Monday may be more exciting. We really aren't sure what we do next. The oncologist wants to see the radiation results to decide for sure what to do next. Sandy is off the oral chemo this week (the off week in the cycle) and will finish the radiation on Friday, so the oncologist wants to regroup before deciding how much of what and how often starting next week. We will meet with the oncologist on Monday and decide the next course of treatment. Based on the previous conversations, it should be the two chemos that she is on now, but different frequencies and dosages.
Even though things are starting to look better in beating the cancer right now, Sandy could still use all the prayer she can get. Her blood count really needs to rebound a bit this week so the doctor can continue to treat the cancer rather than the blood count. And some of the treatment side effects are starting to kick in. Sandy is having trouble swallowing which is caused by the radiation irritating the esophagus. In addition, the skin on her hands, mouth and lips is very sensitive. Even toothpaste feels like it burns her mouth and lips right now and bending her thumbs is a little sensitive. This is normal from what we are told, but still not pleasant. And her left arm is still a source of pain since the surgery. Once again, normal but not pleasant.
All in all, a day to celebrate the successes and pray for God's guidance and relief for the challenges. Speaking of leaning on God, Sandy and I had a very moving experience on Sunday. The elders of the church, our Spiritual Council, organized a "laying on of hands" for us before services on Sunday. We met in the chapel and the Spiritual Council members along with the Pastors laid hands on Sandy and I, anointed her with oil and prayed for us. There were about a dozen people in all. A real encouragement to us and an example of leaning on each other as the Bible instructs us.
Sandy and I are both looking forward to the Thanksgiving and Christmas holidays. We really need a chance to have some time off work and hopefully away from treatments to spend some "fun" time with family and friends. Matt and Julie are coming in from DC and of course Jessica and Kimberly will be here. I think that is exactly what we need right now.
God bless you all and thank you so much for your continued support. Love, Mike
PS--- Mike covered it all for me. Thank you for your continued prayers & please keep praying. I'm still very tired but at least I'm starting to see the light at the end of the tunnel w/radiation if nothing else. I hope & pray that you & yours are doing well, staying healthy & having fun. Thanks. love, S
Nov 14, 2006
Sicker and Good news for once
Because I was coughing and stuff, I had to wear a mask over my nose and mouth to prevent the spread of my germs. It was a little embarrassing - people kept looking at me like I was some kind of freak. But when the doctor called me back, he thanked me for thinking about everyone else by using a mask. The doctor had a chest x-ray done just to make sure I did not have pneumonia – I don’t. He figured that I just have a very bad upper respiratory infection brought on by a nasty virus and assigned me to quarters for 48 hours – which means I can’t go back to work until Thursday – unless I still feel bad. I got some more meds mainly for my cough and got home around 11am. I’m looking forward to seeing how my nighttime cough medicine works tonight!
Now for some good news regarding a cancer fight! Around the time that we went to St. Louis for Matt and Julie’s wedding, I told you about Matt’s mom, Sandy, who is fighting breast cancer. She’s responding to the treatments and is doing pretty darn well. Here’s an update that Sandy’s husband, Mike sent me last week:
Sandy is doing remarkably well after hearing that the cancer was getting aggressive a few weeks ago. It looks like the doctors have figured out what cocktails are working for her. I’ll post more entries from Sandy and Mike when I get them. Please keep praying for them! They really need it.Hello all - I am once again the guest writer for tonight. Don't be surprised if you get an update within the update from San if she is feeling up to it later. Today was a good day, of course, everything is relative. We went to see the oncologist and she was thrilled with the response we are getting from this new drug/radiation combination. The small tumors are almost gone, the bigger ones are smaller and no new ones are appearing. It looks like our plan to cook Sandy twice a day while feeding her poison both daily and weekly is working. Whoo-hoo!
Sandy is on week two of her oral chemo. That is the on two weeks off one week chemo. She received her second dose of the IV chemo today. This is probably the last one of those for a while though, because her blood count is dropping to the point that she probably won't be able to tolerate the drug next Monday. The plan will be to check her blood count next Monday. If it is too low (as expected), then they will give her a shot each day for three days to build her blood count up. They can't give her any of these shots if she is on the oral chemo, so next week works fine because it is her off week. Then, after the three shots, they hope to be able to give her the intravenous chemo on Thursday the 16th. That should be about the time her radiation is wrapping up assuming they keep the 2 a days going. Sandy sees the radiology oncologist tomorrow to verify that. Then, the oncologist will probably change the drug sequence - oral chemo on a week off a week and the intravenous chemo every other week or every third week in bigger doses. We will have to wait to see how things look and how Sandy's blood counts are after next week. All in all, a pretty good report for someone who is being tortured. I am not as good as San with the other stuff. I think everyone else is still fine. Thank you all for the prayers and please keep it up. Love, Mike
PS---Now you see why I have to take Mike w/me to keep straight what the docs tell me. OMG! I'm still very tired & for the most part go to the cancer center, come home, sleep & go back. Once in awhile Mike feeds me & I shower :) That's it for me. Please keep praying. We're making headway :) PTL Love, S
Nov 13, 2006
Still sick and News about a cousin
My cousin Sandi emailed me last week to share some news with me. Here is the email:
I immediately forwarded the email to my sister and father and replied to Sandi. An hour later she replied back to me:I wanted to let you know- and to pass on as needed about one of our cousins... Paul Mommaerts (I think he's about 47 years old now,) who is Ken's son (he wasn't at the reunion...) Kelly, Mary and Tim/Ford's brother. I haven't seen him since I was about... Maybe 7 years old?? Anyway, he has suffered from some kind of mental illness over the years and has distanced himself completely from our/his family. Kelly called me about 2 weeks ago, and told me she was going to try to find him again - which she does every so often. Well, I hadn't talked to her at all until this morning when she called me... Over the weekend, she was looking for her Brother Tim's phone number for something else, when she stumbled across some old work numbers of Paul's, an IHOP Restaurant in the Detroit area... Out of the blue, yesterday, she called the IHOP. She introduced herself and was immediately handed over to a manager who said "Thank goodness you called; we've been trying to locate family for Paul...” Yesterday (Saturday, I think) he suffered an ischemic (massive) stroke; he is currently on life support with very little brain function and last I heard from Kelly, is not expected to live. Kelly was in shock at the situation and of course of the timing. She was leaving today to go to Detroit to try to see him and find out more about what is going on.
My dad wrote back and told me that, in fact, he had heard from his brother Mike earlier that same day. Anyway, even though we weren’t close to him – he is part of our family. I ask that you please pray for my uncle Ken and the rest of our family that are dealing with his death. And thanks to Sandi for letting us all know what going on. We miss you guys up in Wisconsin!Well, since I sent this to you, Kelly called me and let me know that Paul died at 7:09pm tonight. They kept him on life support until she got there. No one else in the family is going up there. Kelly will handle the arrangements (Strange family, no comment... whatever.) Anyway, she said that she is trying to arrange a memorial service for his co-workers who have been so wonderful in the past few days (the coworkers at the restaurant are paying for Kelly's hotel room for 4 days) and there will apparently be a memorial service later. Weird thing, apparently before he died, phone calls were going around saying he died... I would imagine your parents might even already know. *sigh* I don't know much else, except that it is probably a very sad story overall. Kelly said he had been homeless at times... I am just so thankful that God had Kelly call and was able to be with him when he died so he could be with his family. Isn't that just amazing??
Apparently he has an ex-wife and a daughter. Lisa, my step mom, who is a private investigator is going to try to find her, however, I think it will be difficult. Her name is "Kara Smith, married to a John Smith" and no one knows where she is…
Nov 12, 2006
Sick Again
I’ve had a hard time finding time to blog with Holly’s mom in town last week and just a bunch of stuff going on. I have quite a few cancer related items to share with you that I’ll touch on in the following days. Some good… some not so good. For me – I’m doing well. Besides getting a cold again (just over a month after my last one – I guess my immune system is a little shot) I’m feeling extremely well. My hair really is growing in well. I’m letting it grow, but the rectangle on top has very thin light brown hair. If I let it grow out long, there is a pretty significant contrast, so I keep my hair pretty short these days, but I’m not worried about it. Physically, I feel great! In fact, I decided to run on the treadmill last Monday. I started slow but gradually worked up to a pretty quick pace: an 8:30 mile! I held that for about five minutes and gradually worked back down. At the end of 30 mins I had run almost three miles! But boy, did I pay for it the rest of the week. I was pretty sore but I’m not anymore. I tried running on the ground again, but it is just too hard since my right foot still comes down hard. The treadmill platform gives just a bit and is easy on my leg. I’ll run more and more on the treadmill and maybe my ankle and foot will get stronger.
So, here’s some not to good news… one of Holly’s co-workers, Randolph, has a son, Randolph Jr, who was diagnosed with a brain tumor shortly after I began radiation. He had surgery and was doing fairly well until he had a seizure while he was in radiation one day. He fell into a coma for a few weeks. He started coming out of the coma and started receiving treatments again. Two weeks ago I went over to Holly’s work after I was done at work and we walked over to Randolph’s office to ask how his son was doing. He said he was doing very well and that they were going to move him to a Rehab center (much like the one I was at) very soon. That very next Sunday (one week ago today – Nov 5) Randolph Jr’s three kids came to visit him at the hospital. They started to administer his Chemo treatment and he again fell into a coma. Details are sparse, but they tried to revive him – eventually, he passed away (obit here.)
Holly and I attended Randolph Jr’s funeral this past Thursday. He leaves a wife and three boys, age 6 and twins age 4. The “Homegoing” ceremony, as they called it, was very uplifting to me. His family seemed happy with his passing – and it is an occasion to be happy about. Randolph Jr was a believer and gave his life to Christ at a young age. He’s in a better, pain free place now. But I can’t help to feel somewhat guilty for something. Holly and I talked about visiting him at the hospital. When we thought about it, we asked his dad how he was doing, and he said he was doing better. We always got good news about him, so we never made it to the hospital. I never once got to talk to this young man. Would a visit from little old me have made a difference? Maybe. But I think my life would have been touched by visiting him. The only time I ever got to actually see his face was during the viewing. I’m never going to make that mistake again. If someone is sick – go see them. If they end up in the hospital, visit with them. Don’t make the same mistake I did. Make the effort to see someone if you are moved to do so. I was so moved – and never acted. Thanks for the lesson… may he rest in peace.
Oct 27, 2006
New Order
I discovered today that my friend, Matt P, also had various pictures of Matt O’s wedding in St. Louis. There are several albums, so here they are: Album 1, Album 2, Album 3. He also has some pictures from Tacky Prom 2006.
There is a lot of rain heading our way tonight. It should all be gone by tomorrow afternoon though. We’re having a Halloween party Saturday night. I thought I had a costume set, but now I’m having second thoughts. Ideas anyone?
Oct 25, 2006
Here's the ad that W+K created for EA Sports. It is basically a motion capture session for the video game. They made Rooney do a bunch of weird stuff and got it all on tape and then had him interact with things that were not there. Anyway, check out the other three players they did mo-cap sessions for - they're pretty funny. I think the best part is that almost every one of the guys asks during one point of the shoot, "Is this in the game?" The tagline for EA Sports is, "It's in the game." Enjoy!
Oct 24, 2006
Yeah... It's been a few weeks
Since then I have logged about 15 hours editing a video for church that we finished and showed this past weekend. It was hilarious and one of our best videos yet. I’ll have it posted to the internet soon. There are a lot of things that I am running behind on here on the blog: MRI pics, St. Louis trip pics, the video that was used in the ad… I’m going to get them on here soon enough. I do have pics from the wedding posted though – I was ushering and had to sit at the back of the church. We were pretty busy, so we got very few pictures during the wedding and while the group photos were being taken. We had a great time in St. Louis and Holly and I are enjoying watching the Cardinals lead the Tigers 4-0 in the top of the 8th inning. This game should put the Cards squarely ahead of Detroit 2-1 in the series. Here’s a link to the rest of the pics from the wedding. Congrats Matt and Julie!
Oct 5, 2006
Lots Going On
I’m finally getting over this cold and Holly and I are off to St Louis for a wedding this weekend. On top of working on a video for church, having very busy evenings after work and getting ready for this trip, even more important things have been going on.
A friend and co-worker of mine lost her father to Cancer two weeks ago. He was battling it several years before it took his life. I’ve had the opportunity to talk to her at work about it. We also talk sometimes on the train as we take the same one toward home and often get the chance to meet up. He was still in his 40’s, her mom is 42 (I think) and a widow. Please pray for her.
Here’s something I didn’t share with you for some reason. I sent this to our prayer announcement email list right after we got back from Nashville:
On Sep 3, during a church service at my sister's new church, they invited folks to come to the front for prayer, I was thinking of going down for more anti-tumor prayer when the pastor then prayed for a man named Mark Foster, who was in the hospital fighting brain cancer. It struck me and I heard my sister say, "oh my God." I think we all focused our prayer on Mark and that's when I realized that it was six months to the day since my surgery on Mar 3. Anyway, it was an amazing thing to happen on that day. I spoke to the pastor and asked him to pass my contact info to Mark and his family. I'm not exactly sure what's going on, but please pray for Mark Foster's brain cancer.I never mentioned the six month anniversary of my surgery here since I felt like this overshadowed it. A week later I got an update and sent this out:
First of all - Thanks to everyone for your prayers for Mark Foster, the man with the brain tumors in TN. His surgery was last week and he came through with no lasting complications - and... they got all of the tumor!
Finally, my mom called me today with the following news:
I have an update regarding Mark Foster, the man we learned about while in TN that had surgery to remove a brain tumor. As I shared a few weeks ago, the surgery was a success and had no immediate complications. But in the past few weeks he developed an infection in his spine somehow and also got pneumonia while in the hospital. He was having trouble breathing over the weekend and suddenly passed away early this week from complications due to the pneumonia.
Apparently, he was doing very well, but his condition deteriorated rapidly. His death was unexpected and his family is having a tough time dealing with it. These are the only details I have at this time. Please pray for Mark's family, especially his wife as she tries to cope with this turn of events.
Yeah – so I feel like I’m in the line of fire with cancer sometimes. But it is a good thing, I guess. I helps me realize how human we all are and that I need to keep fighting for myself and for others who are also affected around me.
I never gave you an update on Holly’s dad and his procedures. He fared the tests well and no abnormalities were found. I think he heeds to get back to the doc soon for more tests, but I think his immediate problem was an infection of some type.
Lastly, my friend Matt’s mom, Sandy, had surgery for her breast cancer a few weeks ago. Here’s what she emailed herself to the prayer broadcast:
It's a real blessing to see prayers being answered every day! Even though I've always known of the power of prayers it's something totally different to feel them on a constant basis from so many dedicated prayer warriors & I thank you from the bottom of my heart… I am doing incredibly well. I am totally astounded that since leaving the recovery room I have had NO pain at all!! I certainly didn't expect to feel this well at this point & it didn't even occur to me to pray for being pain free after surgery so somebody must be praying overtime!! :) THANK YOU :)
Before surgery I was taking Vicodin every 4 hours in an attempt to kill the pain so this is a real blessing indeed. Praise God. Next up for me today----------a shower!! I think I will take a nap
first since I am still pretty tired. On Thursday I will call the surgeon to report my drain totals & hopefully they will be such that I can see her on Monday to have the drains removed. That's the best case scenario. Please pray that it happens that way for me. I will also be seeing the oncologist on Mon just for a regular follow up. I'm not sure when I'll hear about the results of my latest blood work but since I feel so well I tend to think it's a lot of nothing. That's it for me. I hope & pray you're all doing well. Please pray for a fast & complete recovery for me. Thanks so much. :)
I think that says it all. I get to meet this remarkable woman this weekend and I'll let you know how's she doing. I’m looking forward to it. Oh – and don’t forget… October is National Breast Cancer Awareness Month. Ladies – you know what to do.
Sep 30, 2006
sick
I've been sick the past few days. The week started off very busy, but I was unable to get through a whole day of work all week. Wed it finally hit me and I had to stay home Thu and Fri. I've been sleeping and resting a lot, but now my cycle is a bit screwed up - so I have been up finally adding, tagging and getting the pics from our family reunion almost a month ago online. But, I did it. Enjoy.
Sep 21, 2006
Video Ad Details
I reached a deal with the ad agency on the video – I signed an agreement a few days ago and got a purchase order yesterday. I fired off the invoice and should see the payment soon. The company that is using the video is called Wieden & Kennedy. They have offices here in the states (and all over the world), but the office that I’m working with is in Amsterdam. W+K is the same company that created all the cool Nike ads in recent history. Everything from “Just do it” and “Bo Knows” to Tiger Woods’ “Hackeysack” commercials to Lance Armstrong’s “Magnet” commercial. They also did some very cool Honda, Coca-Cola, Miller and ESPN television ads. Check out their website where you can watch some of the full length ads. Anyway, they will be using my building implosion video for what they call an email ‘viral’ ad for video game company Electronic Arts. Specifically, it will be used for an EA Sports videogame: FIFA 07 Soccer. I have no idea how they are going to use the video, but they said that when they finish the ad they’ll send me a link that I should be able to share with you.
I’m so totally pooped and need to get to bed. I should have time this weekend to get the MRI pics posted. Thanks for hanging in there with me this week – it’s been a bit hectic.
Sep 20, 2006
Final thoughts on this blessed day
On top of being at the hospital for about six hours today, we also decided to stop at Ft. Myer to finally pick up a couple of sets of the new Army Combat Uniform (ACU) that I will need to start wearing soon. I bought two complete uniforms, but the name tapes will not be in until next week so I can’t wear them just yet. I had to get new boots too, and we’re authorized to wear the sand colored boots with our old Battle Dress Uniforms (BDU), so I can start breaking them in tomorrow. I spent a little extra money on the boots this time; they sure felt comfortable when I tried them on! And the best part: No more polishing! Can you see me in the picture? I'm standing right there!! Man that new camo is goooood... :-PI really want to share the MRI slides with you and show you how things have progressed, but the images are on three different CDs and I have to search through a lot of images to find the right ones. I’m going to get that done tomorrow and get to bed early tonight. Besides, I’ve already inundated you enough today with five posts, two of which were audio blogs.
Lastly, the weather is getting downright cool here in DC. Lows tonight are supposed to drop in to the high 40’s. I love it! Holly hates it. But I love it! Did I already say that?
Thank you all for your prayers!!
